Brain/Pituitary Tumors Community
Almost a year with a headache
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Almost a year with a headache

I am currently 50 yrs old a female, I had a seizure several years ago, they found a small tumor on my pituitary and said keep an eye on it. Okay speed ahead. Nothing happens expect I lose weight and my life falls apart. ha ha.. approximately 6 months ago I developed a sinus infection that I ended up having surgery for to get rid of. Headaches the whole thing.The headache never disappeared. I still suffer and I am taking topomax (topamax) at 100 mg. now ears ringing nausea lightheaded,dizzy fatigue weepy. I am beginning to thin the tumor is acting up even tho it has not grown to measure. I am at the end of my rope please help!  
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657231_tn?1390151580
Your doctors who found the tumor are not skilled in pituitary. The size of the tumor is not the factor but the action of the tumor is - so while an MRI can tell you that you have something there, you need a lot of lab testing to indicate the nature of the lesion.

Find a pituitary center - and a neuro-endo. Go to a larger university center or a larger hospital to find a decent doctor. It make take several rounds of testing and you need to be educated on the topic to make sure the testing is done correctly. Read up in the health pages to find doctors and information and ask more questions here.
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4210748_tn?1351279714
THANK YOU!! I have in the past few days done some prayer and research and found a few answers hubby and I are looking into a new Doctor .. You have reaffirmed my decision.So perhaps today Now I know what direction to look.. Thank you so much.  I love in a small community so while it may be hard I am determined now with this affirmation to go in this direction... THANK YOU!!
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657231_tn?1390151580
You are welcome! Keep us posted. This may not be an easy path - I wish it was for everyone.

If you have any questions or need direction - please feel free to post again and do let us know how it goes.
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