Brain, Pituitary and Skull Base Tumor Forum Expert Forum
Seeking for an Expert in Neurosurgical
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This forum is for questions, discussions and support relating to brain tumors, pituitary tumors and skull base tumors. Topics include but are not limited to the following: Causes, Chemotherapy, Clinical Trials, Diagnosis, Genetic Factors, Quality of Life, Radiation Therapy, Research, Risk Factors, Surgery, Symptoms and Treatments.

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Avatar universal
Seeking for an Expert in Neurosurgical
I am a 26 years old patient who is being diagnosed with a large meningioma tumor identified anterior to the cervicomedullary junction at the C1-C2 level.  It is intradural/extra-medullary measuring approximately 3.2 cm superior to inferior x 2.2 cm transverse.
Based on the radiologist comment, this needs an urgent neurosurgical evaluation. It needs a complex surgery on my spinal and brain stem. I have consulted some of the neurosurgeons in my country, Canada, and they have refused to accept me and perform the surgery on this tumor.

Is anybody aware of a doctor who is expert in the surgery of this tumor in Canada or other countries? Your help is highly appreciated.
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5 Answers
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1382849 tn?1337552730
Dear Egrojian,

I am specialized in this kind of tumor. If you could send the films, I could revise them for you free of charge and evaluate the possibility of Endoscopic Endonasal Approach for resection of it.
I am located in Columbus, Ohio.

Daniel Prevedello, MD
410 W. 10th avenue
N-1049 Doan Hall
The Wexner Medical Center- The Ohio State University
Columbus, OH
43210
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Avatar universal
Try Md anderson in Houston Tx
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Avatar universal
Than you very much for the response
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Avatar universal
Dear Dr. Prevedello,

Thank you very much for your message and your kindness and intention in helping me.

I have shared a Dropbox link with your email at prevedello.***@**** which takes you to all images of my MRI. Please let me know if you want me to send you the MRI cd as well.

I have seen a Dr.  here in Canada and he told me the surgery is very risky and I may get strike during the operation or get paralyzed after surgery and may need to be fed by tube for rest of my life.

I would be deeply grateful for any help which you could do with this disease.

Kind Regards,
Ehsan Gorjian
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1382849 tn?1337552730
Thank you.
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