I had spinal fusion on my L5 5 weeks ago, and i am now hurting now more then i ever did before surgery. My Doc said he had the surgery and was back to work in 2 weeks. At 2weeks for me i was hurting so bad i thought i had messed up my fusion. So i went to see my my doc and had an xray and was told it was fine. He gave me a RX and said it was my last one. So i have had nothing for pain since 3 weeks after surgery. Right after surgery in a drugged state I told him my leg hurts worse (I don't remember saying it) and his answer was " Then we shouldn't have done surgery"
I had no problem with my right leg priop to surgery, but now at 5 weeks i have to drag my leg, and it hurts unbelievably, i can't even lay on my right side. Sometimes it feels like ants are crawling under my skin. I can't sleep, 3 times now my leg hurt me so bad i got physically sick.
Also my Doc's nurse says pain is just a state of mind..........My pain is very REAL!!
Is this normal?
How long should i be on pain meds?
Hope your recovery goes smoothly =). I have had a great experience with my spinal fusion. I am 29f w/ a fusion on a grade 2 L5-S1 slippage w/ fracture. My surgery was on Nov 3rd and it was the best decision I ever made. I had an orthopedic surgeon w/ many years experience only on spinal surgeries. Before my surgery I was basically bedbound w/ a lot of pain, using a walker to get up and use the bathroom. I was in a lot of pain before surgery. Now, my progress is unbelievable. I am 6wks post-op and I can walk 2 miles a day. I can stand up and move w/o pain. Some days I am sore more than others but every day is better. I know a lot of ppl have had unfortunate experiences, but from my perspective it is absolutely worth a shot. I have my life back. Best of luck to everyone.
Read my above post. My situation may not have been as hard as yours, but it is a little similar in that we are close in age both hoping to have control over a household and have kids. I am 29f and have a 6mnth old child. I am 6 wks post op from an L5-S1 fusion and I can already hold my child again and in 1yr my Dr. gave me the ok to get pregnant again. Please give a fusion some serious consideration. I was afraid too, before the surgery b/c of the horror stories I read all over boards like this. I had a great experience. My surgeon seemed surprised when I told him that I read so many stories. I have my life back and I'm getting better every day. Best of luck to you, hope you are able to get the help you need!
I had surgery similar to yours - fusion L4/5 and L5/S1 disc trimmed and put back in place. That was when I was 29 years ols - I am 45 now. I have to say the operation was a great success, but after 5 days in hospital I was 5 months in physio learning to walk again. I combined it will a major weight loss (lost 5 stone), then cycling daily. I still have ocassions maybe once a year where it is sore and on verge of spasm, but overall it really can work int the long term. Just need to bare with it.
I had L3 to S1 fusion at the end of August 2011. I am so happy that the pain before surgery is gone, but unhappy that the muscle pain is so intense. 2 screws are taking their time fusing so I am not able to start physical therapy yet (4 months now). Cold days are painful, warm days are comfortable, but I feel I pull a new muscle when I try to stand up, sit down, lay down and walk. My doc is great with communications and told me it could be up to a year before I am fully fused. I hope it comes quick.
I had some Darvocet I got before the ban and it works great on controlling the pain. Tylonol 650 helps also but not as quick. Good luck all.
I know this is a rollercoaster ride for everyone! I hurt my back at work in 96... They wanted to fuse me.... I was 22 with a brand new babygirl... She was 10 pounds. The dr said I could no longer picker up after surg.. So I denied,,,2008 I was down ... Could barely crawl to the restroom. My dr was quick to offer fusion.. I had spondy,aherniated disk and my bones were bone on bone grinding like two cement blocks in an earthquake.. So I got fused...thought I'd be back at the gymnasticnasium and doing things I love in a couple monthes but guess what ... 2012. Still stuck in bed ... Can barely walk with my walker, car rides vibrate the hardware and I wanna die... My dr put me on great meds....100mcg fentanyl patches...soma..neurontin for the nerve pain. And 800 mc fentora for socalled breakthry.... And with all these meds I'm still in a pain I never knew was possible after having kids....and all my tests come back ok too. Drs tell me that I'll nevr be out of pain this it it I have to accept it and work with it. Now I'm waiting approval for my spinal stim. That's my last hope for any relief. If that doesn't work I just dnt know what's next. I have plenty if meds to put myself to SLEEP forever. Then there will be no pain
I suffer with multiple disc herniations due to Ankylosis Spondylosis. I do get accupuncture and it gives me relief. If I am in alot of pain, ie unable to walk well because of the pain it takes 3 accupuncture sessions and Chiropractic to get me back standing straight. After reading all the negative's of surgery, I will continue my regimine of Accupuncture and Chiropractic.
I had two level fusion on nov 2011 L5-S1. It has not been the most pleasant. After a year of trying different therapies and experiencing bladder issues both the Dr and I decided it was time. Now almost 8 weeks after I'm experiencing extreme pain in my legs and feet to the point I that is painful to walk. On my left leg I feel hip pain and pulling and now my leg is falling asleep and I feel needles in my foot. Not happy with all this pain. I'm on Gabapentin for the nerves but it does not seem to be working. At night I have to sleep with ice on my back and feet because I feel like I'm burning. Had to call my Dr today which said I need to see him tomorrow to run some test and see what is going on. I suggest if anyone is considering back surgery please ask questions. Questionss especially related to what happens after the surgery. I never had this much pain in my legs and feet. They said it's nerve related however I feel that I should start to feel better not worse.
Why don't you go to your primary doctor. Tell him you want a MRI or cat scan.this will let you know what is going on. I had a two level fusion one year ago. The levels are l4-l5-s1 the fusion did not take. I am now looking at a revision surgery. I am in pain all the time. This is a horrible way to live. I wish you the best of luck.
I'm sorry your dad is in so much pain. First off you need to get him to a great dr. ASAP. Take him to a teaching hospital or university hospital. Second I would find a good lawyer and bring this dr. To court. He messed up this surgery and that's a fact. I wish you good luck and hope your dad feels better real soon.
2 back surgeries in 2006 and 2007. (Laminectomy, 4 level fusion). Continued pain. Fast forward. 2010 -insertion of morphine pain pump. Over a year later sill in pain. Finally last week went to surgery center for testing. Turns out the catheter from the pain pump had fallen out of my spinal cord. Surgery for reinsertion scheduled for this Friday. Wish me luck. Has anyone out there ever had this happen to them? My pain doctor says it is not uncommon.
I am 47 and had a previous L4-L5 fusion and had L5-S1 fused 3 weeks ago. My bladder problems immediately went away that I had had for years. The Surgeon told me the L5-S1 fusion would not help my back pain or Bladder problems, but it did. He said some peoples nerves are simply routed differently.
do not get surgery -Your life will be Hell--take up acupuncture . massage----Get Close to God --He can Help and learn to get in the Zone----speak to the inner you-- BUT don't have surgery-- you will end up in hosp for the rest of your life.. For god sake don't do it ..
Due to spondylolisthesis which resulted in lumbar scoliosis, and non-operative treatments that could not correct the problem or relieve the pain, I had surgery the end of last August, an XLIF on Monday and a PLIF on Wednesday, fusing T9 down to the sacrum and anchoring the sacrum to the pelvis. Yes, it was very painful but recovery has been slowly progressing to the point where I could get back to work after 4 months off, surgical pain is diminishing (pain that got me into surgery immediately disappeared, I realized that even though I was heavily drugged for a few days), and I have gradually weaned down pain meds to maybe one Tylenol #3 a day at most.
I do still take muscle relaxers since physical therapy does stress the area while helping at the same time.
Did I just have a great surgeon? I don't understand and would be very upset if I was in the pain many of you are in post-surgery. I feel awful for you, I know how painful this can be, but at the same time, why did I recover as well as I did (even though to me it feels like forever) and others are having so many problems?
My husband had back surgery in 2006. This year 2012 he had another MRI which showed he needs another surgery either a fusion or disc replacement he is not in much pain and is wondering weather to have the surgery. Please give some input.
my name is manny.i am a 40 year male.let me start off by saying im very sorry for the pain that your father and everyone else around him,including yourself,has had to indure from all of this.three and a half years ago i was injured in a atomobile accident,i have had five surgery,s since.including to fusions from the front of my throat,two other on the back of my neck .in between the two fusions.also one on lower back,i have permanent nerve damage in right arm and still so many other negative symtoms.headaches,trouble swallowing,eating,sleeping,spasims,numbness,wierd vibrations threw out my limbs and pain constant.i feel like im going crazy myself sometimes.ive lost alot from all this in my life.time with my two kids that are fifteen n ten in age .they both are very active in sports.financially real bad as you can imagin.if it wasnt for my wife working and taking care of me sometimes,and being such a good mother i would have lost it by now.really wish that i could snap my fingers and help your father and evryone else thats going through the same suffering like us.im only forty years old and i feel your fathers age.sincerly manny martinez
Ihad a lower fusion 2 years ago , And the pain is now far worse now than it was befor I had it done. YOU tell thies doctors and thay look at you like your bullshiting them or something. I cant sit hardly ever instant pain I cant even walk a half of a block becouse of the pain cant life a gallon of milk even, pluss the nerves in my legs drive me nuts and in my arms an hands go numb when I TRY TO SLEEP.. so you tell a doctor this more x- rays and all he says is everything looks good.... Ya ******** ...So now a days I cant do anything any more becouse of the pain.and im on 10 mg codine pluss 60 mg 3 times a day.
I agree with you. I would never recommend a spinal fusion to anyone. I had my surgery in Sept 2010, and the pain is so much worse now than before surgery. A few months ago I had a nerve conduction study done, but they claim that everything was normal. I have gone from taking lortab, ultram, fentanyl to morphine, lortab, ultram and lyrica. My surgeon decided that even though my insurance decided a week before surgery that they would no longer pay for, that I should have the surgery without consulting me on it first. So a few weeks after the surgery I received a bill for over $100,000. Now I am expected to pay for the whole thing, if I had that kind of money I would have done the surgery before when our previous insurance company denied the surgery. Never got any PT cause the surgeon refused to see me after my first post op visit cause I could not pay off his portion of the bill. Now I am stuck with more back pain, extreme leg pain and numbness in both legs instead of just one. Not to mention being unable to do the things I enjoy. If I could go back in time I would have made the choice to not have surgery. They did an ALIF L5-S1 on me after doing a discogram and all the injections that failed.
wow. I had my surgery end of feb. 2012. thought I was gonna be all better in 3-4 weeks. I had 3 discs removed and metal plates screwed in their place. Found out 3 weeks later I had pneumonia. The specialist would not increase my pain pills even though my primary care physician requested it. Since then I still have much pain in the neck and my shoulders and my whole right arm. Also I have had a severe sinus infection since. My Ear Nose and Throat specialist had me go for a CT to see if I need surgery on my sinuses. Meanwhile, I have a checkup with the spinal surgeon today. I hate being in pain constantly and doctors treating me like I am a druggy and not listening to me. It is to the point they have me on Norco 5-325. They are the weakest crap and I am only supposed to take one every 6 hours. Guess what? I am taking 1 every 3 hours and sometimes 2, along with extra strength tylonol, motrin 600s, and whatever else I can get my hands on. my back, my neck my shoulders, my whole right arm are in pain constantly and now because of the sinus infection I get migraines at least 4 times a day. I feel like the doctors don't even care. I feel even worse now knowing so many others are suffering. Yet, at the same time it proves to me that I am not crazy. If so many others are still suffering obviously they are not getting it right. My grampa always said doctors are just "practicing" medicine. He was a wise man. Please pray for me, as I will be praying for all of you.
Just read everyones post and hate to be the bearer of bad news. I had a back injury due to work in 2004 afrer two years of phyical therapy work comp decided that I needed to have back surgery so in January of 2006 I had a fusion of L4-L5 am in more pain now than before. I have constant pain in my back, pain in my legs that goes into my bones, muscle spasms so bad that my legs jump,right arm tremors, many more numerous other pains in places that I never had pain. I am now having seizures because of it. I have seen 3 or 4 neurologists not one of them can help the last one told me it was due to stress, had one tell that it was all in my head and that I needed to see a head dr. I told her she needed to get laid. My primary dr is prescribing pain meds for me he told me that this isn't like me and knows that its not in my head. I am taking hydrocodine 10- 500 which is about the highest you can take for that my husband and pretty much eeryone around think I'm a druggie. I can't do anything but lay around because the pain is so bad I can't sleep at night cuz of the arm tremors and I have not worked in 4 years and I had only a 5% chance that the surgery wouldn't work. I have had every test that you could have there are no more test to be done. They don't now what to do with me!!!! I am to the point there are some days that I can't take anymore and wish I was dead but I think about my kids and my new granddaughter on the way. I can't tell you how many times I have fallen down steps and haven't been able to climb up the steps to go to bed. So I can tell you in my case my surgery didn't make things better it made things worse. Continues to do so!
I have had L4, L5 & S1 fusion. I am still in alot of pain 10 yrs. later. If you are having pain before and after, I was put on methadone 10 mg. It works on the pain, but is there something else wrong? I will find out in June 2012.
I just had a consultation with a minimally invasive spinal surgery practice today and really like what I heard. I'll post about it and tell you guys what I learned because I really think it is a great alternative to a fusion!
I think you definitely need another set of diagnostics; at least a lumbar MRI. I had L4-5, L5-S1 fusions, 1987 & 88, plus a 3rd Sx to remove scar tissues off the scatic nerve root trunk. Left me in unretractable pain. I was 26 then, and let me tell you , after 25 years since then of trying evrything alternative, I finally had to take pain meds which I would never do, but pain was/is too bad. Methadone, oxycodone, ambien, xanax, and swimming laps keep me alive and functional to some degree. Had one child when married in 1994, and it's been very difficult since I cannot sit or stand more than 5-10 min without severe sciatiac and lumbar pain. Am physician assistant but had to stop working due to the pain. It helps me to know I am not alone. I have a good pain center DR, thank heavens. Still, I hate to think of my life on meds that are frowned upon. Sure wish that would change. Makes me feel guilty that I take the stuff. We should all be getting a pat on the back just for getting up to face another day every day. My advise, find the best pain specialist you can find, and they will take care of you. If you live in a state where med weed is legal, that is an option as well. Stretching and non-heavy impact exercise is important too. The site on my hip where the bone was taken for the fusions hurts quite a lot in rainy weather and the wrong kind of waist band on my jeans. I have to say that I have been a failed back surgery patient for many years now, and have lost out on all the things I did prior to back injury (paramedic lifting a patient on a stretcher). It's just plain hard to get through each day-really tough to get out of bed with anywhere near a good state of mind. Sleep meds don't work after awhile. I tell my story in case it gives any insight. This is the condensed version! Ha! Happy to give more info on specific stuff.
I had my posterior lumbar L5-S1 March 13,2012..I had been hurting 14 years..before a doctor would do an MRI to see what was wrong..Doctor said I was born with spinal cord not connected to tailbone..I am 40 years old..I am miserable,the numbness,tingling,stinging, and burning are un bearable..I asked for lortab 5 cause I didn't want to be "hooked on meds" well guess what now I cry daily..can't feel my feet and can't feel most of left leg..except when pins needles and burning are happening...I feel useless to my two children 14 and 10..my house is a wreck and I stay depressed or mad???what do I do??
If you can get further south to Maryland. Check out Maryland Brain and Spine. Annapolis Maryland. Dr Burke and Dr Sullivan. They are conservative but if you can get them to be candid they sould. give you the srtaight 411. They are also in the top of their feild in the U.S.
Or on the west coast Dr. Micheal F Dillingham, Redwood city Ca. Or Dr Richard Berry Davis California.
I had a spinal fusion back in August 18th 2011, and What I have learned from then to now is to walk and exercise, do you abdomanl blow outs (see pt) taper off your drugs for sure, because the drugs sure ruined my life FOREVER>> and then some. As of now I still have pain, still doing the drugs but tapering off as much as I can. I am having so many problems with tapering off and the pain is very bad. Sometimes I wake up with a burning sincination in the left side of my head traveling down through my back, my shoulder, my leg, and testicles. This burning is painful and the pain increases/decreases with each heart beat. That is the best way I can describe it. But you are only 6 weeks after and you could benefit stronly by exercising everyday and tapering of the meds. You could find yourself good in a few months if your surgery was a success.
Hello and thanks for posting your story and what you have been through. I wanted to ask you, how are you getting to sleep at night. I have so much troube getting to sleep, I do not know what to do. I have so much going on as of now and recently placed on a drug called catapress .1mg from my new pain doctor. This has helped with not taking to many pain pills, but the pain does remain and really bad bad pain all the way from my hips radiating up and down my legs and back. Please write back and let me how are you getting to sleep. I am ready to try something neweally ba. Unfortunately, I have had a bad experience with my pain doctor, I was popped on a drug screen ETG Testing for alcohol. No, I do not drink, I was using Afrin for a cold I had, I was using to much and got a positive on the screen and was discharged. Now, I have finally found a doctor that will agree to help me, but only if I continue through PT. This will be very expensive. Reading your story, I am glad to see that you have a great doctor, but the ones in Louisiana seem like the just do not understand real pain. I am 43 and suffering every day from my surgery. Please write back.
This has helped me understand what might be going on with my back I had L4 &L5 fused about 4&1/2yrs ago.I too was told to get moving the pain was so bad I hurt for weeks!!!! even pilates hurt!.....I finally started Zumba about 1 month ago it puts me down too , but reading whats posted here makes me know that it will get better:)
I say Amen to that! I have tried everything else for nearly 5 yrs ( in 2007 I had fusion of L4 & L5) My husband has had pain in his shoulder for 20 yrs due to an accident,refuses pain killers, so this was his last option He is nearly pain free now after 8 X being treated with accupuncter.I am going this tues. to get started as well.......
I also had a L4-L-5 anterior fusion with a cage 41/2 years ago and my pain just got worse. They said I had pseudoathrothis(it did not fuse). So finally I agreed to a revision. 3 weeks ago they did a posterior fusion with rods. I feel really good some days and I think I overdue it the I am in pain for days but only at incision sites, It feels like something is stabbing me from the inside. Sometinmes my right leg starts jumping around and I can't control it. I don't know what is going on. I sure hope our 2nd surgeries fix us.
Here is just a suggestion.. please find yourself a good physical therapist, tapper off the meds very slow, ask for the medicine catapress .1 mg 3xday. Catapress will help you tapper off the meds. I have had bad pain and taking way to much pain meds for years. but now I feel better not being on any pain meds because my natural endorphins has taken over. The process is about +6 weeks to do a tapper of 10 percent down every 2 days.
Hi, i am 53 years old, i haven't had had surgery yet, but i am due to meet my neurosurgeon tomorrow to see what he suggests. I have been told before by him that i should have a double spinal fusion (L5-S1). I really need advice/opinions please? I have a bulging disc, which is pressing on my spinal nerve and causing severe stabbing/burning leg pain in my right leg, this cleared up by itself for a year but returned about 4 weeks ago, my back is in a bad state, i have a old fracture @ L1 - one disc has fused by itself, and my back pain is extremely bad. But i am a spinning instructor (spinning and cycling are the only things that keep my going, i can only move after exercise and it sometimes really helps my pain), my surgeon will not answer questions, he simply says if you have the surgery we can talk about it then but how can i decide to have surgery if he won't answer my questions? If i have the sugery will i be able to sit on a bike? Is it going to help my leg and back pain? What would you suggest? I really don't know what to do?!!! I am soo terrified of making the leg and back pain worse! Has any1 had the leg pain disappear on its own?
I am very truly sorry that u r going thru that pain. If I could, I would take that pain on 4u. I am only 46 yrs. old. proved myself n this mans world, injured my back n 1998. surgery n 1999. fussion, L4, L5, S1, I have a cracked sacrum. I fell out of my big trk. backwards and cracked my spine. tech. I should b parylized from the waist down. but by the grace of God, I am walking, 4 now. i have been restricted from driving, working, I can only work 2 hrs. a day. that includes bathing, cooking, doing dishes, cleaning house, ect. .... well, even my elders remind me that im 2 young 2b on ssi/disability.. it makes me cry. but, if i can take somebody eles pain away thru prayer, and keep mine, then so b it. God bless u and keep u under his almighty wings of love.
had fustion of l4 and l5 and six weeks after surgery worse than ever, went to doc. today and he made it sound like I pushed for surgery! Had the discecty first, then fustion fell at a store and hurt back just this last march! tore the spine lining and hernated three disks and cracked one he said no other way then blamed fall on weight! Well you were right dont get the fustion it was the worse mistake I ever made,lining tore again and they put me in hospital for two and a half weeks and my family doc. says when they went in they made the spine lining weak, so now it can happen again! I cant feel when I go pee and the pain is worse now! I have to sell my new lincon because its to low to ground cant bend back right and hard to excuse me wipe my tush!!!!! good call and hope this helps people to not go with surgery on back and no fustion!
hey you are not alone,I had the fustion and it made me worse ,but it might work for you,I would weigh the pros and cons and say can I go on like this and can I understade that it could be more painful with surgery. I know these are big questions for anyone and your husband sounds like he has your back so to speak fill him in and know this is a big deal Ill pray and I know from expear. that doent seem like much but keep looking up change will happen and get a second opion
to all of the sufferes,my heart goes out to you.I fell from a roof back in 2005 herniating c4 c5 c6 and c7.The pain in my neck was awful.The er dr refered me to my orthopedic surgen who initialy put me on perc 10-325 3 times a day along with 350mg soma.That was all the pain meds he could give me he said.Anyway after a year of waiting for approval from workers comp for the fusioin surgery to be approved he fused 3 levels with no relief.I went for a follow up and told him i was going to kill myself becaus i couldn't live with the pain.He sent me to a phycyatrist who finally prescibed oxycontin 40mg 2x a day along with 2 10-325 pers and 10mg vaium 2x a day.I finally have a little relief.I wish theese doctors would listen better to all of us in real pain.
i had the same thing done in 2001 and pain lasted at least 1 yr, he botched the surgery, i cannot stand straight, i recently fell on my back and am having a very very hard time walking without aid, dont know what to do, Dr did a cat scan and said things look good, but why do I have groin pain to where i need my crutches again? your pain will go away dont be afraid, you should also have every kind of pain meds there are out there my DR did give me everything, untill i was well out of pain it will never go away completley I wanted the surgery to be out of pain because i was on my feet all day as a medical assistant and i thought it would help but it made me loose my job, and am now on medicare, it really makes me angry. good luck and do what they say , go to therapy if need be.
all i can say is i had L-4 L-5 S-1 done and i am hunched over because they bothced the surgery Check out your Dr carefully, I thought mine was good his whole family is in medicine, but he has been sued many many times for messing peoplel up, then letting you fend for your self. so please make sure you really check him/her out.
I had spinal fusions in lower back in 2000 on the lower lumbar region of my spine. A bone growth stimulator was used. One year after the surgery the Dr. said the surgery was a failure. He looked at an MRI he said the bone didn't grow back as it should have. I was still in pain, thinking the pain would go away. It never did. The pain has gotten worse. I have to take pain meds all of the time to cope with the pain. There is no hope in sight for any kind of relief other than take pain meds. I've talked to many Drs. They have lead me to belive the Dr. put in too many fusions. My back is very stiff and as I have said I am in pain. I take pain meds I need them just to get through the day. If I didn't take them I would be bed ridden.
I seem to be having trouble finding doctors to see, I have been at this so long. I hear now pain management contracts are being used to eliminate you from seeing doctors. If you have been asked to leave a clinic. This could be a real disater a doctor can ask you to leave if he feels like it. Doctors are not all nice guys! I sure am learning this.
I am scheduled for a fusion on 12/712. It is good to read about a success instead of all the failures I am reading about. I have been in severe pain and have had no life due to the pain. I am nervous about the surgery, but anxious to get it over with and move on with my life. Thank you for your post!
Aussie I can so relate to your situation. I pray your doing better and able to play with your Children. This kind of pain is very debilitating. I have had Two major Surgeries at L4/L5/S1. This was the biggest mistake I have ever made in my Life. And sure there isn't any promise that it could have made me better but I would have never thought I wouldn't be able to go grocery shopping, or shopping with my Daughter. The pain in my Bottom both cheeks and down both of my legs is like sticking my finger to a 220 volt live wire. I have had any and all kinds of injections I suppose to many. They help this last time for two days which they do put me to sleep. But when your desperate you will try anything and I mean anything. Nerve Pain will drive you INSANE. Yes and agree Doctors should be able to experience it. I wouldn't wish this kind of pain on anyone. But when a Doctor tell's you it's in your head or there isn't anyway you could be in that much pain yea they need a dose of it. Then they may take time to listen to their patient's. I was told by another Doctor about a procedure called RFA and I'm not real sure what all is involved but she told me they can cartarize some Nerve endings. You should research it, Me myself would just rather feel nothing from my waist down this is sad but that is how bad the pain is. But I'm guessing it is a new procedure because I have had six Neuro Doctors, and sadly about eight pain management/Anesthesiology Doctors and you would think a Doctor who specializes in pain would have mentioned it to me. Being these Doctors should have some kind of idea of how to manage pain or atleast make it bareable for patient's but they do not. So I say yea they need to experience a good dose of NERVE PAIN. I hope you doing better.
I had L5 S1 surgery 8 weeks ago. During the times that I still have pain, which is mostly in the morning, the pain feels like menstrual cramps. I have other pain, but this is the one that perplexes me. Has anyone else had this or know what it's from? Thanks
I had TLIF 5 weeks ago they said also that my nerves and muscle were tangled so bad that they did not see how I was able to walk i had been like this since May and I had surgery on Oct 23,2012 I had to do Physcial therapy before the surgery,I am using a walker at this time can not stand with out holding on to something can not ride 4 miles in the car to the Doctor with out server pain and can not sit in a chair more than 10 minutes with out sever pain today my back in the hip area so sore can not touch and inside and outside of the leg area my hips feel like they are going to pop out they hurt so bad I have taken Norco 5-325 and the spasm med and Ice and it has not stopped the pain Please tell me what else I can do I can not even lay in the bed it hurts so bad !
I am 54 years old and have had 3 back surgeries. The first one was in 1998 and it was for a herniated disc. That surgery went very well. Unfortuantely for me I had my own business for 15 years and it entailed a lot of heavy lifting. Since I have been out of work now for about 6 yrs. I have had 2 stenosis surgeries in 2007 and 2010. Still pain. I have been on a large amount of narcotics for about 5 years. I take oxycontin, morphine, gabapentin and others to try to stop the pain. My problem now is a doctor said the ony surgery to help me would be to have a fusion from L1 all the way down to S1. I have now stenosis at L1/L2-L2/L3-L3/L4L4/L5 andL5/S1, narrowing of the spaces between L2/L3 and L3/L4 and proturding discs at multiple levels. I used to weigh 260 lbs. and now at 205 lbs. but still in pain. My scitica is bothering me and has since Dec. 2012. I do not think I will get a fusion with everything I have read and what entails with the recovery process. Surgery I was told will be 8-10 hours surgery walking the same day, first 5 days to 2 weeks will be the most excruciating pain I have ever had, 3 weeks in rehab and at least a year recovery. Not something I think I can endure. I do PT in a pool which helps somewhat, but without all the medicine I take I could not move off the couch which I hve had to sleep on since Dec. 2012. I cannot lie on my stomach ever. Please if anyone wants to reply please do. Laser Spine Institute I looked into and have found they are just a money making business. Read about the founder and how rich he is today after 5 or so years.
Doctor wants to do a 4 disc fusion with my lumbar discs and after reading all the negative results like yours I do not think it is something I am going to do. Lucky I take heavy narcotics and without them I would not move all day. I am sorry to hear you are still hurting in new places. Good luck ED
I had surgery 1997, Spinal fusion, graphs taken from the iliac crest, after the initial post op convalescing and following surgeons instructions within a year I was like new. I was 61 at that time. I have had a number of years almost pain free with good quality of life, unfortunately over the past few months I am experiencing acute pain in lower back and especially right leg, hopefully the neurosurgeon will be able to help. fingers crossed.
I had a laminectomy with fusion and fixation done three weeks ago. 4 rods and 8 screws put in. I had a bone graft done on my left hip to. My back is sore. Mainly my skin but the inside feels wonderful. But where he did my graft hurts like he**!!! I can feel exactly where he took the piece of bone and it feels like someone is taking a very sharp knife and going back and forth through my bone. Can't sleep can't cough. My leg drags after a while when it gets tired. My dr said it would take 6 months to heal. It's going to be a long 6 months I know that. I am not at all upset with my dr cause he is the best just wish he wouldn't of had to do the graft. Filing for disability cause I am a nurse aide and no way be able to stand on my hip for 8 hours at a time. Anyone have any suggestions on how to alleviate the pain in my hip?
i am 34 very good shape got smashed by a peice of wood that my boss had cut in a tree from 60 feet work comp ***** the dr put screws rods and a cage in me out of hospital 23 hours most pain i ever had dr not very help full after 6 months no meds for 4 months still in a lot of pain i would not do surgry again i hope every one heals better than me and also gets a dr that cares i know he did his best work but he just left me hanging cause i could not pay visit fee s so i have no treatment how can a dr just stop
I'm so glad I found this site and all of your comments. It's helping me to not feel like such a pathetic wimp. I've dealt with my pain for years prior to my recent 5 day post op L5-S1 spinal fusion but I'm in so much pain right now I can't stop crying or becoming physically ill from it. I know it's early but I swear I felt better two days after than I do now. I'm only prescribed two lortab 5/500's every 4 hrs in which I have to take three just to touch the pain. This is less medication I had prior to surgery. For gods sake it's lumbar spinal fusion. They insert a cage and screws and rods and hammer and dig and all that invasive hurtful kind of crap....why was I not warned of the pain after? It's down both my legs now where I only had to suffer with one leg pain issue. I'm just praying it gets better. I'm a strong person and have a high threshold for pain which is why im seeking advice of others online to see if this is normal :(
Definite insight. Thanks for your post. There are so many on here that I can relate to or "gain insight" from albeit positive or negative. Just wanted to throw that out there. Thanks And hope for the best for all on here suffering :(
I read religiously for a good 6 months before my l45 s1 fusion this past July(2013). It was very hard to get any current info. The night I came home I was in so much pain I thought I made the biggest mistake of my life. The one common theme I kept reading from people was to make sure to stay ahead of the pain with meds and start and keep walking. Never give scare tissue a chance to develop around the surgery site. For 4 years I dealt with Sciatica uncomfortableness, after the surgery I learned what Sciatica PAIN was. It was all left leg down to my big toe( I still have some spots that are numb) I started doing light hamstring stretches with my legs, especially my left. 21/2 months still have the same issues. Hamstrings still tight, still taking meds but less (2.5 perqucet) seems to calm the leg down in the morning so I can go to work. I hope this gives you and others some hope. I do not regret the surgery. I no longer have any back pain. A little screw pain in the afternoon when I'm on my feet all day. Hang in there everyone, stay positive, take your meds and walk as much as you can.
How do you know this about the laser spine institute ? Did you go there forvacsurgery because I did and they have helped thousands of people with back problems! I think they have figured out how to fix ur back doing minimal invasive surgery and your recovery is quicker. I have talked to a hundred patients and they swear on the SI and feel great and recovery is so much better and if my insurence hadn't stop my surgery I would be pain free now!!! As soon as I get insurence on my side I will be going back!!everyone is out for money but the worst are the insurence co who don't care that u are hurting so bad you cry on the airport at the moment insurence and SI are fighting back and forth but I imagine I will be the loser in this fight I'm sick of talking to my insurence the story they tell me keeps changing every time I talk to them now insurence wants peer on peer the doctor talking to insurence it happens tommorow but I'm scared I will lose and get to live with my ruptured disk and right leg goes numb the only winners will be my insurence co
I feel ur pain! I need to have a L5 S1 on my back but I went to laser spine instuite less evasive no hospital stay and 3 month recovery BUT god aka blue cross blue shield said the surgery on my back is uneccary and the day before surgery denied it but bcbs said if I have the old fashion back surgery and it fails they will then pay for my second surgery at the SI I can't believe my life depends on someone at my insurence deciding who gets help! My back hurts everyday 24 seven ice pack heating after reading all these horror stories of their surgery I'm so scared but I can't live in this much pain! I see no help in my future and don't know what else to do! Good luck on ur recovery and if I have to have surgery will make sure the day of that insurence is still going to pay! U should sue the doctor for not informing u that insurence wasn't going to pay!
Good luck!i just got back from Tampa went to the spine instuite and was ready to do a spinal fusion less evasive but then my insurence bcbs denied my surery! They said it wasn't necessary but if I have the horrible back surgery first and it fais then I can go to the spine instuite and they will pay for it!have u ever heard of such bull...... We are all at the mercy of stupidest insurence people and I pray every night the pain I'm going thru hits everyone that works for bcbs! I know tacky but my life is over until I get surgery and reading all these blogs about their surgery scares me to death! Good luck
I also had the same surgery as you in Dec 2011. Now I am in more pain down my legs then before surgery. My back pain never goes away and I am on so many pain meds. My bladder is leaking all the time. I had a MRI three months ago and it shows no change. Now I am going to see another doctor for a second opinion. I stand on my feet for thirty two hours a week so I don't think this helps.
Try and keep strong even though I understand the pain and total stupidity of all of us having these operations, hoping for pain relief and be able to live a normql life. I find relaxation, meditation and very strong painkillers help.
Doctors also want to do a spinal fusion on my back. Said that my spine has a stress fracture. He said that he would fuse a bone in there. I stay in a lot of pain. There's days that I can't walk. Have to roll out of bed to get up and when I get up and stay on my feet for a long period of time I can't hardly walk. My family dr has me on ultram50mg,soma350mg and ambien. Said she couldn't give me anything stronger. I have to take 3 ultram at a time to get a little relief. The surgeons have scheduled me to go see a phsylogist. Does anyone know why they would do this. It makes me feel like they think I am imagining the pain. These doctors need to be in our shoes. They would know what pain is about and I bet they would take something stronger than ultram. I am not going to let the surgeon that saw me last do surgery. He said that I would eventually be on a walker or walking cane or possibly a wheel chair. I am going for a second opinion at the semmes Murphy clinic in memphis. I also have read all the horror stories about bone fusion.. Don't think I am going to let them do surgery on me. I can walk right now but hurt all the time but I had rather hurt and still be able to walk than to have the surgery and not be able to walk. I have been told that there is a possibility that I won't be able to walk after the surgery. I think my only option is to go to a pain clinic bc the ultram and soma do not help. The only way I get relief is to take ambien and knock myself out. Good luck to you and everybody else that has posted their comments about back surgeries.
I am 62 years young, had 14 vertebrae fused with the TLSO brace April 2012 and I am much worse now than before the surgery. I fell in a store in a puddle of milk in 1995 and had a laminectomy which was a piece of cake. Then my back got worse and worse, saw a few surgeons who said I needed 8 discs fused and then they said no I needed 14 fused. I was not told until the fourth day in hospital that I had to go to rehab that was 10 miles away and a $600 ambulance ride there, in rehab I caught a virus and ended up losing 35 pounds vomiting. I was not told we had to rent a wheelchair, hospital bed, commode chair, shower chair until the day of release. I am much worse now than before the surgery. My right leg is partially paralyzed as is my left, two toes on right foot paralyzed, back pain is always there, I drop stuff now as my arms don't work right, part of my back is numb, part of it is painful just as before. When I saw the surgeon he said "oh now you have fibromyalgia", that is what is wrong and dismissed me after a five minute visit, I have not been back. He is a very renowned surgeon in Sacramento Californiawith lots of books and pamphlets he has written, has walls full of praise from patients, but I wonder where all the failed surgery letters are.
You poor thing! I had six fusions on 6/17/13 and have been in a lot of pain since. Blessedly, I have no pain when I lay flat in my back, so that's mostly where I have been since. Pain dr will give me no stronger than 25 mg Fentenyl and nothing for "breakthrough" because how will they treat me in 10 yrs if they give me strong pain meds now! They did up my Neurotin to 2400 mg a day, which helped. Feet are no longer numb and legs don't feel like they are being squeezed by boa constrictors. I am walking better, too. I have found relief in a zero gravity chair. I got it on line at SeventhAvenue.com for a couple of hundred $, and it has heat and vibration, which also help. I can stand or sit for 10 min tops then lay for 15, back up for 10, etc. takes forever to do the dishes. Have loose screws, but surgeon is reluctant to go back in until 8 mos post-surg, when swelling should be down. Rehab won't take me with the loose screw. I am a young 67. Worst of all is they don't warn you. I thought I would pop right back in a couple of mos.
Wow loose screws, hope that does not happen as I am done with surgery of any kind, I don't care what they find next, I am totally done. I can lay on my back or sides, not stomach. I have pain all the time but take nothing for it, I just put up with it. I have a lot more pain now than I did before. I have had three stomach surgeries for reflux and all three failed therefore pain pills for me are not an option as I would vomit them up anyway. You are right they don't warn you, I was told almost nothing and I could not find out these awful side effects until I got them. Hope you recover well.
I would not have liked it, but I could have taken it better if they would have said I could be incapacitated for 8 mos. I asked dr if and when I could golf again, and he told me 3 mos. ha! I could barely walk with a walker then. I put this surgery off for years. But, you didn't have to be an engineer to see that the big "c" in my lower back had to be repaired. Tests showed no discs between three vertebrae and one vertebrae actually laying sideways. It just had to be done. I am so sick of traveling laying across the back seat, and we haven't been out to eat in six months. They are telling me 6-8 and possibly 10 months because the swelling lasts that long. What a nightmare. Try sleeping on a heating pad. It helps a little. I know what you mean about surgeries, though. I had both knees replaced twice, and I though that the back surgery would finally make me mobile. It would have to be an emergency before I would ever have any surgeries again!
It has been 19 months, I will never golf again ever. I can barely walk 20 steps, I am as good as I ever will be. Never again can I pick anything off the floor I have grabber sticks all over the house, can't climb the first step of a ladder to get anything, I really miss my tub, I detest showers and that is all I can do. i have 19 steps upstairs so do it once a day, once down once up. I can't rake leaves sweep floor, I can just now do laundry, reaching in to get them and use stick to take them out of the dryer. I have one grandchild, an 8 year old girl and can't get down on the floor to play dolls etc with her as it is so so painful to get up again. Wish I never had it done, I tell everyone never get a back surgery
I have real sever head pain from a fusion of neck dic 5,6,7. I had surgery in 2005. I'm on pain Med's sleeping pill's. I Don't get any relief. Sometimes I feel like giving up the pain is so bad. I've had injection's and burning off of nerves. I again went for Cat scan, I have arthritis in my neck, but the PA I saw said my neck is intake . I should go back and get more injections. I said they didn't work. They used Novocain injection's. What pain would this help it wears's off right away. The medical record's said I had great result's. After the anesthesia wore off I was in pain. The Pa, said if I went thou more injection's, and they don't work that I then could have surgery. if my neck is intake why would they do surgery. If anyone has ran into this same thing I hope I hear from you.
I had a neck plate put in in 2002 and then the 14 vertebrae fused 2012, now for the past week I have had horrible headaches at the base of my spine, I hope this is not from either plate. guess I have to finally give in and go see my doctor. My fear is it is a tumor as my sister died of a brain tumor, guess I am just scared to find out. Hope you get some relief, my friend just had a stimulator implanted in her neck and gets botox shots for her head pain
Thank's for your information. Sorry you lost your sister.My husband sister also died of that. I would like to try Botox injections.I did go to a Doctor he was nice but, pretty elderly. He said his nurse would do the injection of Botox,but I think I would be more at ease if it was done by a doctor. Hope you can find out about your headaches.
I had a fused neck 5,6,7. I had allot of burning felt like I was on firer. I started taking Neuropathy Support and the burning has went away.to try this call 1-888-840-7142 I hope you get the relief you need. Not fun. I still have sever headaches everyday.
So very sorry to hear of your pain. I had a fuse neck 567. I Have sever headaches everyday. I feel that there is know hope. The doctor's are making allot from people in pain. The dollar is so important.they don't seem to care. Most have never been in pain, someday it will be their turn. I pray you feel better soon.
I had my L4 L5 S1 Fusion on July 9th 2013, I felt pretty good for the first 2 months, we went camping in our trailer the end of July and again in August did a little waking, but mostly relaxed in my lounge chair it was nice. September started PT on October 12 went in to my surgeons office for my 3 month check up and was told then I could do anything now, ride my quad, go hiking, pretty much anything ,so I kept pushing in it with walking about 1/4 mile, PT, rode my quad a couple of times and about two weeks later I was back in his office because I started hurting in my lower back, hips and had pain going down my legs. All he could tell me was "It's nothing to do with the surgery" and "he didn't know what was going on". Wow! I was speachless. My surgeon said I could go get injections, try chiropratic and/or PT and pretty much have a good day Wow! I told him I was going to PT that he was the one that wrote the perscription for me to go " Oh he says" I walked out of the office feeling like he just dropped the ball. In November the pain increased so much I have been taking pain meds 4 X a day. It's December still in pain hurts to stand or walk very long finally, I have an appointment to see a Dr. in the same practice for injections and/or possibly an MRI, CT scan. I beginning to think I was better off living on injections then having this surgery.
Wow sounds like my surgeon, after the 14 vertebrae fused and a partially paralyzed leg and arms not working right (I drop everything) and more pain than before the surgery I just got a shoulder slump and a "oh you have fibromyalgia now". It has nothing to do with the surgery he said. I said I see your walls are covered with letters from patients how well they are doing, where are the failed surgery letters? and he said oh I have no failed surgeries and I said well start counting then as I am number one.
I'm 13 years old and had spinal fusion surgery almost 3 weeks ago. I'm in more pain than I could ever imagine! When will it get better? I have no motivation. I used to play basketball and I obviously can't now. I still don't have any bit of attention in my family because my little brother gets it all. And my teachers are being mean about giving me my school work, because they think I'm perfectly fine to go back to school. Nobody thinks it hurts to have this surgery. Also I'm so overwhelmed with my school work that I can't think straight. My teaches give my stuff I can't even do. They give me at least five pages of things to do every day in each subject. And on top of all this, I can't sleep at night. I can't find a comfy spot. It just hurts a lot. Does this get any better?
I know it is hard to believe, but unless something went wrong during the surgery you will feel better. First push yourself to walk. Go a little bit further every day, even if you have to take baby steps. Before you know it you will be back to your daily routine. The next time you see your doctor ask him/her when you will be allowed to play basketball again. You might be surprised.
As far as school goes, ask your mom or dad to arrange a meeting with your guidance counselor and the ESE placement specialist for a 504 plan. This plan should spell out your disabilities and why you cannot do all the work you are being given. It is a legal document that your teachers have to honor. Cheer up. I have been in your place. I also have a doctorate in education leadership. You have legal rights that your parents need to know. Things will work out. Let me know what happens.
I just found your post, and want you to know I'm sorry for all that you have went through. I 'm also in allot of pain. Headaches 24/7.IIn 2005, I had fused neck 5,6,7,.I've tried about everything physical t, pain medication like Oxycodone,over the counter drug's. I've had shot's three time's, and burning off of the nerve's on left Side. The shot's and burning off of nerve's did not work. They don't want to give pain medication and want to try shot's again. I'm back and try the shot's.It dose cost me allot for the co-pay, and surgery room Doctor, and drug doctor. I was thinking about going to lazier surgery. Thank's for your comment's.If You can give me any feed back I would be grateful . Hope you get relief soon.
I know the burning, I felt like I was on firer.It's was pain like you get when you iron cloth's and burn your figure but this burning is from my neck to the back of leg's. Try telling someone about the burning and they just can't understand. I started taking neuropathy support formula b1,B12, wither-alpha Lipoiic and it has made the burning go away. At least try this, and I pray the burning goes away for you. The phone number for this is 1-888-840-7142
This Vitamin cost me 49.00 a month but if you get relief it my be good for you to try.
Girlfriends mother after cervical spine surgery, back and neck pain from the upper half of the increase, right arm numb fingers and heavier than before surgery, chest choke. Has 23 days after surgery. I do not know is not a normal situation, it is now very worried girlfriends.
Hope you are feeling better.Sometimes you feel like you are the only one in pain,but allot of people feel your pain. Wish your teacher would lighten up on the home work. You get better real soon. Have a Merry Christmas!
I am going to ask the Dr if I can see a neurologist, I know the surgeon has screwed me up royally. I am in more pain now 20 months after the surgery, I think he hit and cut some major muscles and nerves he never should have touched
I've had 2 neck fusions @ c5-6 and c6-7. Still have neck, shoulder, arm pain all the way down to my hand and fingers to include pain, weakness, numbness, tingling. It seems all of the actually got worse after the surgery and worse with time. But it's been so long who knows. I'm on Opana ER, Norco, Topomox, Colace (of course Right everyone? ha ha ha) Was on vicodin for a year before surgery so haven't had a regular bowel movement in 5 years. I have 6 year old twin boys whom are very active.
I have tried PT, spinal injections, and continue the medications. However, I have just learned of a Dr called a Physiatrist? Has anyone heard of or been to such a Dr? I'm done with Physical Therapists since I feel I'm way out of their realm of knowledge.
Any input or advice would be helpful as I would like to get some form of a normal life. I have conceded that I will never be whole again. I was involved in a rear end accident by somebody talking on their cell phone. He walked away while I went on to have neck surgery and will suffer for the rest of my days as well as will the rest of my family by not having the wife and mommy they deserve. But I don't complain (to them) ha ha ha and give it my all everyday.. when I can. Bless you all and may you find peace and less pain somehow. and perhaps look up a Physiatrist??
I wish the people would mention what state they are in and
at least the hospital they went to.
I have degenerative disk disease since birth. Am going on
70. Have had surgery on my neck. Fusion on c1, c2. Now
the other disks are dissolving as well so need more surgery
Had CT scan a week ago and now need a MRI to see if
more surgeries are possible. I am in MN.
Hi, I am in California in Rocklin, had the horrible surgery in Sacramento and the rehab in Roseville, It has been almost two years now and I still am no better, am worse than ever. I can barely drive and barely walk, wished I had never had this horrible surgery. It has affected everything I do in life. They rushed me through the preliminaries and never really explained this and that and all the things that could happen and that I could be worse than before the surgery. I tell everyone not let anyone touch your back and especially never do 14 vertebrae fusion. I am 63 this year and walk like I am 93
Hi,New nere......Has anybody else had loose screws on a lumbar fusion repaired?I was wondering what can be done..There's a bump where the screw is and even the weight of a bedsheet is unbearable sometimes.The elastic band on underwear is out of the question.I've had so many surgeries by now,this seems irrelevant,but it's kinda like the straw and camel deal.I'm just too chicken to give up.Would appreciate any help.
Hello..New here and from MA.. Had spinal stenosis so they did a laminectomy at L3 in 2005 in Boston..Should have stopped there but 2 different surgeons told me I'd need fusion in 4 to 5 years so I might as well do both together..Big mistake..I would never recommend fusion to anyone..They fused L-3 to S-1 and for 18 months all was great..( results of the laminectomy ) ..Then I started to get muscle pain in the area of the surgery in 2007 and it gets worse each year..I have tried everything you can think of..
Injections,chiropractors,massage,yoga,palates,acupuncture ,drugs of course, 4 different PT's , exercise, stretching , etc. . I can't walk or stand for more than 15 minutes or so without pain..Nothing works but a TENS..I just wear it when I go for walks or working on my feet..If not for the TENS I have to sit & stretch every 15 minutes or so.. Hopefully a TENS ( mine are low cost ones from Amazon in the $60.00 -$100 price range ) can help some of you.. I'm told the pain probably comes from cut muscles and scar tissue but no one is sure ..I'd be very interested if someone has experienced the same post fusion pain I have and dealt with it effectively .
I have tried the tens unit since my surgery two years ago and it does nothing. going to a pain clinic this Thursday, hopefully they can help me. I can only walk maybe 15 steps at the most before I have to sit down. I know every store with a electric cart that I can use. I hate that I ever did this as well,
Been two years for me, nothing will help me as the surgeon screwed me up so bad. Going to have a second caudel injection June 2nd and I am scheduled for an MRI to see what is the problem with my arms and leg.
I had the same surgery and have extreme pain in my groin on the left side and am urinating every 10 minutes and constantly fell like I have to urinate. I have been on 100MG Duragesic patch.After the surgery the pain was so bad I couldn't move my left leg without unbelievable pain.Dr. gave me Dilaudid and it keeps me pain free.Because of the patch now I can't have the dilaudid .Living with constant pain.I need to work to survive and I fear I'll never be able to return to work.Anybody else have this problem or know of a solution I'd greatly appreciate it.
Spinal fusions suck, I had mine 3 years ago and made the mistake of having hope. I thought I'd be back to work in 6 months. My 4 level fusion was a success, I do have less pain than before the surgery. Before the surgery I was stuck in bed unless I loaded up on pain killers. 1st 6 months couldn't tie my shoes, 2 and 3 years later, pain everyday, you know constant, return to work, yeah right, I can't sit upright for more than an hour, if I drive an hour or more my back gets aggravated and hurts really bad for a day. Fentanyl patch 100mg with opana for breakthrough pain. It's no way to live, no matter how much or little pain meds you take you build up your tolerance. Life is over is I know it. No more lifting at the gym, riding my motorcycle or snowmobile or home improvement projects. Welcome to life as a dreaded coach potatoe. Yeah I walked a mile a day, I walked so much I started having foot problems at 42, did pt therapy being an x gym rat. All I can say is at least I'm not in a wheelchair. Life *****, thank God I own my own company & don't have to work or I'd be on permanent disability. Watch Hulk Hogans bio, his back is that bad w/o a fusion, ah it *****, nobody ever told me our bodies wear out by 40 if you exercise too much. Get the fusion there are no other options if you're lazy do the therapy and you'll be happy, if you're active you need new hobbies, don't try suicide it could always be worse, get new hobbies.
i have horrific injuries after a fall from a roof 5 yrs ago and i am so glad i did not have insurance at the time because if i would have then they would have done a bunch of surgeries.
the one thing i would have benefited from is physical therapy. no insurance = no follow up care at all. i fell no less than 50 times in the first 6 weeks after coming home. that messed me up even worse.
i am in excruciating pain as it is, but at least i don't have screws coming loose, etc. the frustration you all must feel having surgery that did not work. cannot imagine.
now that i do have insurance i will be AVOIDING any fusion surgeries in the future
hi peoples im new to this forum but im a old hand with neck fusions iv had a c7 c6 in 2005 after a car crash and wos in a second crash in 2010 and thay had to do c6 c7 fusion the first wos 110% sucsess and i had a great 5yr run but the second is about 70% sucess. so now physio rehab the ussal road to recovery back at the gym have other issue's with the right side of the body but have **** happens so now im looking for any tips for the gym and drug free pain managment tips im sick of feeling like a zombie im back to the pain clinic next month but first hand tips are the best
if anyone has any pre-opp questions or needs help feel free to ask
I agree, I'm in the same situation. The Doctor who performed this procedure has been out of town. I am due to see he in several days. I guess it's my fault for not asking more questions. I would not recommend it.
Hello to Everybody,
I had L3 to S! fusion with screws and rods in the back, and spacers and those bone cages being put in through the front, about 2 months ago. The recovery seems to be going ok. My difficulties seem to be that I have rested flat on my back for a day or two, felt fairly pain free, then stupidly did lots of walking and standing, bending and even climbing a tree!!!
I went back and forth until I stopped and thought....duh... you need to just stay horizontal as much as you can and don't do any excessive walking or standing, and no bending or climbing trees!
My brother had the same surgeon, Dr. Dryer at CTSI, Austin, and now , after a year of recovery and a year of doing normal stuff...even lifting lawnmowers, etc, he's fine! I'm a little worried about the Pain Mgmnt Dr not approving more of my 10 mg in 60 more days, but , hopefully, the pain levels will be much less...if I can stop doing stupid stuff like bending and twisting and walking for hours!!!
The hardest thing for me is to live alone and doing all the shopping, cooking, cleaning, washing, since BCBS doesn't cover a caregiver. So I just buy frozen dinners. Lucky for me, I'm retiring post office in a month or two. My (soon!) new wife is a real strong, loving and disciplined woman...good cook, healthy and with good old fashioned morals.
I cringe at the bad luck and doctor and health horror stories here.
It would be interesting to hear about whether anyone has had success with medical marijuana. Strange that no one who lives in those states has mentioned it.
Good luck to all you guys. Remember, Hope dies last, so, as long as we are alive....there's still hope!!!
I had 3 disc removed from my c-spine. A cervical fusion from C-2 to C-6. This was done November 2011. I felt better still with some pain. Now my pain is becoming unbearable. My surgeon told me that the operation would be substituting one type of pain for another. I had to have the surgery because the disc were pushing against my spinal cord. I have gone the pass several years rarely taking pain medication. Now, that is going to change. The intense pain is now keeping my blood pressure high. I am now on 3 blood pressure medications. I am very pleased with my surgeon. I'm happy with the success of my operation. I wish there was a way to be pain free without the help of pain meds. I went a long time taking them maybe 3 months out of a year. Because of my blood pressure staying high due to the pain, I'm now seeking help from a pain management doctor. I hope he can manage my pain with minimum narcotic pain meds. Sometimes we do have to look at the big picture. In my case, my options were take the operation and deal with some pain or have the disc pinch off the spinal cord risking paralysis. I chose the pain and being able to walk.
I hope after all this time u r doing better! My advise would be to go to a Pain Management Doctor! Their job is to keep your pain under control and you are not looked upon as a "druggie"!
God bless you dear, and I am praying for you!
Mzzsilky, I can empathize to some extent. My pain is not quite as severe as yours but I have been dealing with similar issues for 20 years and grew up with a parent who was permanently disabled from many back issues, surgeries, procedures, etc. my mother has had moderate success with her s c stimulator. I hope you were approved and they got the leads in the right places for your pain relief!
I lost my job due to extreme pain not helped by my fusion, almost a year ago now. My life feels it is on hold. I am coping with the fact I will never have a baby myself- I know there are other options but I have dreamed of having lots of babies since I was a kid myself and dedicated my career to working with kids- and my marriage is crumbling. We are broke from the loss of my income, my huge student loan, the cost of COBRA, and all my co pays and neither of us made much to begin with. Honestly worst of all is the pain. It never goes away. I barely sleep because of it and when I can fall asleep it wakes me up soon after.
They keep trying different meds and antidepressants but I would be lying if I said I don't often contemplate just taking the rest of my pills and finally resting, forever.
Regarding your final statement -- I too have felt this way.
The problem is in today's pain management. Where as 20 years ago the goal was to reduce pain as much as possible, today the goal is to treat without appearing to over treat.
Unfortunatly, most who treat pain are being hackled with artificial limits on the amount and type of pain medication they can prescribe. This leaves chronic pain patients, especially those with long-lasting opioid tolerance, living with much higher pain levels.
Higher pain levels leads to increased disability, frustration, hopelessness, depression, and suicidal ideation.
I admonish you to hang in there, and get tougher about your pain management program. You are in charge, no matter what your doctor has to say. It's your pain -- take control, even if it means to taking action against your current doctor. Let them know how dissatisfied you are. Let them know that you're being under treated.
I can only guess that no surgeon EVER read these posts. Yes, they are busy, but I did not read anything other than lots of painful patient experiences.
Where is some hopeful advice/posts for some of these patients? There should be more tracking of the ages of patients & best case/worst case recovery times & did this fix/not fix the problem. There are no guarantees but what about being informed? This could make the patient can feel better about making their decision. Also, what is the worst case scenario they have encountered for those who may not recover as quickly as explained by their surgeon. How confusing and frustrating to not have all the information necessary for something as serious as having your neck or spine disc/discs removed and replaced with a new and different disc & put back together with parts that resemble items in a tool box. How weird?
My mom just had neck fusion surgery, post 4 weeks, 3 days. Still quite a bit of neck pain & was led to believe that pain would be minimal and for a short time. In her case, no neck brace...not even when sleeping? She is in her mid 60's. I would think some amount of mobilizing just after a surgery such as this is a good idea. It is depressing for her because the Dr. made it sound like it was no big deal, easy recovery. So anxiety & depression kick in because of the unknown & as usual not much consolation from the office team. As usual...too many patients, offices to big, communication lacks, patient care is 3rd party managed just like everything else has become & here we are. Just hope to never have to be involved in healthcare. Lives have been saved I realize but it healthcare is too unpredictable due to lack of communication, sensitivity and information for the patient.
I am not a physician but why do their ideas of recovering always vary so much? Why do they not agree on the best way to recover? Are they cutting costs for insurance or what? I have seen so many varying ways they prescribe recovery. That scares me as well. What will be the recommendation for recovery (therapy, neck brace, etc) & ask him/her what are ALL the different ways to recover? Why do you choose this method?
It is overwhelming to think of having surgery & just want to feel normal again. So, I offer some advice since we apparently are on our own, ask these questions above.I assume they will be annoyed by these questions but it is your body & health measures your overall happiness actually more than anything. Yes, even money.
I feel the Dr. does not care much afterwards. They do not even bother to see you in your post surgery appointment and make the nurse explain the x-ray & listen to your complaints. Almost seems intentional because they do not want to deal with all the complaints & pass the buck to the nurse or whatever their title is. Also, makes the patient uneasy not seeing the physician who did the work. Is he hiding from something or what? I am sure they are busy with surgeries & everything else but they should be in the room with the patient listening to any complaints because they are the hands who did the surgery.
I had a fusion between the t2-T4 in September of 2014 and really having a hard time wth this, having a lot of pain, balance, now having some stabbing pain.....been there physical therapy, pain management, etc...I wish I never had this surgery because I have lost so much of my life of doing things that I loved to do that I can't do anymore because of this pain, the doctor put me on Lyrica which helped a great deal but made me gain 15 pounds in a week so I had to go off that and switched to Gabapetin which I broke out in quarter size hives from so know we are trying Toapmax which helps a little bit but not enough to doing what I want to do, anyone else having any ideas? Please need advice
Yeah, your all ok, BUT! We really shud put a Stim in you, cuz you aren't hurting Girl! Its all in your head as well! Can you not get 2nd opinions? I live in the States & its what I would do. Then SUE of course, Just joking! My Doc told me to sue him!
Just want you to know you are not alone! we are all living our own hell! Did this "Butcher" order any physical therapy for you during post-op period or let me guess, he is a neurologist! Your legs hurt from neuropathy- you need Gabapentin....STAT! For this "doc" not to admit it means "IT" failed and it cannot accept that.
Think of these docs as the GEEKS you would of beat up on the play ground and now they are demi-gods! Treat them as such...you have they power cuz w/o a patient they have no practice! Also, find a website were you can GRADE DOCTORS...warn others NOT to go to him!!! Best of Luck, Your are in my Prayers Dawn.
My 1st surgery went very well until 15 days post op I got a spinal fluid leak and my Doc was on vacation, his P.A. told Mom "its normal"! To soak towel after towel? 3 Daze later I went to my surgeon, he took 1 look @ me & said get to hospital you need surgery to seal the leak & as I was leaving I heard him screaming at the PA "Get the F outta here I'll be lucky if she lives!" I worked hard to make it back to 80% normal-tho I suffer w/ extreme migraines now. So, Faith! She will get depressed & You frustrated...But Faith Bella, you are both in my prayers.
3 Weeks post op l4 l5 fusion and the hardest thing for me is learning to slow down'' i'm a miserable patient and i tend to do to much walking and general every day things without twisting, lifting and bending. but what i'm finding is i get really sore around the operation site that forces me to lay down for a few hours, the good news is my old pain symptoms seem to of cleared up but i read the horror stories of failed fusions and that makes me bring on the pain, so i just try and avoid the negative feedback. The worst fear me was painkiller addiction so apart from the hospital stay i don't use any pain killers ( apart from a beer or two) which makes me feel every twinge and jolt of pain. i will say every day has been improving and i recon it will take 6 to 12 months to have full confidence back..
3 Weeks post op l4 l5 fusion and the hardest thing for me is learning to slow down'' i'm a miserable patient and i tend to do to much walking and general every day things without twisting, lifting and bending. but what i'm finding is i get really sore around the operation site that forces me to lay down for a few hours, the good news is my old pain symptoms seem to of cleared up but i read the horror stories of failed fusions and that makes me bring on the pain, so i just try and avoid the negative feedback. The worst fear me was painkiller addiction so apart from the hospital stay i don't use any pain killers ( apart from a beer or two) which makes me feel every twinge and jolt of pain. i will say every day has been improving and i recon it will take 6 to 12 months to have full confidence back..
I hope everything is OK with you and you are still here. Your child needs you no matter what. I have been in pain for 10 years and I know what I am talking about. Three surgeries later my nerve pain is relieved but not the muscular skeletal. I will pray for you.
Sorry to hear all the horror stories - you all have my utmost sympathy. Nobody knows how awful spinal problems are unless they've had one.
I'm f27 from North Wales, UK, and have degenerative spondylolisthesis (my spine broke when I was a year old and pain has gotten worse each year). It took the first 16 years of complaining to my GP about the pain before they finally stopped fobbing me off with 'growing pains' and got me an X-Ray.
I had L5-S1 decompression and fusion with a hip bone graft last July. It's now been nearly 10 months and my pain is exactly the same. Surgeon says everything is healed nicely and he can't understand why I'm in pain. Also, he said I need to come of morphine (the only thing that helps) and take codeine and paracetamol! I'm so sick of being treated like a lying druggie. I am not addicted to morphine - it gives me no pleasure whatsoever. I get enough pain relief to not want to kill myself everyday but am still unable to be upright more than 30 minutes or walk more than 20 metres. When they told me to come off liquid morphine I did easily, even though I was able to walk for over an hour when I had it. I miss the walking but not the liquid morphine.
I'm massively happy with the surgery (done in Oswestry) and I stand up without hunching now. My other surgeon was great and went through all the details stating I will never be pain free but the surgery could help improve it a bit. I feel more confident in the security of my spine but the pain is simply still there. It feels more like the muscles along my spine are knotted and tense as rocks and nothing helps (except alcohol or swimming). It feels like gravity is a super force crushing down on my spine. Lying down is less painful but I have literally never known what it's like to be totally pain free.
I wasn't offered any physiotherapy afterwards which I thought was weird. I went to the pain clinic who told me they were unqualified for post-fusion back pain. Then I tried the hospital I had surgery in but their pain clinic is only open to the English and I'm just over the border in Wales.
I'm extremely lucky to live in a country with free health care and I think it's shocking and disgusting for people who live in a first world country like America to be told you're too poor to count. You guys need to fight for your own NHS so you're not In the hands of b*stard insurance companies.
Don't know what to do now. Does anyone else have muscular back pain like this? Did anything help?
I've tried a LOT of different things in the past for pain relief and sleep
I can offer suggestions for pain relief:
* Research 'Kratom'. It's a natural relaxing (or energising, depending on type/quantity) plant from south east Asia. I literally cried the first time I tried it. Nothing from the doctors works as well. Unfortunately, it's expensive and easy to get tolerant of and is under scrutiny of the law in my country right now (which is stupid. No casualties in thousands of years of Kratom use). I order from a British company online and they deliver it Royal Mail the next day. Red vein Kratom is better for pain relief- White is good for energy. Green is a mix of both.
* Try a TENS machine. I find this slightly helpful. Small electrical pulses through the pads stuck to your skin. Pretty cheap to get online. Helps keep muscles getting too tense. Battery operated and relatively hideable under clothes.
* Try medical marijuana if you are living somewhere it's legal. Helps distract you from the pain, relax you and give you a good sleep. Hoping legality spreads to the UK soon.
* Learn how to practice mindfulness. There is no end of free online videos, apps and audio guides to get started. It helps pain, stress, tension, depression, insomnia and anxiety. It's not just hippie mumbo jumbo! Many scientific studies prove its effectiveness and many GPs recommend it now. I've used and enjoyed 'mindfulness Liverpool' on YouTube, an app called 'Headspace' and an app called 'Breathe'.
* Get inventive! It's not long term but a few minutes relief can be a mood booster. I put on a back support belt and bought one of those plastic eggs with a toy in from one of those little vending machines for kids. I opened the ball/egg container and tucked each half the the egg (rounded side to skin) either side of my spine where the muscles ache most. Now I have two pressure points held in place by my back support belt and when I lean back in a chair the pressure of the egg pieces really help roll the tension from my muscles! (Or just pay for a massage!)
* Yoga. But only the poses you're comfortable with. I searched YouTube for post-fusion yoga exercises and tried some successfully. I only do yoga on my back as being upright hurts but it's amazing how many you find you can do just lying down. Look for some core strengthening exercises you can manage and ask your doctor if you're uncertain what's safe for you.
* Lying width-ways on the bed with my toes hooked over one side and my head and arms hanging over the other seems to give my back a good stretch and ease some pain. Look stupid doing it though. If it works, it works!
* Buy a bag of dried hops and lavender. I find this quite helpful. Get it on eBay or any online store selling dried flowers etc. Hops smell a bit unpleasant but the dust from them are well known to induce sleep as well as lavender. Put them in an organza bag or old pair of tights and slip it inside your pillow or somewhere near your face.
* Valerian root tea. Get it from H&B, any health food store or even Asda sells Dr Stuart's version. I find the tea very relaxing but tolerance happens quickly and there's nothing worse than needing a tea-wee just as you're finally nodding off. I've tried tablet form but it had no effect on me.
* There are lots of guided sleep meditations on YouTube. You may have to search a while to find one that suits you, I for example, tend to go for good visualising ones but without mentions of spiritual guides or chi/spiritual/Angel/crystal type stuff because that's just not my thing. Try searching 'body scan mindfulness' on YouTube. My favourite is Body Scan on the Breathe app. For some reason, concentrating on each part of my body individually helps me ease the pain a bit and fall asleep. Maybe it will work for you?
* Podcasts are great for taking your mind off some of the pain at night. In the day there are many things to distract you but at night when it's quiet it's easy to end up focusing on it. I've not slept without earphones in for two years! I recommend the "Thinking Sideways" podcast - unsolved mystery discussion to get your frontal lobe going and help distract you from the pain.
* A cushion between your knees if you sleep on your side. With certain spine problems this really helps ease the pain. I made a neck cushion for myself out of a foam pool noodle! Works a treat for neck pain.
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