please help as I am stuck!

[jonny84]

Please help. I have had a back and leg problem for the past 30 months or so. I fell down a flight of stairs and since then I have had extreme pain and lack of movement in my left leg, and content pain just between my shoulder blades right the way down.
After My accident I had countless MRI’s and CT scans, they found that I have syringomyelia (T6-T10, no idea what that means). My GP thinks that I am faking my symptoms and I am making the entire thing up. Despite numerous consultants saying that I am not. Rare but real.
I have started to get a constant pain running round my ribs on my left side, (I don’t know the name/number of the ribs) but the pain is in between the first and second complete rib that go round to the sternum and the gap beneath that one.
My physio thinks it is down to the syringomyelia, but only my GP can do any thing about it. In regards to sending me to a consultant.  
What do you think? What would you do in my shoes?
Please help!
Thank you

[jonny84]

does anyone have any ideas?

thanks

[Cherie762]

The second major form of syringomyelia occurs as a complication of trauma, meningitis, hemorrhage, a tumor, or arachnoiditis. Here, the syrinx or cyst develops in a segment of the spinal cord damaged by one of these conditions. The syrinx then starts to expand. This is sometimes referred to as noncommunicating syringomyelia. Symptoms may appear months or even years after the initial injury, starting with pain, weakness, and sensory impairment originating at the site of trauma.

The primary symptom of post-traumatic syringomyelia (often referred to using the abbreviation of PTS) is pain, which may spread upward from the site of injury. Symptoms, such as pain, numbness, weakness, and disruption in temperature sensation, may be limited to one side of the body. Syringomyelia can also adversely affect sweating, sexual function, and, later, bladder and bowel control. A typical cause of PTS would be a car accident or similar trauma involving a whip-lash injury.

What can make PTS difficult to diagnose is the fact that symptoms can often first appear long after the actual cause of the syrinx occurred, e.g. a car accident occurring and then the patient first experiencing PTS symptoms such as pain, loss of sensation, reduced ability on the skin to feel varying degrees of hot and cold, a number of months after car accident.

Some cases of syringomyelia are familial, although this is rare. In addition, one form of the disorder involves a part of the brain called the brainstem. The brainstem controls many of our vital functions, such as respiration and heartbeat. When syrinxes affect the brainstem, the condition is called syringobulbia



the above is a cut and paste I found which is what I think you have..I went through 3 years of drs thinking I was faking tons of pain meds, tests etc..they finally figured out my discs in neck was about gone I coulda wound up paralised..you I think have trauma induced nerve and bone damage you should benifit from seeing and consulting a Neuro-surgeon..not a gp not a nurologist got to the top dog a neurosurgeon will figure this out for you.

[Cherie762]

oh this cut and paste didnt explain to good what your issue is,,it means your spinal fluid is not flowing correctly you have a portion of spine thats too narrow and the fluid is flowing too slow and that is causing problems,,I really think it can only be cured by surgery.