Aa
Hysterectomy
Hi rumpled and everyone,
I'm wondering if anyone else has had a hysterectomy. In addition to having a pituitary tumor I've recently been diagnosed with complex hyperplasia - moderately abnormal cells in the uterus. Because of this I will be having surgery soon to remove both my uterus and cervix. I don't plan on having kids, tried, so that's not an issue plus the women in my family have practically all needed hysterectomys.
Thanks
I'm wondering if anyone else has had a hysterectomy. In addition to having a pituitary tumor I've recently been diagnosed with complex hyperplasia - moderately abnormal cells in the uterus. Because of this I will be having surgery soon to remove both my uterus and cervix. I don't plan on having kids, tried, so that's not an issue plus the women in my family have practically all needed hysterectomys.
Thanks
Do they have you taking iron with at least 250 mg vitamin C (I prefer ester-C for gentleness on stomach & regular can give me mouth sores) for best absorption? Also, taken at least an hour before or two hours after calcium supplementation, if you are on that?
I'm glad to hear that I'm not the only one going through all of this. I cannot wait until I have had my hysterectomy. The pain of my endometriosis is unbearable. Had a laparoscopy and DNC about a month ago and feel worse than ever.
I have no idea what my prolactin or LH and FSH levels are at the moment. So many doctors appts I feel like a pin cushion. And to top things off my hemoglobin is low.
Trying to stay positive.
Falling apart
I have no idea what my prolactin or LH and FSH levels are at the moment. So many doctors appts I feel like a pin cushion. And to top things off my hemoglobin is low.
Trying to stay positive.
Falling apart
It does take a lot out of a person, but the Lord was gracious to me and got me through all that! You're welcome, crwstar! When they first discovered the abnormal proliferative, a doc tried to push birth control pills on me, but I didn't want to make my migraine situation even worse and risk the potential side effects.
I did have a neurologist have me try tamoxifen related to my migraines because he felt I had estrogen dominance.
I did have a neurologist have me try tamoxifen related to my migraines because he felt I had estrogen dominance.
Thanks for clearing that up rumpled. Slowly and understanding about hormones and the effect they have is starting to sink in.
And thanks SurgiM for the pointers. I've made notes, I have a list of em going to ask the doctor about and the pointers you've made are on the list I will ask. I'm pretty sure I also have endometriosis. I am now waiting for a referrel to a gyn/onc as they found pre-cancerous cells during the biopsy. I am hopeful this surgery is going to be straight forward.
SurgiM, thank you for sharing your experience with us. It does sound like you've been thru quite a lot. Thank you both for passing on your experience.
And thanks SurgiM for the pointers. I've made notes, I have a list of em going to ask the doctor about and the pointers you've made are on the list I will ask. I'm pretty sure I also have endometriosis. I am now waiting for a referrel to a gyn/onc as they found pre-cancerous cells during the biopsy. I am hopeful this surgery is going to be straight forward.
SurgiM, thank you for sharing your experience with us. It does sound like you've been thru quite a lot. Thank you both for passing on your experience.
I had my first round of endometriosis lasered out, and then the second round, with the hyst, exised. Both surgeries went over time. I did not take HRT for a while, but I take it now as I don't have adrenals and they are worried about bone loss. I go for regular checkups still.
I met BK (the pit guy) a couple of times... yeah, the pit stuff is related, but it is often hard to get the docs to believe it.
Man, SurgiM, you have been though the wringer.
I met BK (the pit guy) a couple of times... yeah, the pit stuff is related, but it is often hard to get the docs to believe it.
Man, SurgiM, you have been though the wringer.
A talked to a guy who had a patient handbook on pituitary out once. He had acromegaly and he seemed to think my history of menstrual related problems was important to bring up so I so wrote some about it for my last endocrinologist visit.
I didn't write all this, but I'll tell you gals. I spotted between periods too. In 2002, after an abnormal proliferative endometrial biopsy, I had a D&C, where I had 6 polyps removed. In 2005, I had a half dozen tumors removed, the largest being 7 cm was making me have to go to the bathroom it seemed like every five minutes. I had trouble sitting due to a lot of discomfort. Then, the situation was made emergent by that torqued hemorrhagic cyst, making every position uncomfortable. I went to same day gyn and they sent me for an ultrasound and then the ER. I didn't know I had severe endometriosis, and I asked them to try to save everything. They saved the reproductive organs, but tried to push some nasty depo-lupron really hard while I was recovering from the surgery. But I had family members who researched and they saw how bad a drug that was for ladies who were taking it.
The following year, I had to have a complete hysterectomy. I want to recommend, crwstar, if you have any endometriosis, ask them to excise, not laser burn. I did this for my hysterectomy, but was burned when I didn't know it with the first laporotomy. I later learned that it is better to cut than to burn, because the body treats the burns like foreign bodies and more scarring can happen. Adhesions are no fun. You also want a skilled surgeon who would check the cul-de-sac area that is harder to visualize for endometriosis and make sure they adequately bowel prep you, just in case.... endometriosis can also grow on and into them, though thankfully, I didn't have that.
I fared much better with the pain after my hysterectomy compared to after my first surgery, where they kept everything, although my bladder was a real trial since they cut a 2 cm chunk out of the wall of it. And if you have any endometriosis, know that HRT- the estrogen, even a tiny dose can potentially make microscopic endometrial implants that the surgeons miss grow and even can have the potential to change the implant to cancer. That is why I'm not taking any HRT.
I didn't write all this, but I'll tell you gals. I spotted between periods too. In 2002, after an abnormal proliferative endometrial biopsy, I had a D&C, where I had 6 polyps removed. In 2005, I had a half dozen tumors removed, the largest being 7 cm was making me have to go to the bathroom it seemed like every five minutes. I had trouble sitting due to a lot of discomfort. Then, the situation was made emergent by that torqued hemorrhagic cyst, making every position uncomfortable. I went to same day gyn and they sent me for an ultrasound and then the ER. I didn't know I had severe endometriosis, and I asked them to try to save everything. They saved the reproductive organs, but tried to push some nasty depo-lupron really hard while I was recovering from the surgery. But I had family members who researched and they saw how bad a drug that was for ladies who were taking it.
The following year, I had to have a complete hysterectomy. I want to recommend, crwstar, if you have any endometriosis, ask them to excise, not laser burn. I did this for my hysterectomy, but was burned when I didn't know it with the first laporotomy. I later learned that it is better to cut than to burn, because the body treats the burns like foreign bodies and more scarring can happen. Adhesions are no fun. You also want a skilled surgeon who would check the cul-de-sac area that is harder to visualize for endometriosis and make sure they adequately bowel prep you, just in case.... endometriosis can also grow on and into them, though thankfully, I didn't have that.
I fared much better with the pain after my hysterectomy compared to after my first surgery, where they kept everything, although my bladder was a real trial since they cut a 2 cm chunk out of the wall of it. And if you have any endometriosis, know that HRT- the estrogen, even a tiny dose can potentially make microscopic endometrial implants that the surgeons miss grow and even can have the potential to change the implant to cancer. That is why I'm not taking any HRT.
LH and FSH cause ovulation. Usually pit tumors do not effect those hormones, but more often effect the estrogen and testosterone, which is bad enough.
I had a polyp too. Weird. I am glad not to have pain anymore.
Yeah, well we shall see if anyone can figure it out...
I had a polyp too. Weird. I am glad not to have pain anymore.
Yeah, well we shall see if anyone can figure it out...
Thank you SurgiMenopause and rumpled for you replys ;-) So incredibly glad to hear that this was a good decision for both of you. It is encouraging to know good outcomes for others. It is quite amazing to me how endometriosis can be pretty much anywhere in the body - amazing wouldn't quite be the word more like how is that possible!?!
I am hopeful that this will be a good decision for me as well. I've had uterine bleeding since 1999 or before - Had a polyp removed in 2006 and the spotting stop but has returned in the last 9 months or so. I read somewhere that if you do not ovulate this can cause the lining of the uterus to not slough off and thus increase your risk of developing abnormal cells. What hormone is it that the pituitary sends to the ovary to ovulate? So if you have a pit tumor it can effect this......I'm totally rambling and probably not making sense. Truthfully, I am trying to make sense of all of this myself as I have way too many things going on with my body. I also have fibroids, cyst and something growing in my uterus. I'm looking forward to a lot less pain as my periods are horribly painful.
Rumpled I hope they find out why your pit is going wack a do.
I am hopeful that this will be a good decision for me as well. I've had uterine bleeding since 1999 or before - Had a polyp removed in 2006 and the spotting stop but has returned in the last 9 months or so. I read somewhere that if you do not ovulate this can cause the lining of the uterus to not slough off and thus increase your risk of developing abnormal cells. What hormone is it that the pituitary sends to the ovary to ovulate? So if you have a pit tumor it can effect this......I'm totally rambling and probably not making sense. Truthfully, I am trying to make sense of all of this myself as I have way too many things going on with my body. I also have fibroids, cyst and something growing in my uterus. I'm looking forward to a lot less pain as my periods are horribly painful.
Rumpled I hope they find out why your pit is going wack a do.
I got a hyst as well. Mine was after my pit surgery and after my adrenals were removed. Like SurgiM, I also had some problems with my uterus (probably not as severe) and I also had endometriosis, PCOS, fibroids, and kept having pre-cancerous pap smears. My path also showed that my lining was thick but in horrible shape with tunneling and all sorts of defects.
I feel much better since I got it done as there is a lot less pain... but since I have no adrenals as well, I have no alternate source of androgens and it has been a bit wild trying to get my hormones stable. I use a bio-identical patch, but I am still hot no matter the dose. My T goes from super high to super low for seemingly no reason as does my estradiol... I take DHEA since I cannot make it and at least that seems to be reasonably ok. My LH and FSH recently tanked with my eyes losing out and my ACTH going up - so while they cannot see a tumor on my MRIs, it seems that something is making my pit go wack a do.
All the women in my family needed hysts too - why, it varied. Both sides of the family, too.
I feel much better since I got it done as there is a lot less pain... but since I have no adrenals as well, I have no alternate source of androgens and it has been a bit wild trying to get my hormones stable. I use a bio-identical patch, but I am still hot no matter the dose. My T goes from super high to super low for seemingly no reason as does my estradiol... I take DHEA since I cannot make it and at least that seems to be reasonably ok. My LH and FSH recently tanked with my eyes losing out and my ACTH going up - so while they cannot see a tumor on my MRIs, it seems that something is making my pit go wack a do.
All the women in my family needed hysts too - why, it varied. Both sides of the family, too.
I have been diagnosed with a microadenoma of the pituitary as of Feb. of last year. However I don't know what kind it is. I am trying to find out.
I don't know if I've had improvements in regard to the tumor. I do have fewer migraines post hysterectomy and many not as severe (currently down to an average of 5 a month last I counted), and no more extremely painful periods, and no more endometrioma growing painfully in one ovary. (The year prior to the hysterectomy I had an emergency lap with torquing hemorrhagic cyst and also had a large fibroid pressing on my bladder from my uterus and they discovered severe endometriosis, which was also on my bladder, besides on my uterus, ligaments, etc).
My fsh is soaring, but no doctor seems concerned it is so far outside the normal range. I have osteopenia discovered the year following the surgery. I don't get a great deal of hot flashes, and had sweating while sleeping since at least kindergarten. I've got dry eyes more now. But it definitely was the best option for me to get that hysterectomy. They discovered my bladder was folded and stuck to my uterus & they had to be surgically separated.
I don't know if I've had improvements in regard to the tumor. I do have fewer migraines post hysterectomy and many not as severe (currently down to an average of 5 a month last I counted), and no more extremely painful periods, and no more endometrioma growing painfully in one ovary. (The year prior to the hysterectomy I had an emergency lap with torquing hemorrhagic cyst and also had a large fibroid pressing on my bladder from my uterus and they discovered severe endometriosis, which was also on my bladder, besides on my uterus, ligaments, etc).
My fsh is soaring, but no doctor seems concerned it is so far outside the normal range. I have osteopenia discovered the year following the surgery. I don't get a great deal of hot flashes, and had sweating while sleeping since at least kindergarten. I've got dry eyes more now. But it definitely was the best option for me to get that hysterectomy. They discovered my bladder was folded and stuck to my uterus & they had to be surgically separated.
Lol, I was typing so fast didn't even realize there was no question ;-)
If you have a pituitary tumor did you find that having the hysterectomy helped some of your symptoms?
Thanks,
crwstar
If you have a pituitary tumor did you find that having the hysterectomy helped some of your symptoms?
Thanks,
crwstar
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