Persitant Head Pain

[PinkMrs]

I was diagnosed n February with a Pituitary Adenoma it has ruptured a small bit but I was informed that none of the tumore is leakin into my brain fluids or something like that.  I elected to do the medicine treatment instead of surgery since my tumor is not that big but also not very small.  I 've have been on bromocriptine for about 2 1/2 months then it was switched to cabergoline which i only have to take twice a week.  The pain in my head had stopped for a while but now since the last  month i have been having the same stabbing pain in my head that i used to have.  It is extremely painful and makes me jump.  What can be causing the pain to start again?  I was told that the pain shouldnt be from the tumor that something else may be wrong.  In the last two years I have gained weight also.  And barely had a menstrel cycle.

[rumpled]

Whoa... if you have a doctor that has told you that you a ruptured pituitary tumor aka pituitary apoplexy, then you need to find a new, experienced doctor right away.

You need to get evaluated to see what has happened - and if you need replacement hormones.

Find a neuro-endo to evaluate you. Have you ever seen a neuro-opthomologist? That may help too.

[horselip]

Hi-
So you had these before and they went away and then came back?

If an adenoma has ruptured I would strongly advocate that you see a neurosurgeon and seriously think about surgery. It also sounds like your hormones are off and you need to be working with a neuroendocrinologist. The pain could be from headaches that are not connected to this adenoma and you are having migraines or something like that. But they could also be from the cabergoline or hormonal problems which is sound like you have.

But it could also be due to the adenoma itself.It might be that it is pressing on a nerve. I have headaches too. Mine began after a pituitary cyst that I had ruptured. I did not have a constant headaches before that.

There are many treatments for headaches. I am on meds that help quite a bit. My neuroendo referred me toI go to a pain management doctor. He told me that many pituitary patients suffer from head pain.

This is treatable but you need to take charge and get yourself some better doctors.

Hoselip