Brain/Pituitary Tumors Community
PTC, csf leak and possible shunt
About This Community:

This patient support community is for discussions relating to Brain Tumors and Pituitary Tumors.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

PTC, csf leak and possible shunt

Hey all
I have a complicated history and am rethinking everything right now.
I had t/p surgery in Jan 2006. Then I had a csf leak from my skull base that was diagnosed and repaired a few years later. Then my symptoms came back in 2010. It ended up that I had yet another csf leak and had another repair in July 2010.  
During that surgery they placed a lumbar drain, used fluorscein (sp?) and it was decided that I had PTC (pseudo tumor cerebri). So I was placed on a medication called diamox to try and lower my intracranial pressure. Ends up that I was allergic to the sulfa in that med so I was switched to Topamax. During the time since the 2010 surgery, no one has been "tracking" my pressure and then to top it off, I began leaking yet again in 2011 out of my left ear very intermittently. I was taken off of the Topamax when the leak began. It has never been confirmed that this leak is csf as we have not been able to get a sample. However, I do have spinal headaches like I had with the two previous leaks.

i've had a few apps with an otologist. A CT scan was done of the temporal bone over my ear that is leaking. It seems that I have very little or no bone there so the dura is exposed.  When I had testing for the other csfleaks it was brought up that my skull base is very thin and that I have something called dehiscence. So this thinning and lack of bone thing seems to something else that is going on. Like the skull base, the area can be patched and there is little risk to my hearing. In a few weeks I will be seeing a neurosurgeon about the pressure issue and one topic to be discussed is insertion of a shunt.

I need help formulating my questions and need advice. If there is anyone else that has had leaks, PTC,  bone thinning or shunt placement please get in touch or comment if you want to.

Thanks!
Horselip
657231_tn?1390151580
I don't have any experience - but I wish you luck! I have the sulfa issue too...
Blank
Post a Comment
To
MedHelp Health Answers
Blank
Pain Tracker
Pain
Start Tracking Now
Recent Activity
296076_tn?1371338074
Blank
melimeli commented on melimeli's status
22 hrs ago
296076_tn?1371338074
Blank
melimeli So I've lost 28 lbs :) Comment
22 hrs ago
Avatar_f_tn
Blank
lynz300000 commented on life after brain tumo...
Aug 20
Top Cancer Answerers
657231_tn?1390151580
Blank
rumpled
Northern, NJ
Brain/Pituitary Tumors Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
Top Cancer Answerers
657231_tn?1390151580
Blank
rumpled
Northern, NJ