3mm Pituitary Micro Adenoma

I need some help/feedback on several symptoms that I'm experiencing. I am 46 year old male and have low testosterone, LH and FSH. MRI shows a 3mm pituitary tumor. My Endocrinologist says it's non-functioning and we should just watch it. I have headaches 24/7 that's sometimes minor and extremely painful sometimes. Endo is sending me to neurologist and thinks my headaches may be due to mild sleep apnea. Does this sound accurate? I'm concerned that I may need treatment for the tumor (medication or surgery to remove) instead of only watching it. I have frequent numbness in my right arm and leg. Also have a hesitation in my legs (mostly the right leg) when walking....it occurs at various times throughout the day. Doe anyone have suggestions or ideas on what I can do?

[rumpled]

I would go to a pituitary center and get an evaluation there. Since you have hypopituitarism already - the non-functioning argument is moot, and you need to find out what type of tumor it is and how to get it treated be it meds or surgery.

A neurologist sadly does not know how to treat pituitary tumors and that endo does not either - so find another! It may be put on watch but you should get treatment in the mean time as well as regular monitoring which is not just a MRI which tells very little.

Headaches are a symptom of pituitary tumors - it is not so much the size but the symptoms. The numbness and hesitation you are having should be seen by the neurologist though - those are not a pituitary symptoms.

Sleep apnea and low T often happen with high cortisol - was that tested at all?

[1dfw]

Thank you for your prompt response! Yes, my endo tested several hormone levels....cortisol, GH and thyroid come to mind....I'm sure there are others that were tested. I don't have the written results but today I asked her nurse to send me the results/report. She said the levels were in good shape but I hear that can mean they are high or low but still within "acceptable" levels. She also said the tumor isn't pushing up or out toward other structures. I have many other symptoms that I didn't mention earlier such as extreme fatigue,  sudden electrical shocks in my head, arm and leg that may last a second or sometimes 5-10 seconds. The hesitation in my leg when walking is not noticible to others.....but I certainly feel it starting about 3 years ago and it gradually is becoming worse. This is very disturbing and I'm concerned since symptoms of Multiple sclerosis are similar.

[rumpled]

Fatigue is a common symptom too.
TIming of testing is crucial - so make sure you get the tests done at the proper time. One set of testing is not acceptable - they should do several sets over time.

It is good you are getting copies.

I hope you don't  have MS - I hope you get a good doc.