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Hey LydiaLydia e. pinkham...I've been looking for a surgeon also...im from the L.A. area! Have you tried UCLA...just looked it up and there's a neurosurgeon who specializes if Arnold chiari malformation... Ulrich batzdorf. Have you checked him out?
We have a Chiari forum here at Medhelp. Look under the C category. People there post about different doctors they have seen about this condition. It may be helpful to check there. The people are very caring and will try and help you out.
Chadry
Chadry