I have daughter (age 9) who has been recently diagnosed with Chiari Malformation and Scoliosis. The CM was discovered by a pediatric ortho after a TLC MRI to discover the cause of her progressive idiopathic scoliosis. Over the past two yrs. she has suffered from migraines of increasing severity and frequency, particularly over the past 7 months. She was referred to a neurologist after her MRI by the ped. ortho (who feels that she is having a "top down" issue), an inexperienced Neuro doctor, didn't agree. She ordered no CT scan, no brain MRI, just looked at the TLC MRI that showed the Chiari and stated that it didn't look that severe to her. She ordered Elavil to combat the migraines, a topical cream for her motion sickness, said she'd order physical therapy for the scoliosis and a test (ABRE) to see if the hearing issue is brain-related. This was several weeks ago, none of those things have been ordered. My daughter states that the pain in her spine continues every single minute of the day. Her migraines occur at least once a week, this past weekend she had one for 72 hrs w/vomiting. Any advice that you may have as to what direction we should take next, would be most gratefully appreciated.
Thank you so much for your prompt response, Doctor. You had treated my oldest daughter (from Kentucky) last year, just a few days after Christmas, for a traumatic brain injury. Your compassion and outstanding care for her, prompted me to solicit your advice here. We live just outside Columbus and appreciate the suggestion that we seek the skills of a pediatric neurosurgeon. Neurology just hasn't been helpful, thus far. I do appreciate your taking the time to read my question and to respond. God bless you for your kindness...
My teen has Chiari and the hospitals here in the UK have basically told her to learn to live in pain. Its destroyed her life, ruined her physical career aspects. The meds have caused no end of problems elsewhere whilst doing nothing to ease the pain of chiari. She's had mri, xrays of brain and spine, even counselling as they claim the pain is partially psychological.
Copyright 1994-2017MedHelp International.All rights reserved. MedHelp is a division of Aptus Health.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.