Thank you for reviewing my question. I am told I have a rather small Meningioma, about 2cm on my right frontal lobe. I take medication for simple partial seizures, sometimes my left leg will not move when I want it to. Recent MRI studies revealed no change in the tumor. I have consulted with a few Neurosurgeons who say watching at this point is the best course of action. Some of the MRI reports say the tumor is on the premotor, motor strip area of the brain while other reports say Posterior frontal lobe. Is there a difference in these locations and how a tumor impacts the brain functions? I am told location is very important in these matters and I am confused. Thank You
Thank You for the clarification of the lingo/terms.
I wonder if you would be willing to offer an opinion as to the following: As previously stated MRI show no change in size of the tumor. Well,.the actual measurments vary between 5mm depending upon who reads it. I am told this is common?? I completed a three day Video EEG of which no seizure activity was captured. However, the day of discharge upon my arrival home I had two back to back seizures, no control of my left leg, resulted in falls. My seizure activity has increased, to include urinary and bowel incontinence. ( well,..this is believed to be seizure activity) Incontinence is more frequent at night while sleeping, bowel included. I am not aware at the time of these incidents. My AED meds have been increased at night. I am in my early 40's. Some MRI reports show "mass effect" but this is explained to me as mild with no midline shifting. The subject of "Mass Effect" varies too depending upon the radiologist or the physician I talk with.
Surgical resection as you know is a big step and not without risk. I know the physicians I have spoke about this need objective data. Rather than move forward based upon my tearful complaints of how I feel. On the other hand I have no other option but to share with my doctor what my body is telling me. I have learned to trust and listen to the "signals, changes, warnings" ..however subtle they may be,..afterall this is all I have to work with. I often get the impression my input is not valued or taken seriously. I realise it is just a portion of the physicians assessment with much of their information coming from test results etc, but I wonder if something is being overlooked. Is there something more that I should do?...suggest without annoying my doctor? Is my tumor location and size a possible culpret to the issues described above? Is it a good canidate for Cyberknife?..or Gamma knife? Can a tumor on or near the posterior frontal lobe cause these symptoms? I'm sorry I have so many questions. Thank You
Have you become a member of Meningioma Mommas? It is a great resource for many of your questions. All the folks there are M survivors or family members of. There are lists of questions for you to take to your NS appointment and the folks on the forum will be very supportive with their personal experiences and suggestions. Good luck
Thank You Gretkurl. Yes I have been to Meningioma Mommas. It's a great site to receive support from others with Meningiomas. I love it! I am also very pleased with the MedHelp site. An opportunity to have my questions addressed in an open dialogue by an experienced Physician is wonderful. Living with a brain tumor is scary, finding answers to questions provides knowledge and a sense of power over the fear. KUDOS to MedHelp and Dr. Daniel M Prevedello MD.
I believe all your symptoms can be explained by this tumor. Any 2cm tumor will cause some mass effect locally, which is not a lot but for sure present. Also, a right side meningioma Touching the motor/pre motor cortex often irritates it and explains the focal type of seizure you are having in the left side of the body. It is called Jacksonian seizures.
I will be glad to review your MRI free of charge of you want. It is hard for me to give an opinion in terms of different options of treatment without seeing the imaging.
The address is on under his details - I will post here:
*Daniel M. Prevedello, M.D.*
Department of Neurological Surgery
Director, Minimally Invasive Cranial Surgery Program
The Ohio State University
N-1011 Doan Hall
410 W. 10th Avenue
Columbus, OH 43210-1240
Also give him a means to contact you - a phone number and best times to reach you. If you want the original CDs back, a SASE with enough postage would be nice.
Hello.My name is Terrie and I have a tentoril meningioma.I would like to know if you would like to review it for me,too!That would be great! If not, thank you anyway for your time etc.... we appreciate it. terrie.......
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