BRAIN/PITUITARY TUMORS COMMUNITY
MS and Macro Adenoma Tumors

MS and Macro Adenoma Tumors

I am a 44 year old woman, who has been living with RR MS for 14 years now.  Recently,I have been told that I have a 10 to 12 mm Macro Adenoma Tumor, I am wondering  the following: 1) If people living with MS have a higher insidence of having this particular type of tumor? 2) What is the normal treatment for such a tumor? and finally how do tumors of this size normal act? What can be expected in terms of symptoms?

Thank you,
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657231_tn?1329145883
Hello!
Those are good questions - the first is a very new one.
1) I have not heard or read that in my research. Most doctors will tell you it is idiopathic - of unknown source. A small number can be attributed to genetics in cases of disorders such as multiple endocrine neoplasias (there are several types). The incidence is pretty high almost amounting to one in every 5 people but I don't know what the incidence is for MS...

2. Normal treatment depends on the type of tumor. These tumors are likely benign, however, a good many of them are hormone secreting - and those that are not can still effect the hormones - so what they do is mess up your quality of life, emotions and some mess with things that need to be taken care of pronto (but docs tend to be silly and let people get really sick...).

So you need to get a lot of lab testing to figure out the type of tumor. Once you know the type, you will know if you can just take medications, or if you need surgery and/or radiation.

Surgery can appear to be scary but they go through your nose - no scar! I had it done in 2004.

Symptoms vary on type and size - yours is large enough to start impacting the optic chasm if it went up that high (some grow down), and there are emotional, if you are female, period issues, libido, mood, weight - you name it - it can happen.

Make sure your endo is a neuro-endo, one that treats pituitary disorders and get copies of everything to keep on top of things.
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