Daily check in thread

[crwstar]

Hi everyone,

I've been thinking about this for a little while. What do you all think about starting a daily check in thread? I've seen on some other forums where people are dealing with or living with issues - that it helps to just check in and get support and give support. It wouldn't take the place of asking specific questions but would be a specific thread we can all chime in and say, hi to each other and offer support..........what do you think?

Crwstar

[rumpled]

Sounds like a good idea to me.
I am dealing with my mom's death due to stoke. I am tired since I am at her house, in another state, and have to do things on a more expedited basis since I do not live near here.
Sorry for my delays recently and my answers are shorter.

[crwstar]

I am so sorry to hear about your mom. I think we are all grateful for any responses you give at this point however short they are. You are a blessing with the dedication you give to this forum. I'll keep you all in prayers.

[rumpled]

Thank you - it seems no one else is checking in! Not even you.

[crwstar]

Hi rumpled, I was waiting to see if there were going to be any other reponses to the idea, but I suppose I can go ahead and check in too ;-)


It's time for another mri to look at my pituitary. I will be going in next week and am waiting to hear about insurance approval. I'm still recovering from my hysterectomy. I felt like something quite ill was taken out of my body - best decision for sure. I'm still waiting to see how things change for me but I feel better having it done.

I'm thinking of enzymelover and her son today - isn't today his surgery?

[rumpled]

Looks like it was the 21st, I hope it all went well! I also had a hyst and while recovery is something else, it was also a good decision for me as well.

[North48]

Sorry to hear about your mom rumpled :( I hope you are doing ok with everything.

I haven't checked in here for a while because I've been checking out the thyroid site.  My TSH was a little high last time so I was having that checked again and I'm trying to educate myself with all this.

Good luck with the mri next week crwstar I hope it goes well for you.

I too hope it all went well for enzymelover son. There is nothing worse then having a sick child and watching them go through it.

[crwstar]

Hi North48 - Doesn't thyroid have to do with energy levels??? What have you found out?
I might need to come visit that forum too.

Well, I got the approval for the MRI and am set for next week. Rumpled, can you remind me - is "dynamic mri" the only thing that needs to be mentioned. I have requested this specifically this time and am going back to the original place that found the adenoma.

Hope everyone is well. And am hoping that "anyone" who wishes to check in will.

All the best.

[rumpled]

Yes, if they do dynamic, it will be with and without contrast, and pics during contrast injection... if the tech is good, you will have nice pics (I had a lousy one, got black pics) so there is some skill involved... Good you are going back to a place with a track record.

Good luck!

[North48]

Hi crwstar!  I think the thyroid does have to do with the energy level.  I have been really tired all the time but I also am having problems with weight gain and unable to lose even though I've been trying to do weight watchers, dry skin, temp. control, sore joints, muscle spasms, pubic hair loss, brain fog, this all seems to cycle too.  My labs always come back "normal" which is good but what is causing all these symptoms.  Cushings disease sounds very similar in the symptoms to the thyroid so I guess I'll just keep pushing for more tests.  I truely believe that this micro pit tumor does have something to do with all this.

I did have an abnormal TSH but the FreeT3 and FreeT4 was in the low normal range and I was tested for antibodies and they came back neg. so the dr 's are telling me to wait and watch because the TSH wasn't that high just a flag to watch.

[crwstar]

Ah, so that's why I had horrible mri pictures at one of the other locations - very good to know. Funny or not so funny thing is it was the location with the horrible pix that said, I had no pit tumor. Thanks rumpled. Hope you are doing ok...continuing to send you good vibes.


Hi North48, I feel for you, I think I'm in a similar situation as yourself. I've had much blood work but it keeps coming back normal or slightly low which to the docs means its nothing. Its challenging when "we know" something is going on and the tests continue to say, otherwise.   Like you, I have a micro pit tumor and believe it is causing some of my symptoms. I also started gaining weight which I had never done and couldn't loose it. I've since had a hysterectomy and it turned out my uterus was 3x the size it was suppose to be....so thankfully, I've lost a few pounds.  What's interesting is I now have a rib in my chest that is growing outwards...bizarre.

hope you find some answers soon and don't have to wait years. I'm going on 2 years now. I try and keep a positive attitude as I push for more testing as well.  Hope you are having a good day. How long have you been living with your symptoms?

[North48]

We are in a very similar situations.  I started having some symptoms about 4-5 yrs ago and they found the pit tumor in April 08 when I started lactating and having a strange sensation in my eyes and hands.  I still lactate and have numb  fingers and joint pain but the sensation in my eye is gone.  I think they were also looking for MS

The drs try to encourage me to go about my life and forget I have a tumor but thats not always easy to do.  I too try to be positive and I just keep plucking away. My OB/GYN NP encourages me to keep trying different drs if I'm not getting what I want out of them.  She told me it's a puzzle with my endo system and somebody will put it all together and I just need to keep looking for the right docs.

[crwstar]

Yes, definitely similar. Pituitary tumor was found in March of 08 and had many symptoms for many years - just never went to the doctor. And they were also looking for MS with me - even sent me to a specialist.

Your OB/GYN is smart!! That's exactly what I'm doing too. The minute I get the sense that the docs don't believe my pit tumor is causing anything - I ask them directly so I can get a clear answer and then, I don't go back, lol. I like your docs attitude - There is someone out there who will put it all together! We've got to believe that.

All the best to you today!

[North48]

Thank you and all the best to you too!

Keep me posted on how your doing.  Do you have any auto-immune family history?

[crwstar]

Hi ;-)

I don't know of any auto-immune family history. The first doctor I had was going down that track with me thinking I had an auto-immune issue. And I very well may - cause its almost as if my body is constantly fighting something. Nose is always inflammed and has been for 3 years and if i intereact with people my throat swells up and not from anxiety because I love interacting with people. I have a new pcp who can now start over with and approach this topic again.
I have an uncle who was diagnosed early this year with a large pituitary tumor. He's had surgery and is doing well. My grandfather had a meningioma and an aneurysm. There's some history of TIA's and heart attacks. I have aneurysms and a pituitary tumor.

What about yourself? Any auto-immune family history? Forgive me if I I do repeat questions. I do have a wee bit of short term memory stuff.

[North48]

I do have some memory fog too! (thats what I call it) It's not bad but I never had this problem before so I don't know if its age or has something to do with what is going on with me.

I have a lot of family auto-immune history so I was just curious if you had any similar history. My son has type 1 diabetes and hashimoto, brother has rheumatoid arthritis grandmother had hashimoto, vitamin B12 anemia, vitiligo, aunt with graves disease and vitiligo My mother has allergies.  My father side is all heart disease. I had Bell's Palsy as a child and had to have surgery to unpinch the nerve.

What type of aneurysm did you have?  If I'm asking to many question just ignore them.
How was your uncle's tumor discovered?  Did he have the surgery where they go through the nose?

[crwstar]

Memory fog is a very good way to describe it. I'm in the same boat wondering is it age or something to do with what's going on with me. It would just be cruel if was age, I'm only 40 and keep loosing things, lol.

Diabetes does run in my family as well. What is Bell's Palsy?

I have an aneurysm behind my left eye plus two other tiny one's. And am In the midst of deciding what to do and when.

My uncle said, he started stumbling around as opposed to walking straight and his vision was impaired. I think he mentioned something about his sinus's as well that he thought it was his sinus's and it turned out it was a pituitary tumor. He was having headaches frequently and so with all that he went to the doctor and it was found that he had a tumor. He didn't mention what type of surgery he had but he was back to work within 8 weeks. Thankfully, he had a really good outcome. I haven't talked to him for some time so don't know how he's doing now but will check in with him soon.

You are welcome to ask as many questions as you like ;-)

[North48]

Bell's Palsy is when half of your face is paralyzed generally due to a virus or ear infection and in most people it goes away on its own.  I was 14 yrs old at the time which was very uncommon for someone so young and mine was not showing any signs of getting better so at 7 weeks with it I had surgery.  They found the mastoid in my head was swollen, enlarged and was pinching the 7th cranial nerve so they cut it away from the nerve.  I had many months of physical therapy  and I guess I was very lucky to have an excellent doc.  I really have very little signs that I had it and the docs always tell me that I'm very lucky.  I remember I was on steroid for a long time trying to keep any swelling down and so I often wonder if this is what caused the pit tumor or the surgery.  Who knows!!!!

[crwstar]

Wow, so glad you had a good outcome from all that. And what a blessing you had excellent doctors at that time as well. I think its kind of a mystery for most of us how we got these darn tumors. Woudn't it be great though if docs could just point to something for us to take away the somewhat mystery surround these things.

I've postponed my MRI until December so won't know anything until then about what's happening.  

Happy Halloween to you. I'm going to stay away from the twix's.

[North48]

Happy Halloween to you too and have a safe night!!!