Brain/Pituitary Tumors Community
I don't know what to do anymore
About This Community:

This patient support community is for discussions relating to Brain Tumors and Pituitary Tumors.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

I don't know what to do anymore

I was diagnosed with a Dandy-Walker malformation back in 2002. I first started with headaches which hasn't stopped since 2002. I maintain by taking pain meds. I have seen neurologists who refer me to neurosurgeons who tell me to go back to a neurologist. I have suffered 11 TIA's in the past 3 years. Each time I am losing more and more use of my left hand and my vision is getting worse. My question is: Should I expect things to get worse? Should I expect a major stroke? I can't get any answers.....
657231_tn?1390151580
You are on the patient forum. You may also want to post on the expert, aka, doctor, forum as well - in neurology.

I see you are near a major city, so have access to large hospitals, however, you have what is termed a "rare disease" so even there, no one may have the expertise you seek.

It would be best to be followed by doctors, not surgeons. Have you found papers on your disease and contacted them for guidance? Have you been seen by a neuro-opthomologist?

I will send you some information I found via pm.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Brain/Pituitary Tumors Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
How to Silence Your Inner Critic an...
Apr 16 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eaters: How to Silence Yo...
Mar 26 by Roger Gould, M.D.Blank
1344197_tn?1392822771
Blank
Vaginal vs. Laparoscopic Hysterecto...
Feb 19 by J. Kyle Mathews, MD, DVMBlank
Top Cancer Answerers
657231_tn?1390151580
Blank
rumpled
Northern, NJ