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Cavernoma in right temporal lobe
Hello,
I had a seizure for the first time recently and completely blacked out. I would've never known what happened if friends hadn't witnessed.
I went to the ER and discovered I have a raspberry sized cavernoma in my right temporal lobe.
I was referred to a neurologist and had a visit the next day.
He started stating all the things my cavernoma could be causing, and many were issues I've struggled with a large part of my life that have gotten much worse recently (memory, agitation, sociability, attention), and then delved in to the different medications I would now have to take to minimize seizure risk.
Puzzled as to why he was not talking about removing it, I asked. He looked at me like I was dumb and said that yes, it could be done, but I'd have a hard time finding someone who would be willing to do the procedure, and that I would be risking malignant tumors as a result of extraction.
I'm only 22 and I am not only afraid of how much this has affected my quality of life so far, but also how it will continue to affect it.
My questions can best be put as these:
Why would I be at risk for malignant tumors?
I had a seizure for the first time recently and completely blacked out. I would've never known what happened if friends hadn't witnessed.
I went to the ER and discovered I have a raspberry sized cavernoma in my right temporal lobe.
I was referred to a neurologist and had a visit the next day.
He started stating all the things my cavernoma could be causing, and many were issues I've struggled with a large part of my life that have gotten much worse recently (memory, agitation, sociability, attention), and then delved in to the different medications I would now have to take to minimize seizure risk.
Puzzled as to why he was not talking about removing it, I asked. He looked at me like I was dumb and said that yes, it could be done, but I'd have a hard time finding someone who would be willing to do the procedure, and that I would be risking malignant tumors as a result of extraction.
I'm only 22 and I am not only afraid of how much this has affected my quality of life so far, but also how it will continue to affect it.
My questions can best be put as these:
Why would I be at risk for malignant tumors?
My post was cut off for some reason, but I continued to ask the following:
Should I be worried about my cavernoma growing?
What are my chances of having a hemorrhage, and what should I expect if I do?
Will my seizure medicine help with attention and my other issues prior mentioned, or just minimize seizures? (Kepra, and I think the other was called lipitrol)
Should I be worried about my cavernoma growing?
What are my chances of having a hemorrhage, and what should I expect if I do?
Will my seizure medicine help with attention and my other issues prior mentioned, or just minimize seizures? (Kepra, and I think the other was called lipitrol)
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