Hi trubill8,
From reading your post and what I have learned of TCS over the past 2 yrs, there probably was not any misstakes made during your first surgery. I belong to a group on Yahoo for TCS/LMC (a form of Spina Bifida) and those that ended up having a de-tethering, usually end up having more due to scarring from the previous. Scar tissue is the bodies way for "healing". And if too much scar tissues forms, it therefore causes a re-tether. Some that have had this surgery, go YEARS before symptoms show up again, if ever. Others could end up re-tethered within months of the first surgery. Some have ended up completely paralyzed from the surgeries. So for you to be re-tethered isn't because there may have been a misstake made during the first surgery, but because your body produced more scarring that caused the cord to reattach itself.
If you would like the web address of the Yahoo group, send me a private message and I would be very happy to provide you with it. It is a group mostly comprised of Adults with Children going thru it, but there are also Adults themselves that have gone thru it and totally understand. They are caring and compassionate and from what I have seen, can be more informative and knowledgeable than most doctors you will encounter. Because TCS in Adults is "rare" (per 90% of doctors), very few know anything about it.
I feel your pain and your frustrations. But know you are not alone and there are people that are going thru the same thing as you are and are willing to help with their knowledge, recommendations, knowledge of educated doctors,etc.
God Speed and good luck in your search for answers.
Cindy
Dear turbill8,
I am sorry to hear how things turned out. Teathered cord syndromes, and the surgeries that go along with them, are complex and can carry post-op neurological problems. Most of these are done by neurosurgeons. I would suggest obtaining a second opinion at an accomplished center such as Barrows or Mayo clinic. Alternatively, you can consider getting an opinion at a major teaching university (neurosurgery spine department) in a city near your location.