I have a brain aneurysm and was blessed that it did not rupture and I found out due to numbness on the right side of my face and a headache. They did coil and stent the aneurysm and then about 6 months later they needed to re-do the surgery due to a 30% recurrence(sp??). About 6 weeks ago I started getting really bad headaches and pressure behind my right eye (where it is located). I was hospitalized but they concluded there was no change and did not need to do surgery. I still have a severe headache. It feels like head is going to split at the top of my head and the pain and pressure behind my right eye is very painful. When the released me from the hospital they put me on Percocet for pain and said to follow-up with the Neurologist that there may be nerve damage.
I have a very stressful job and by the end of the day my headache worsens. My PCP is reluctant to refill my prescription for the pain medicine but I need something for the pain. Is Percocet the right pain medicine to be on and what can I do so I can get the doctor to give me some sort of medication to relieve the pain that I have.
Let me give you two answers for your post. First, has the percocet relieved the headaches? If not you need to consider other alternatives. You might ask your Doctor if you can try a antidepressant called Pamalor. It has a generic equilivant so its cheaper. My wife is currently taking it for the same symptoms. She had clipping surgery 17 years ago and suffered debilitating headaches/migranies almost daily. It seems to be working for her and she is just over a month into the prescription. She takes 10mg but they want her to be up to 40mg. The level you'll need could vary and might even be a different antidepressant to work. I was skeptical at first but I am becoming convinced this med is working. She still has some head pain but it isn't as long lasting or as intense.
Now for the cause of your headaches, I believe they are migraines. We have found conclusive evidence that my wife's headaches/migraines are caused by what are called electromagnetic fields. The process of how this occurs in clipping and coiling patients is extremely complicated. Doctor's unfortunately have no knowledge about how this occurs because in essence they would also need advanced training in electrical engineering. Fortunately for my wife I am a trained Engineer and it was I who uncovered this phenomena. If you are interested in learning more about this write back to me here and I will provide more information about it. Please also be advised that a number of electrical devices that you encounter throughout the day play a large role in your headaches.
I just had one other question, if I work in an office setting all day and I am working with numbers (i.e. Project Analyst) I am crunching numbers all day - have a very heavy workload and work a 9 hour day usually non stop all day.
So I'm on the computer, using the phone, calculator reviewing budgets and analyzing data all day.
How does this play a role in my headaches. Because by the end of the day my head in ready to explode, usually my blood pressure is up, and that's when I feel the pressure/pain behind my right eye.
Based on your description above, I would also surmise that you are surrounded by cubicles of other workers as well as artifical lighting and printers. Would I be right?
My wife is able to work with numbers and other data but it is the computer LCD monitor and printers that directly contribute to her pain. It is interesting that that printers seem to raise my blood pressure or atleast it is a feeling I sense when the rare times that I have one on. I'm going to try documenting my blood pressure with the printer on and off to see if it really does have an effect. I'll write back with results once I setup and complete the experiment - just need to make sure it's as blind as possible so the results don't get skewed.
Your right, I am surrounded by cubicles and other workers as well. Also, I have a printer and monitor my computer.
I would be interested in the results once you complete the experiment your described.
When my blood pressure goes up, my right side of my face gets red. But it's only my right side. And my blood pressure usually goes up only during work hours throughout the day. It doesn't occur when I'm home. So I think you may be be right that it really does effect your blood pressure.
I have an appointment with the Neurologist on Friday, April 15th. She is affiliated with Thomas Jefferson Hospital where my Neurosurgeon and PCP are are also at. So she will have access to all my medical records. If you have suggestions on questions or what I should say to her during my initial visit I would appreciate it. I just want to make sure that it is a productive visit and that if any tests are needed that they are scheduled and how do I address the issue about the pain that I have been having about the past 2 months and to get the appropriate medicine to help with the pain. Thanks. Good luck with the experiment - I hope that it is helpful.
Wow, that would be a lot of electromagnetic fields coming from all directions. I think I could have some thoughts to help you at your appointment, but let me give them some thought first.
With respect to the blood pressure, you have a stent that essentially limits the amount of blood flow on the right side and would be inflexible during periods of increased pressure. Unlike the natural vessels which can expand as pressure increases, the stent would seem to cause blood to "stack up" until it can flow through the stent so it would appear logical that the right side of your face would be more red. To confirm that this is possible, your Neurologist could request a doppler ultrasound to measure flow between both sides. She might also just write a script for a blood pressure med (probably the cheapest but least conclusive option.)
One option you could try at work would be to purchase a computer static discharge wrist strap available at amazon for about $9.00 (an extended wire better than 6 feet would be helpful.) You would attach it to your wrist and attach the alligator clip to a metal ground somewhere on your desk (the theory is that it redirects certain fields back to ground.) This works exceedingly well for my wife in our car - but we haven't tested it in a office environment. I can't be sure it will work because the printers emit what are called corona ions and have a distant reach. These ions are attracted and bind to certain types metals and I know aneruysm clips are one type. If you are concerned about what office workers think about the strap, just tell them you seem prone to static zaps just like when walking on a carpet and you touch something metal, then they'll not suspect anything.
I will have some more comments but need to give them some thoughts especially with how you should approach your Doctor about this.
I am currently on two different blood pressures medicines - Lisinprol 10 mg once day and 50 mg of meteroprol twice a day. and in the past 2 months i still come with a flushed face (typicaly on the right) and my blood pressure is elevated.
i have a electronic blood pressure i should start recording my blood pressure in the morning and when i get home.
You know how you said doctors know nothing about this because they would have to go back and learn electrical engineering?
You know nothing about medicine and the human body! You arm chair doctors irritate the crap out of me. Doctors go to school studying in medicine four years more than an engineer. After that, they begin to learn in the hospitals for another 3-4 years. They take national tests called boards.
Here's just a tiny fact for you. Migraines are caused by low blood pressure in the head. That's the true migraines. People can get pretty bad headaches for many reasons, lighting, muscle use in the face. But the migraines are being treated with blood pressure increasing meds like caffeine. And now, you ought to quit giving advice until you get that medical degree before you really hurt someone some day.
You are commenting on context that you have no knowledge about. Don't worry so much about that because your not alone. I have consulted with nationally known headache specialist, well qualified Neurologist and Neurosurgeons regarding the rare syndrome that occurs in some post operative clipping and coiling procedures. Each of these specialist agree with the conclusions I have reached regarding electro-magnetic radiation induced cranial headache called EMRICH. It is caused when metal material is inserted in to the nerve rich brain area. Medical science has never known this condition to exist for three reasons: 1) most patient never survive the initial insult; and 2) those that do end up with very serious cognitive issues which prevents them from reporting accurately the headaches/migraines; and 3) the FDA does ZERO post operative studies on medical implants. After watching my wife suffer with excruciating 3 day migraines for 18 years I resolved to find the cause and I did.
As a medical person I'm sure you know that if a symptom can be reproduced 100 out of 100 times in the absense of any other trigger and in a sterile environment, I think it is safe to presume a trigger is causing a symptom. If you disagree, kindly offer your differential opinion. But please remember medical professionals have already agreed with the results of the above testing.
If you have something constructive to add for MariePhilly, please do so otherwise please use some other forum topic to vent your frustrations!
As a nurse, not a doctor yourself, your posting could be misleading to those reading it. WebMD's website specifically notes, "Caffeine can be both beneficial and harmful for a headache sufferer. It can serve as a treatment or, in some cases, can cause withdrawal or rebound headaches."
I believe that you owe Eddie an apology for your excessive comments.
Thank you for your kind comments. I really believe that Nurseof40years needed to vent for some reason and that's OK, I only wish we could have had more of a two way communication about the topic. I really have the highest admiration for both Doctors and Nurses but I have also earned a high level trust from those that I know. Keep up your good work!
P.S. I replied to your question in the migraine section.
My mom had a stent put in place to stop an aneurysm behind her left eye. That was in 2009. Since the surgery, she has had debilitating headaches. Doctors have tried EVERY pain medication and antidepressant to stop the pain, including Botox and acupuncture therapies. Nothing has helped. She cannot sleep, eat or get around easily because of the horrible pain. At this point, while I now understand the cause (EMRICH) I'd like to know ways to help. I feel helpless and wish she could function without pain. Any suggestions or tips or ideas welcome. How many of us are there? Has anyone been able to live a normal life without pain after this surgery? Is this really a cure?
Could migraines by made worse by electro-magnetism if not caused by brain aneurysm surgery? I fear that you may no longer by part of this website because I didn't see you name below as I typed it. That would be a great loss.
Alex, your mom certainly has tried all and it seems all the "Cocktails" typically offered clipped and coiled patients suffering post procedure head pain. Q1. I have communicated with well over 100 patients in my research. There are over 12,000 procedures annually with a variety of medical outcomes. Q2. Yes, but most have have mild to severe complications and they must compensate in some way. Q3. EMRICH is not a cure but a definition of the symptoms and triggers, the complications, and a method to help avoid the triggers of the head pain.
I also have good news and bad news associated with EMRICH. The good news is that I will be meeting next week with a Neurosurgeon specializing in brain surgery and whom also holds both a undergraduate and graduate degree in electrical engineering. I can't think of a better qualified consultant to review my research. I have also found a simple tool that may help Doctor's diagnois EMRICH.
The bad news about EMRICH is that the research has expanded the list of triggers which not only includes electrical devices but also common household devices that are not electrical but magnetic and they pack a strong "head pain" punch. I don't want to mention these devices until I meet with Neurosurgeon, simply because I was stunned by the impact these devices cause.
For now, try to minimize any vicinity contact your mother may have with electrical devices. I will try to be more specific once I meet with the Neurosurgeon.
I apologize for my late night answers. This is one of the methods I use to compensate for and minimize exposure for my wife to EM fields and it also gives me quiet time to get my work done.
Please help! I am on sooo many drugs for aneurysm-related severe migraines and my excellent doctors are trying so very hard to collaborate. I have had to drop out of college on doctor's orders, I stay bed-ridden and cannot move my head and neck, I get the 30+ botox injections @ three months, have tried all pain drugs to no avail, eat the prescription nausea medicine like candy; this has destroyed my life since I had the aneurysm a few months ago. It has made my cat sick with worry and so my Veterinarian is also involved now. I use therapeutic grade organic pain oil which deflects the pain momentarily, go to chiropractor who can't find much wrong in that department...any suggestions or advice?
PS: My aneurysm is 11 mm in the center of my brain and they used platinum coils to keep it from rupturing, but apparently it is in an area of nerves that pain medication does not reach. My migraines, nausea, and vertigo are severe. Does anyone know of anything herbal or organic that may help? My doctors think that is foolishness, of course, but I am very desperate to get my life back in order and also my cat needs to quit worrying about me and get off of her nerve medication caused by my problems! Thank you! 1seahorse in Reno, NV
Getting medications to breech the blood brain barrier is challenging for Doctors. Obviously they know best about pain medications so you need to be honest and open with them including letting them know how much of each you are consuming.
Anxiety can be a problem for post surgical patients and your statement regarding your cat should concern you personally. As a owner of numerous cats over the years your cat seems unusual. If you are not talking to a Neurologist about any possible anxiety you should because that could be part of the headache problem. At 11 mm your coiled aneurysm is large and could be pressing on some critical nerves or brain tissue. Keep in mind that neither the brain tissue or nearby nerves have ever been exposed to foreign objects so unusual reactions can occur. However, I haven't read any medical studies that highlight such a problem.
I understand your challenge in getting back to your normal life but be careful with unproven remedies. What is really important is to determine what is triggering your disease and how you can avoid the triggers. I will be happy to listen here in these posts to see what suggestions I can offer to help you.
I saw your comment awhile back, "The bad news about EMRICH is that the research has expanded the list of triggers which not only includes electrical devices but also common household devices that are not electrical but magnetic and they pack a strong "head pain" punch. I don't want to mention these devices until I meet with Neurosurgeon, simply because I was stunned by the impact these devices cause."
Regardless of whether you have had those concerns confirmed, could you tell me what are "magnetic devices". I have no idea what those could be.
Thanks again for your very thoughtful input.
Just a couple suggestions. Are you aware that taking any pain reliever more than 2 times a week can risk getting severe rebound migraines?
I was not helped by any of the daily preventative migraine medications which I assume you have tried. But what has worked is Petadolex, an herbal medication made in Germany so that it is fully evaluated for toxins which is a common problem with herbal or organic meds. You can find it on-line. Also an off-label medication called Namenda was recommended by my Headache Specialist as well as one of my neurologists which gave me significant relief at just 1/4 of the dose for its labeled use. The doctor said that it was helpful for people who had what he termed "central migraines". So good luck if you want to try either of those.
Thanks for sharing the info on Namenda. I hadn't heard about its use in Migraine patients. It certainly wouldn't hurt although it does need to be ramped up. I'll have to look up this info and see if could helpful for my wife.
I started at 5 mg a day, then increased it to 10 mg a day which is still half of what they give to Alzheimer's patients. I got great results, but backed off when I got Trigeminal Nerve pain. But both my doctors told me that it was extremely unlikely to be from the Namenda. That even with the 1% increase in neuropathy in those taking 20 mg a day which didn't rate a correlation, my doctor told me that Trigeminal nerve (TN) pain is far different from simple neuropathy. TN is most common in women over age 50 and seems to just come on with age in some people. So I'm back on Namenda without further problems with the TN which went away. But it is bound to return according to reports. So I would definitely give it a try. And remember that any side effects were in Alzheimer's patients who are much older and are taking a much larger dose. Sara
Could I trouble you to describe what you mean by the TN pain. My wife has had a change in pain pattern in addition to the old pattern. She was zapped pretty badly by a store anti-theft device as she was walking in the store while a customer walked out with a package that wasn't disabled by store personnel. They were both in the gate at the same time. Her new pain is triangular from the eye down to the middle of her cheek. Any description would be appreciated.
Hi Eddie, Look up Trigeminal Neuralgia. Wikipedia says this disorder is characterized by episodes of intense facial pain that last from a few seconds to several minutes or hours. The pain may be felt in the ear, eye, lips, nose, scalp, forehead, cheeks, teeth, or jaw and side of the face. The attacks are said by those affected to feel like stabbing electric shocks, burning, pressing, crushing, exploding or shooting pain that becomes intractable. Touching or even air currents can trigger an episode; however, in many patients the pain is generated spontaneously without any apparent stimulation. Wikipedia discusses a number of possible causes or it may just come with age. Most are women over 50 years. It is also known as "suicide disease" LOL. I can see why.
Well you're way ahead of me on that one. I went through hell with that pain for about a month. The triggers for me were talking, drinking anything that was colder or hotter than lukewarm, eating at all, lightly putting my tongue on the area, but that didn't get at any initial causes. Now I'm back in the same situation without the pain. Thanks again.
Hi, I am very interested to hear more x I had a stent procedure for my largest aneurysm in November last year and have just this Friday had my 2nd one treated with 2 coils and 8 stents, none of my aneurysms had ruptured before treatment, I know I'm lucky, but am still very afraid of what's to come. X I hope your wife is better now x x thanks Braddersmum x
I am really interested in the cause of these Headaches / Migraines.
I suffered a Cerebral Haemorrhage almost 24 years ago and they clipped my ruptured aneurysm then.
In the last few Years my Headaches have gotten worse and more frequent, probably one every 2 Weeks. At present the only "Cure" I have is to lay in bed until it has gone, some 12 hours later ! I can't eat or drink because it makes me feel even worse and vomit.
Over the years I have had numerous tests and scans only for the Doctors to say, "everything seems to be fine!"
I'm limited for time tonight about this exceedingly complex situation among Clipping survivors so I'll get to the heart of your question - a very real solution.
I have personally witnessed and am impressed by something called EEG Neurofeedback for the treatment of migraines in aneurysm patients. It must be done by a appropriately trained professional however. For now, let me suggest a practice that offers research documents about EEG Neurofeedback on its website. Do a web search on Acorn Health Associates. At their webpage click on the publications tab and look for Information About Neurofeedback and the Physiology. Quite possibly there might be a provider in your area.
I do have some questions related to your surgery and the type of closures used to hold the bone flap together and that will help me understand your situation better so I will try to get back to you with more information. Hope this helps for now.
I am not sure if you are still on this. I have a coil in my brain after an aneurysm. I am convinced that electricity or EMF is causing terrible migraines following the embolisation. Every time I go into a building with microphones or wifi I suffer dreadfully for up to 3 days. Can you help as Doctors don't seem to have the answer except to give me anti convulsants.
Pleased to meet you. I'll try to help the best I can. While I do have a lot of research in this area, I want to get straight to the point of helping you as quickly as I can so I'll dispense with history for now.
The best treatment you should seek would be from a professional that offers something called EEG Neurofeedback. The reason for this treatment and why it appears to be successful is that it treats the brain utilizing electrical waveforms that the brain seeks and prefers. You see, you now have a foreign substance in your "electrical brain" we humans don't think of our brain operation in this way but it is exactly why you can move your hands for feet. An electrical signal of some waveform causes that action. Due to this foreign substance now in the brain, the brain cannot understand what this substance is so it creates an action to rid the substance and unfortunately this response is a migraine headache. EEG Neurofeedback helps the brain recognize the foreign substance which is a conductive metal (it must be understood that even though the coils are either titanium or platinum and are considered nonmagnetic) it becomes magnetic when it comes in contact with a electrical device or another magnet. In physics it is called a paramagnetic substance meaning it becomes magnetized only in the presence of a magnetic material or electrical waveform. This is the lesson that Doctor's forget or neglect to consider. It's a complex subject so I don't want to get to detailed here.
While Topiramate could be useful because it helps reduce electrical connectivity it may not be truly useful. In consultation with your Neurologist, you should ask for a prescription for Rizatriptan in the melt form ad if you also get nausea a drug called Zofran melt also available in generic may also be helpful. The purpose for the melt versions of the drugs is to get the drug into your system as quickly as possible to stop the electrical depression spreading among the neurons.
I should mention quickly that the reason why this migraine episode occurs is due to the brain becoming highly organized during the migraine sequence. Think of it like a muscle cramp within the brain. EEG Neurofeedback helps the brain return back to a normal function. It may take a number of treatments to get back to normal but I have personally witnessed this treatment in action in my wife. In the U.S. this treatment is cover by most health insurance. I have actually sampled a treatment recently and I must say it was amazing. Once hooked up to the system, the brain goes into a meditative state and you have little control to force your self out of this state simply because the brain enjoys the waveform sensations it is getting. I hope this helps you for now and if you have any other questions please feel free to ask me.
Wow, u sure know a lot on this topic! I have unruptured aneurysms 10-11mm on R internal carotid and a bundle of small(2mm,3mm) on L internal carotid artery.
Dx 20yrs ago, planned to have craniotomy back then but MD doing diagnostic cerebral angiogram slipped, oops, cut the Rtery wall a bit 1/2" slit the report reads. Anyway I was told I had to wait 6months for slit to heal. In that period I was too freaked out with the hospital and decided to do nothing. Here I am 20 yrs later with all my aneurysms in tact. Most often I don't think
about it. I have ms. Fibromyalgia ...a lifetime of daily headaches, said by all my docs headaches have nothing to do w/aneurysms.
I came to this forum today cuz I was on Savella for 3 weeks and the nature of my HA changed, when I bend over like to tie a shoe, head pounds a bit.
Can't bear thought of living thru a rupture or the surgery. All my pain would be worse after surgery -posted by rupture/surgery....bleak outlook.
Please don't let any of this dissuade you from getting good medical advice and treatment. Knowing what I know today, I would still encourage my wife to seek treatment simply because what we have and do today is much better then 20 years ago. Also, having gone through so many different treatments and medications for the head pain, there are some really good modalities to help her and you, especially EEG Neurofeedback to help the brain become acclimated and adjust to the new hardware.
Please keep this in mind as you decide: God has help you through the last 20 years and God has a mission for you to achieve. Believe in him and His miraculous works. I will keep you on my prayer list. God Bless!
Thank you for your sharing everything you have learned . I had a bleed little over two years ago had coils then later they put a stent and another coil in now I have sharp stabbing pain on right side of head end in the back along with tingling next week I go for mra I think they call it that. I praise God everyday, I don't have migraines I do have panic attacks that I didn't have before but that's ok . Once again thanks for sharing you knowledge May God bless you
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