I have been having trouble for over eight months with legs, arms, neck and face becoming paralyzed, not always all areas at once, conciousness is retained throughout, (i have since read up on focal seziures which sound eerily similar). Recent migraines, with lots of stars zooming everywhere like when you do a million back hip circles, I've been told this is called an aura. Vibrating in my stomach.
Major symptoms (paralysis/vibration) are relieved and often prevented by wearing flight socks and compression bandages, lying flat, or at least sitting with legs up, progesterone cream helps, and so does to OCP, I finally figured out that progesterone is a neuro-steroid today used to treat brain injuries.
Major symptoms are usually brought on by extremes in temperature, changes in pressure (going down a mountain, flying in a plane), exercise, or extended car travel (over 2 hours).
Back in 2000 i had a similar issue with my right arm becoming paralyzed for 3 hours, followed by fainting about 6 hours later. Cavernous haemangioma was first seen then. In 2006 it was 13mm.
Why is skydiving on the "avoid" list for people with cavernous haemangiomas?
I wasn't aware of this and went skydiving about 10 months prior to start of current symptoms. If it was related surely I would have had symptoms straight away. I am a huge theme park junkie and used to love the rush, however the skydiving made me feel very queezy and disorientated, now that I think about it I also had some bleeding behind my left knee, I thought I had clipped a twig on the landing.
On the flight home I went stiff as a board except for my left leg and when I recovered I found a huge bruise behind my left knee.
The thing is every neurologist I have talked to about this have all said that it is fine, it is normal, it's all psychosomatic. The cavernous haemangioma is bengin and is not affecting any of the surrounding tissue.
I'm due for another MRI after my EEG in two weeks.
It's been eight months with a slight remission of symptoms with daily use of a neuro-steroid, of which I am requiring higher and higher doses.
Can neurologists/radiographers ever be wrong?
What else should I be looking out for?
Can a cavernous haemangioma ever be fatal? And at what warning signs should I call an ambulance?
August 2009 MRI report
History: Known left frontal lesion. Recent right sided weakness and parasthesia ?Stroke
Technique: Axial T1 weighted, T2 weighted, DWI, FLAIR, SWI. MRA using time of flight
technique. Gadolinium enhanced 3D SPGR sequences.
Findings: There is approximately 17mm diameter, slightly irregular T1 hypo intense and T2
hyper intense lesion containing septations located adjacent to the frontal horn of the left lateral
ventricle. Some calcification is present in the lesion. This has been documented previously.
There are no other similar lesions intracranially. There are no other areas of abnormal signal.
No hydrocephalus. No midline shift. There are no areas of restricted diffusion.
There are no normal flow voids in the cerebral vasculature. The MRA study shows normal
appearance of the vascular structures at the circle of Willis.
Comment: Old cystic/calcified lesion in the left frontal lobe which has been documented on the
recent CT scan as well as on previous imaging. No other intracranial abnormality. In particular,
there is no evidence of a recent CVA.
"Cavernomas may be asymptomatic, or may present with seizures (60%) or with progressive neurological impairment or "deficits" (50%). Some can present with hydrocephalus or raised intracranial pressure (headache, nausea, vomiting, visual disturbance, sleepiness) depending on their size and location. It is uncommon for cavernomas to cause sudden catastrophic or devastating neurological injury, but the progressive brain (or spinal cord) injury associated with cavernomas may be severely disabling as time goes on.
Why do these symptoms occur? The reason is repeated bouts of hemorrhage in the cavernoma. Different cavities of the cavernoma may have different ages of blood products. The walls are fragile, and the growth of micro blood vessels into these lesions results in blood product (hemosiderin) leeching around the cavernoma, and cycles of cavernoma growth through hemorrhage and rehemorrhage. The hemorrhage is rarely a large devastating hemorrhage."
I am going to guess that skydiving is a no-no due to the change in pressures, and unlike a plane where it is controlled, your body would be subject to all of them and it could cause a rupture where things are weaker.
Progesterone may be a neuro-steroid... but it may also have other consequences so if you keep increasing without testing, you may impact your hormones, and have another problem entirely.
Sure, docs can be wrong (heck, they missed one of my tumors for 12 years, and mis-diagnosed me for longer than that...) but you can look on the internet and see pictures of CH and compare.
I will send you a link. As your lesion has calcified, it shows it has been there a long time - but perhaps you may want to think twice again about sky diving.
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