Spine Hemangioma

I review your website. I was surprise to find several people suffering the same symptoms as myself with a Spine Hemangioma. Unfortunately, my case is going beyond anybody'e expectantions. I was born with a Hemangioma. When I was 3 y/o in a bad surgery, in my country, doctors damaged my spine, the hemangioma bleed a lot causing an injury. I lived my whole live with it until now. I am 40. I started with a lot of pain on left leg, suddenly, I loss strenght, and I started with urine incontinence. Dr's found a second mass on the last lower part of my spine (the first one was at L5 level). I ha 2 kids (9 and 2 y/o) I need to go on with my life and my only hope i going to foundations that can discuss my case and give a opinion to see if I could go to surgery. I am trying to get an Angiogram ASAP. After that I will be able to have better answers. In the meantime, based on MRI's seems like my hemangioma condition is progressive and causing me a lot of pain. Involves arteries and yes, they found bone destruction. Could you please give me any feedback?. I live in the Fort Lauderdale, Fl area