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Aarachnoid Cyst on Brain 6.8 x 9.3 x 10.5 cm. Need Help Thanks!


My husband has a huge arachnoid cyst:

His cyst is 6.8 x 9.3 x 10.5 cm
Frontal Region


Diffusion weighted images reveal no areas of diffusion restriction to suggest acute or subacute stroke. There is a large extra-axial CSF signal collection which fills and expands the right middle cranial fossa and then extends superiorly into the right sylvian fissure and right posterior frontal region, consistent with a large arachnoid cyst.

A drain or catheter enters the cyst from a lateral approach, an Ommaya reservoir by history. The cyst remodels and deforms the overlying right temporal and frontoparietal bones. It also produces remodeling of the lateral wall of the right orbit with creation of mildright proptosis.

The third and right lateral ventricle are compressed by the arachnoid cyst and there is about 4 mm of leftward midline shift at the level of the third ventricle and 5 mm leftward midline shift at the level of the septum pellucidum.

There is no abnormal signal intensity identified in the brain parenchyma. Post contrase sequences reveal normal meningeal and vascular enhancement. There are no enchancing parenchymal lesions. Gradient echo images show no areas of blooming to suggest hemorrhage.

Multiplanar MR imaging of the brain was performed with a 1.5 T system. Sagittal, axial and coronal sequences were performed through the brain, including diffusion and gradient sequences.

Post contrast imaging was performed following the administration of 20 cc of intravenous gadolinium. There were no immediate complications.

Surgery made him much worse. Any advice or support you could give me I would appreciate. Thanks so much!

I've heard of people being put on Diamox to drain the fluid but I can't find much information about that.  Can you help please?  Thanks!
5 Responses
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1154293 tn?1271262198
Wow--I thought I had a large sub-arachnoid cyst (min is 5x5x9 cm!)  I think you are already a member of the Arachnoid Cyst Awareness Network--if not you should join this group and maybe one of the other members can give you an answer to your questions.

Mark
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Avatar universal
Thank you Rumpled!
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Avatar universal
I do not know in particular. This site is affiliated with many hospitals so perhaps ask on the expert forum, or search medical publications for papers on CDS and contact the doctors who wrote those papers.

There are mercy or angel flights that may be able to get him where he needs to go.
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Avatar universal
Thank you so much for answering!  Do you know of any Universities or Hospitals will just take CDS and not make us go in to see them?  My hospital is too ill to travel.  Thanks so much!
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Avatar universal
I would go for another opinion. Drainage of such cysts is generally not effective if you research - so part if not all of the outer layer of the cyst needs to be removed so that the cyst does not refill.

Please look for another opinion - and travel if necessary.  Send the records ands CDs around and see what other universities or hospitals say.
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