Aa
A
A
Close
4781625 tn?1359091306
My mind is puzzling me!
I need your help. In 1977, I had a brother that died from a pituitary disease that did not produce salt. This is the story that my dad told me. My brother was 1 years old when he died. My dad could not remember the name of the disease. My mom died 8 years after my brother so I could not ask her. I tried google and had no luck. If you have heard of this disease, please give me the name of it so that I can make the rest of my family aware. I thank you in advance.
Cancel
4 Answers
4 Answers
Page 1 of 1
657231 tn?1453836403
It could be a couple of things. Adrenal Insufficiency from a pituitary tumor causing low ACTH also called Secondary Addison's (pituitary source) and he died from an acute crisis. A crisis happens when sodium drops and most often potassium spikes and you can die when that happens. There could have also had been a problem with the renin/aldosteone hormones - they actually regulate sodium and potassium.  

If the Addison's was adrenal source, that can run in the family as that is more often an auto-immune issue. Doctor's don't feel that pituitary lesions run in families but I have to say that at least in some families that I know, it can happen but it is not common.

If you have a lot of auto-immune disease running in your family, your doctor should be made aware. As a family member you should be able to get a copy of his death certificate to see his cause of death (although at times that information is not always correct). I am sorry for your loss. I am only a patient myself - but this is my best guess and having almost died of low sodium myself - I have a pretty good idea this is Addison's or related.
Comment
Cancel
657231 tn?1453836403
Comment
Comment
Submit Comment
4781625 tn?1359091306
Thank you so much and I will get his death certificate. I hope that you have stabalized and are able to keep your sodium levels under control. I will post what the certificate said and I would like for you to keep us posted on your illness as well.
Comment
Cancel
4781625 tn?1359091306
Comment
Comment
Submit Comment
657231 tn?1453836403
I had my adrenals removed due to Cushing's disease which is too much cortisol. In my case I had low renin as well (which caused low sodium) which is not the norm with high cortisol, but can happen.

I take a medication to retain sodium as well as salt pills daily and salt my food in ways that may horrify most people that have to avoid salt but I need it! In that way, I keep my sodium normal. During the summer and if I happen to sweat a lot, I have to increase sodium intake, like anyone with a salt wasting disease.

I hope you get useful information off the certificate. I do hope that you update us.
Comment
Cancel
657231 tn?1453836403
Comment
Comment
Submit Comment
657231 tn?1453836403
It could also have been a form of congenital adrenal hyperplasia as well... just thought about that. CAH.
Comment
Cancel
657231 tn?1453836403
Comment
Comment
Submit Comment
Your Answer
4781625 tn?1359091306
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Blank
Pain Tracker
Pain
Start Tracking Now
Recent Activity
296076 tn?1371338074
Blank
melimeli commented on mhv's status
3 hrs ago
296076 tn?1371338074
Blank
melimeli commented on Belle313's status
4 hrs ago
296076 tn?1371338074
Blank
melimeli Thank the Lord for Fridays! Comment
8 hrs ago
Top Cancer Answerers
657231 tn?1453836403
Blank
rumpled
Northern, NJ
Brain/Pituitary Tumors Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Cancer Answerers
657231 tn?1453836403
Blank
rumpled
Northern, NJ