Ideas on financial help to get help for pituitary/thyroid problems? I've reached the end of my rope.

[Blue727]

Hello All,
     I am hoping that all forum members could possibly give me some help, ideas or such on how to go about getting to a good pituitary/thyroid hospital, university or whatever, when I have no financial means.

I am a 30 year old male and have posted on this forum so many times, but I am yet to get to the bottom of my problems and I have almost reached my end of the rope.  I don't want to give up on life or anything, but I almost feel as if I have no choice anymore.  I am never going to find help when I don't have $15,000.00 to find help.  I have been to the Mayo Clinic, diagnosed with a possible pituitary microadenoma, but guaranteed by them that it is 100% not causing any of my problems.  My problems started years before I ever knew what a pituitary/thyroid/adrenal or anything was and I have almost every symptom associated with problems in those areas.  Then I go to the Mayo Clinic, have an MRI done and find out it's a possible pituitary microadenoma.  I go home and research the term and all the definition of a pituitary problem is missing, is a picture of me next to it.

Thanks for taking the time to read this!

[horselip]

Can you contact the National institutes of Health (NIH)? They have a very good pituitary program and they have fee waivers if you are low income. They can even arrange for transportation, room and board if this are issues as well.

Anpther option, I don't know what state u live in...but can you look into Obamacare? Again you may be able to get the cost of med insurance based on your income, which if low, might be subsidized.

Maybe these are options for you?

The sphenoid sinus is different from the sinuses behind our cheeks and forehead. Has a doctor looked at the steady fluid coming out of your nose and said it was your "sinuses" ?
Horselip

[sstango]

I've needed 2nd back and 4th neck surgery past 3 yrs from being attacked then car wreck hurt me worse-ct scan said screw in neck pressing on spinal canal in head making pituitary enlarged- now I'm passing out, nose running, now nose swollen every day an scabbing on bottom... I'm waiting on disability and at my wits end to cuz its pathetically sad all of out here suffering an prob could die if we don't get fixed and w no insurance we have to sit here and suffer- I cant even go to er an make them fix me cuz don't have back up money for car payment and place to live w no stairs (cant have stairs when have neck/back surgery cuz cant carry my poodle up stairs or go up stairs after back surgery-- I called UVA in Charlottesville- they have best pituitary docs it says and neuro surgeon told me to get new mri an ct scan of my head and neck asap- CT SCAN IS WHAT FOUND SCREW HITTING SPINAL CANAL AN PIT ENLARGED- YEAH GOOD QUESTION....WHERE DO U GET THE MONEY TO HAVE SURGERY- LIKE ME JUST APPLIED FOR DISABILITY IN AUG AND CONGRESSMAN HELPING ME MAKE THEM RUSH DISABILITY- MAYBE YOU SHOULD DO THE SAME- DISABILITY WILL PAY FOR YOUR SURGERY- IM SCARED I'LL BE DEAD BEFORE THEY HELP ME CUZ IM PASSING OUT- ITS SHAME WE HAVE TO SIT HERE SCARED W NO HELP- ID GET MRI AN CT SCAN AN GO SEE NEURO SURGEON- THATS WHAT NEURO TOLD ME AN APPLY FOR DISABILITY OR GO IN THE ER - ER CANT TURN YOU AWAY- JUST HAVE TO FILL OUYT A FINANCIAL AID PAPER- MY NOSE IS DRIPPING STEADLIY AND SWOLLEN- GUESS CUZ PITUITARY NEXT TO SPHNOUD SINUS- IM A ESS AN SCARED TO DEATH- 3 YRS IVE SAT HERE NEEDING BACK AND NECK SURGERY AN NOW PASSING OUT- GEE WHERE IS GOD FOR REAL? PRAYERS ARE W U ALL- HOPE I COULD HELP- THANKS SUSAN - EMAIL IS HRTAGLD4@YAHOOCOM CASE U DONT SEE ME ON HERE I LOST HOW TO GET HERE...LOL

[testdeprived]

i still wish i knew where to go. i dont.

[testdeprived]

oh man, how can i relate to everything you said in your post!!! mayo is supposed to be the BEST clinic ever, yet they cant see the obvious. i went to Robert wood johnson and saw  a pituitary specialist and he told me all those same things. its been almost a year since v i had my mri, and  i still have not found treatment. im not sure what else to do but im telling you that  i can relate to EVERYTHING you said in your post.

i self diagnosed myself with a pituitary tumor in 5 minutes, then my mri confirmed it, and they say its coincidences. doctors suckl.

[rumpled]

Why not go to a place that is better suited to treat pituitary tumors?

I got the same response from Mayo - I was told my pituitary tumor was not causing my issues, however, in the end, I had two pituitary tumors, and they both were causing a lot of problems. Mayo is a great place, but not for pituitary.

I would be glad they did the MRI, but I would find another institution for follow up - and perhaps that place will take your insurance.