BRAIN/PITUITARY TUMORS COMMUNITY
GBM grade IV

GBM grade IV

Just celebrated 25th wedding anniversary in September 08. Oct 08, hubby diagnoised with GBM grade IV. 1st crainiotomy October 22, became a grandma on October 26th (was a surprise yes a real surprise baby) 2nd on November 10. Chem and Radiation began on December 11th. I'm on a roller coaster. I am the only wage earner. Prognosis was maybe 14 months. I have no clue how long he has. It is December 26, 2008, and I don't know what to expect for him or from him and what to do. I don't know if he will be here next Christmas or what. Nobody can say anything but maybe. I can't live with a maybe anymore. Am I being cold? I'm trying very hard to stay composed so I can work and still be a wife, mother and caregiver.
657231_tn?1329145883
I would suggest that you find some support groups (in person or on boards) for yourself.

I had a father and uncle die of brain tumors within 6 months of each other. These things are very unpredictable. There is no one to tell you what is best for you but you. You need to live - be happy and be as supportive as you can under such stressful and sad circumstances.

Basics may be to make sure you have legal issues resolved so that is not a problem, set up enough care and make sure the care is loving (there is a lot of nice care out there) and decide if the care is in home or out of home, and then enjoy the time that you have.

You are not cold - you are trying to cope!
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