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Brain/Pituitary Tumors Community

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AVM

by shinebrooks, Sep 23, 2009 12:14PM

Tags: AVM

A close friend of mine suffered a grand mal seizure in May 2009. They finally discovered that she has a AVM. A surgeon at CMC-Main in Charlotte, NC and a neurosurgeon in Boston, Mass have told her that it is too risky to operate because of the size, and shape, and area that it sits in (over her speech center). Boston had first told her they thought she would be a candidate for the embolization, but the review board turned her down. The only other thing they said they could offer was to place radioactive ions for up to 3 years??
She just turned 30 years old, and is suffering from extreme headaches.
Is this a good option for her to take? OR are there any other options for her out there?
PLEASE HELP!!

Member Comments (2)

by rumpled

, Sep 24, 2009 09:22AM

She can try to send her records to other large centers and see if anyone will have any other ideas, but she has already been turned down by one review board.

I would research that treatment and see if that is her best option.

by shaneab, Nov 05, 2009 09:15PM

To: shinebrooks

I had AVM removed in 01, 6 weeks before 26th birthday. surgery does not get rid of headaches in my case. if headaches are the big concern you may have too live with them as i do. AVMs are only really bad if they are bleeding, i had mine for years before i got it cheked out.

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