Brain/Pituitary Tumors Community
I don't know what to do anymore
About This Community:

This patient support community is for discussions relating to Brain Tumors and Pituitary Tumors.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

I don't know what to do anymore

I was diagnosed with a Dandy-Walker malformation back in 2002. I first started with headaches which hasn't stopped since 2002. I maintain by taking pain meds. I have seen neurologists who refer me to neurosurgeons who tell me to go back to a neurologist. I have suffered 11 TIA's in the past 3 years. Each time I am losing more and more use of my left hand and my vision is getting worse. My question is: Should I expect things to get worse? Should I expect a major stroke? I can't get any answers.....
657231_tn?1390151580
You are on the patient forum. You may also want to post on the expert, aka, doctor, forum as well - in neurology.

I see you are near a major city, so have access to large hospitals, however, you have what is termed a "rare disease" so even there, no one may have the expertise you seek.

It would be best to be followed by doctors, not surgeons. Have you found papers on your disease and contacted them for guidance? Have you been seen by a neuro-opthomologist?

I will send you some information I found via pm.
Blank
Post a Comment
To
MedHelp Health Answers
Blank
Pain Tracker
Pain
Start Tracking Now
Recent Activity
296076_tn?1371338074
Blank
melimeli commented on melimeli's status
Aug 21
296076_tn?1371338074
Blank
melimeli So I've lost 28 lbs :) Comment
Aug 21
Avatar_f_tn
Blank
lynz300000 commented on life after brain tumo...
Aug 20
Top Cancer Answerers
657231_tn?1390151580
Blank
rumpled
Northern, NJ
Brain/Pituitary Tumors Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
Top Cancer Answerers
657231_tn?1390151580
Blank
rumpled
Northern, NJ