.All of the behaviors and feelings you described are associated with unipolar and bipolar depression (BP). A lot of people don't realize that major depression (MDD) has a wide range of symptoms. I’m very sorry that you had to suffer for so long at such a young age. I’m glad you’re able to get the treatment you need and feel better now.
Lithium makes everyone feel better. It's a mineral salt present in ground water, and some communities have more in their water than others. The ones who have the most have the lowest rates of depression and suicide and highest rates of overall happiness. It's an old drug first used to treat depression (1886) and even now the best drug available for lowering the risk of suicide.
Many psych drugs, and non-psych drugs for that matter are used off-label, and rarely does a drug have the exact same effect on all people. You didn’t mention ever having tried other mood stabilizers. As far as your post goes though, I guess it really doesn’t matter. Making a diagnosis based on the efficacy of a medication is like diagnosing a brain tumor because Tylenol didn’t make your headache go away. There are lots of more likely reasons for that. You might actually have a brain tumor, but Tylenol can’t help make that diagnosis.
Your pdoc might not think you have BP regardless of just one missing symptom, because maybe he’s observing something that you’re unaware of. Maybe he’s using the missing symptom to keep his observations off the table for now. He might be questioning your authenticity. Pdocs are required to use their personal judgment to make a diagnosis. It’s not as simple as just matching a list of symptoms with the DSM. We wouldn’t need pdocs if it was.
That said, you could have BP and your pdoc may be refusing to diagnose it because he’s not convinced yet and he’s waiting for more information. Maybe he’s being cautious because BP is considered an overly-used diagnosis right now. Just like ADHD two decades ago, the public perceives that too many people are being diagnosed with BP simply because it’s become fashionable to have it.
The insurance companies are paying attention, too, and starting to question every BP diagnosis. Being questioned slows productivity and increases costs for pdocs ultimately affecting their income. That’s likely why they’re treating it like a terminal illness and don’t seem to want to make the diagnosis.
I don’t mean to be unsupportive, not at all. I know how frustrating and angering it can be trying to get a correct diagnosis. I’m trying to be objective, look at the facts of your situation and stay emotionally detached, so I can provide another perspective. The next pdoc may give you a BP diagnosis, especially if you let it be known that you want one. However, agreeing with you doesn’t make the new doc right. It’s a judgment call.
Why do you so desperately want to be diagnosed with BP? If you can get the treatment you need, does it really matter what your diagnosis is? If you’re feeling better and treatment is working, having no diagnosis wouldn’t even matter, would it? Except in very, very few life circumstances, the label/diagnosis could be anything, and it just wouldn’t make any difference.
If you’re interested in a correct diagnosis, don’t tell the next doc what you think. Just answer his questions and see what he or she says. That’ll be very interesting, and don’t you want to know? You can always share your thoughts later.
It’s funny, because I rarely admit that I have BP, and when I have to answer the question I often put MDD instead. I don’t want to have BP; I just want effective treatment for my particular cluster of symptoms. People make blanket assumptions based on labels, and BP is not an attractive label to have. Those who think it is are giving the label and the illness it represents even more negative attention by publicly using the illness as an excuse for unacceptable behavior. They’re burning a picture of insanity into the public’s mind. It’s hurtful and ridiculous!!
I regularly have to divulge what medications I take because of my occupation. Many people know, or assume they know what my meds are for and automatically question my sanity. If that’s not bad enough, hearing or thinking the words “Bipolar Disorder” just adds insult to injury in the U.S. right now. I’m a professional and would like to be thought of that way. It’s illegal to discriminate on the basis of disability, but in the real world laws don’t matter, you just don’t get the job because you might go postal like Charlie.
Getting this diagnosis can have a very negative effect on your life. The label can be much more devastating than the illness itself because of society’s sustained ignorance. Your pdoc knows this, and he might be trying to protect you from something you can’t even imagine right now.
What do you think now?
You sound just like me-- you just told my story. It's kind of spooky.
Ok this'll be long too. Psychiatrists...blech...can't live with 'em...can't live (well) without 'em.
While I probably had symptoms earlier, I started in my early 20s with major depression and was put on a series of ADs to find the right one. In those days it was mostly TCAs although Prozac was also round then.
Guess what...nortryptaline, amatryptaline, imipramine, and clomipramine...all put me into a mixed state. Desipramine made me hypomanic.
I had no idea what any of this was, and when I reported my symptoms to my shrinks they all said that it was just anxiety...guess that's why they make the big bucks.
Then one of them put me on Depakote...note Depakote is not an AD, and even though I responded well (except the side effects) to it, they still said I had depression...and they say it's the patients who are in denial.
Then it was Wellbutrin which helped with the depression and didn't precipitate any type of mania. Then going med free, I was ok for many years. My moods were still more extreme than most people's, but none were high or low enough to seek help again.
Then depression crept back in over a couple years. I thought is was chronic fatigue, because subconsciously I was probably "done" with psychiatry. Anyway, after my GP found no problems, and acupuncture did nothing, I started self-medicating with St. John's Wort, and guess what...mixed mania, hypomania, then my first full blown mania with delusional thinking, then crashing back into a mixed state.
I went back to my GP for routine blood work, something set me off at reception, and there was a bit of a scene. Anyway, my GP put a lot of pieces of the puzzle together and got a rush psych eval. My current NP diagnosed bipolar...although I'm not sure of the details...probably BP II...since the full mania was pretty late in the game.
I deescalated with Seroquel, which I almost never take anymore, and I've responded very well to the max dose of Lamical...except some of the depression. My NP is very wary of giving ADs to bipolar patients, but I talked her into low dose of Wellbutrin. It has helped and not precipitated any mania. The depression came back this winter and I convinced her to upping the Wellbutrin just the other day. She thinks it's just winter and wants to lower the dose when spring comes.
We'll see. We'll see if it triggers any mixed states or mania. We'll see if I can lower the dose in spring.
Anyway...I think bipolar is spectrum...it manifests in many ways...and it likely progresses over time. So it's silly for the DR to be hung up on the lack of one symptom. The proof should be with the lithium, just like the Depakote was the proof (which the DRs denied) for me back in the day.
Wellbutrin did the same to me - royally screwed me up. I am surprised they would have you on lithium and not diagnose you with bipolar disorder.
There is a category of diagnosis that is called bipolar NOS (not otherwise specified) it is where you fit enough of the diagnosis but not all of it to be considered bipolar. Without the racing thoughts you may fit in there?
As for diagnosis. Some pdocs won't diagnose BP until they see you in each of the states. It wasn't until I was clearly hypomanic that I was officially diagnosed, even though I was already on BP meds. Before that it was ADHD and Generalized Anxiety Disorder
I am assuming here that you go to the university clinic because you don't have independant coverage. If you are still on your parent's insurance I'd get a second opinion.
If you are getting the medication that is helping you, I wouldn't worry too much about the diagnosis. It will come in time. If the meds aren't working or they suggest going on an SSRI without a mood stabilizer then I would seek out other help immediately. (SSRI + Bipolar = crazy)
The book "The Bipolar Disorder Survival Guide 2nd Edition" by Miklowitz is a really comprehensive look at bipolar disorder and gives you some wonderful coping tips, and indepth look at causes and medications. Just a really good overal book for newbies (and us old timers who need a refresher course)
I forgot to say that wellbutrin gave me some of the wildest mood swings of my life. I went from extreme apathy to extreme sadness to extreme apathy again. But I think what stood out most was how angry it made me. Every little thing people did irritated to me no end, which is not normal for me at all.
I have all of those symptoms aswell, and for monthss the friends and family around me suggested bipolar for me. I was indenial, and later on got diagnosed with bipolar. But during a manic episode racy thoughts should have happened, coz thats what also adds manic behaviour on top of what you have. I didnt start with racy thoughts to begin with but they were faster than usual. You will experience racy thoughts as your illness gets worse, and when you do, tell yoir doctor to complete your diagnosis. Racy thoughts run at like 95 mph in your mind and it is very distracting so if you do experience it, tell your doctor.
Hope this helped! :)