The least common form of spina bifida is a posterior meningocele (or meningeal cyst).
In a posterior meningocele, the vertebrae develop normally, however the meninges are forced into the gaps between the vertebrae. As the nervous system remains undamaged, individuals with meningocele are unlikely to suffer long-term health problems, although there are reports of tethered cord. Causes of meningocele include teratoma and other tumors of the sacrococcyx and of the presacral space, and Currarino syndrome, Bony defect with outpouching of meninges....
I would suggest u see a chiari NS as they deal with tethered cord and can ***** what is going on....since this is a possibility u may want to get a few opinions. Being in Canada u may have to go privately to get the info u want.....
This being a form of spina bifida u want to research as much as possible...may I ask do u have mush pain or discomfort from the cyst?
Thanks so muc for your response. I do not have a tethered cord. I am seeing a secon NS next month the first one diagnosed it and refered me to someone else.
I am in constant pain, both my leg and back. It gets worse by day. I beleive they called it a intrasacaral meningocele. I also have postier osteocartiaginous bars at the l2/3 and l5/s1 also not too sure what that means. I am hoping to get more info before I see the doc.
TC can be hidden from view on MRI, and there is other testing that is done is addition....this is y it is called occulta tethered cord, occulta means hidden.MRI is only one tool, but not the defining one for this condition.
Sorry I didn't read that as L I saw it as a 1...lol....gotcha now.I figured it was that general area.
I still have some issues, and am waiting on my TC release surgery....I do have bladder issues as a result..and lower back issues as well as leg issues...lately my sacral pain is what has been my biggest pain....I tried gabapentin, but it affected my bowel which at the time I was told I had IBS...not sure if that was the case or not, but recently I started on a probiotic and am seeing improvement with that.
I am now on TOPAMAX...it helps some with my HA pain...but not all of it....and it all depends on my activity.....so, as long as I modify my activities and do things I know that will not trigger a flare I am ok.
Thanks for asking : )
I actually had the cyst and it popped while I was doing pilates...I had no idea that I had chiari , TC or ne of it at the time....just thought I was out of shape...and had some things I just could never do, my DD thought this was something I should be able to handle...we both heard it pop...ouch....
From others that took gabapentin they reported that it worked at the start, but peaked and then stopped working.....so if that does happen do not be surprised.....
I was on Liryca at first but it made me very tired. I used to be on Topamax but lost my word retrival memory as well as other bad side affects. Well hopefully the gabapentine works until I see the NS in August. Until then I hope to just function. I have 3 little ones at home so its tough. I found out about my cyst when I was pregnant. But my husband is very supportive and has really pulled up his socks to help arond the house and with the kids.
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