Low TSH, Free T3 and T4 and many symptoms

Hello,
I am really confused as to what could be going on with my body.  Everytime my TSH, Free T3 and Free T4 are tested they are at the very bottom of the ranges and once the TSH was below the range.  Shouldn't that be an alert that something is not right.  What could that mean??          My symptoms are alot, but they come and go which is so weird.  For periods I will sweat profusely and then in a couple months it's gone, bad anxiety, depression, I can go days without food and actually gain wait and then when I eat I lose weight.  I'm shaky alot, diarhea (diarrhea) almost always, very debilitating headaches with most of the pain being in the center of my head just above my eyes and my eyes, pain behind eyes where it fills like someone is actually trying to push them out.  I did a saliva cortisol test that showed I am opposite of a normal person.  Instead of my cortisol rising in the morning it goes down and when night comes it goes up...this I believe is why I feel so good at night and can't wake up in the mornings.  My vision is also strange.  I feel like if I'm looking for someone (like in a gym), I have to scan everyone's faces before seeing them.  My eyes just don't seem to track right or move at the speed I'm trying to move them.  I was diagnosed with a possible pituitary microadenoma, but the doctors told me they were "100%" sure it wasn't causing any of my problems.  I had a test come back showing elevated Prolactin so it was tested 2 days later and it was fine, so the doctors said I'm fine.  I have had other odd tests for being a 30 year old (previously very athletic man) including low testosterone, low B-12 and high iron levels.  I was given shots of testosterone and B-12, but noticed nothing.  I have been on over 70 medications since 2003 and none of them have any real effect on me.  I have tried probably 30 anxiety/depression medications and didn't notice a thing.  They say you should wean yourself off or you'll have problems, but yet I don't.  I sometimes cannot get an erection and sometimes cannot maintain them.  I'm not sure what to think or go from here, but I would really love some feedback as I'm 30 and can't handle it anymore.  You would think they would just remove the tumor to see if it helps.  This all started after I broke my nose about 5 years ago.  I just went down hill after that.  Thanks for your input.

[Blue727]

I also cannot tolerate the heat or cold (my head shakes uncontrollably in the cold).  I get a tingly numb feeling on the whole left side of my head.  I touch it and I can't feel it.  That doesn't happen all the time, but quite a bit.  I get really dizzy upon standing.  I feel much better with my head propped up.  When I'm sitting, I need to prop my head on something, even in a car and it feels better.  Any suggestions?  I don't have health insurance and I really need to get better for my children.  Any knowledge of Universities, Colleges or Medical Facilities that would take my case on for me?

[rumpled]

Find a neuro-endocrinologist who will take care of the micro-adenoma that they say is not causing your issues, but for sure, is. If you get tested properly, you may get on the meds that you need and not need surgery - but some require surgery, so you need to know what kind it is. And they can do all sorts of things.

[sassy3265]

My name is Susan Neal Matousek...I have really low T4 levels and I hav gained weight, had issues with memory for years and now its the swelling...I have a very cautious endocrinologist..Im on Synthroid 85 to see if it will increase the T3???I need straight T3 why do they take so long to get it right?  I did have the tumor removed 5 years ago and now it is bigger than the one I removed...Im nervous....Why is it growing there..I need my hormones and my body to work painlessly....Digestion is a big problem too...
Is that odd ..do people have digestive issues too with these tumors?

[rumpled]

Yes digestive issues are pretty common.  I take T3 and T4 - a combo of both works pretty well with most post-op pituiiary - just straight T3 would make you too jittery.

Find another endo - you should not have another larger tumor there. Get treatment before it effects your eyes or cavernous sinus.

What type of tumor is it?

[myboysmom4]

Hey Blue, my TSH is also low with lower end T4 and T3 and my symptoms also come and go. Did you get an answer as to if that is common and why that is?

[LivingInHope]

According to one website, low TSH with low or normal T4 and T3 has the potential meaning of an illness that is nonthyroidal and a cause of a rare pituitary secondary hypothyroidism.  See PM.

[LivingInHope]

Have they done a dynamic MRI with and without contrast of your pituitary?  If not, you might want to ask your doctor for one- if they have a 3 Tesla MRI machine, those newer models give better detailed pictures than the older 1.5 Tesla MRI models.

[Blue727]

SurgiMenopause

When you said "has the potential meaning of an illness that is nonthyroidal and a cause of a rare pituitary secondary hypothyroidism", what are some of the illnesses that are mentioned?  Doesn't low but normal TSH, Free T3 and Free T4 usually point to a pituitary or hypothalmic disfunction?

To: myboysmom4
  I found out I have a 4mm non-functioning micro-adenoma on the right side of my head, but was told they were 100% sure it wasn't causing any of my symptoms.  I find it very unlikely that I happen to have all these symptoms that I have written about and talked to all my doctors about since 2004, then find out I have a pituitary microadenoma and then to look up pituitary microadenoma and see all the symptoms.  It is even more unlikely that anyone (even doctors) can be 100% sure on anything and that this microadenoma is not causing some if not all my problems.

[LivingInHope]

I was paraphrasing from a website.  See PM.