Good luck... hope all goes well. Feel better!
And to my surprise there was a small reoccurrence but no symptoms and so they waited 6 months and scanned me again in October of 2014 and they said it had disappeared...So here I am a lil over 5 months later March 2015 and I am not feeling so well...posted a new updated entitled"its been a while"...my vision is ok but with the pressure I feel behind my eyes I am not taking any chances, off to the ER I go...wish me luck
Will update you guys later
I am doing very well... So far no more symptoms... We shall see what the future holds, I will be having my follow up MRI on Mon. 4/21/14 from my Jan. 2014 surgery #4... Hope it's clear!!! How r u doing???
How are you doing now?
Horselip
Wow... that is a lot of pit surgery!
Maybe you have to switch over to mountain dew!
Some of us metabolize caffeine faster so that would also be a factor. There is also a medication to try has that been done?
Thank you both Horselip and Rumpled for your feedback...I have noticed how active and informative you both are within the community, I think thats awesome, but back to my issue yes I have had my 4th surgery and yes my surgeon was more aggressive this time around going after the wall of my Rathe's...I actually have my 6week followup appt. today to discuss my ER visit involving the lumbar puncture and details of my surgery. Oh and yes as of today the same course of symptoms are already happening, I can feel a sense of fullness/pressure in my face moving to my head and behind my eyes... not really noticing any draining in the back of my throat tho and as for the whole caffeine fix, I am a massive Pepsi addict, its all I drink literally with the exception of a bottle of water here and for medication intake, so not sure how effective that rememdy is I think i am immune to caffeine. Will let you guys know what my surgeon has to say. And thanks again...
Stay well all
RCC meaning Rathke's Cleft Cyst right, So you had your fourth surgery, wow! Did they finally get the remnants?
When they do a lumbar puncture Cerebral Spinal fluid is removed. This can lower your csf pressure and symptoms like high-pressure headaches improve.
It all could have been a coincidence but hmmm I suspect this is what might have happened.
If the symptoms come back than def see your neurologist as you could be dealing with a pressure issue. Intra-cranial hypertension is not that uncommon and there are meds that can be used to treat it.
Horselip
I am not sure what an RCC is (I am a patient).
I know a tiny bit about CSF headaches from my pituitary friends. If you feel better laying flat, after caffeine and/or you have a clear drip going down your throat or out your nose then it is often a CSF headache.
They have meds to try, then they may have to do another surgery to find the hole.
In the mean time, try coffee or anything with caffeine and see if it works. But I would get back to your surgeon ASAP telling him about the puncture and how it helped your headaches. He should be able to get the pressure reading off the test.