Pineal Cyst

Hi!  

I was wondering if anyone could offer me and input on what I have going on....

I have had an MRI & CT scan done that shows I have a 12 mm cyst on my Pineal Gland. It says calcification is noted along the periphery and a hypoattenuating sedimentation level along the dependent aspect is noted. It goes on to say..Intracystic acute hemorrhagic product versus mineralization.  

So I have done a little research about the Pineal Gland and it seems like it is a pretty common type of cyst. But I cant help but be concerned when I am told that I have a cyst on my brain.

I do have symptoms, the biggest being headaches & confusion. Has anyone else had something similar to this? And if so, how was it treated?

I have had one appt w/ a Neurosurgeon, he of course said my symptoms were not from the cyst and said that it is common for a woman my age (26) to have headaches...I said everyday for the past 4 months?!?!  I have another appt in a week at Barnes in St Louis.  I just want a dr to take this seriously.  I dont want to end up addicted to prescription pills by the time I am 30!

thank you for any help/input!

[rumpled]

I would find a doctor - most likely a neuro-endocrinologist to test your hormones and your melatonin levels. You are talking about headaches (and yes, tiny lesions can cause them so don't go to that guy for surgery - he is out of his league) but not sleep issues and that would be an issue too. You want some one experienced and at least half-way decent. The surgeon should be a skull-base surgeon.

I would also go see a neuro-opthamologist so you can get a good eye check and visual fields.

The cyst can be removed, if necessary via surgery using your nostril as the place to go in. I had a pituitary tumor removed that way and your gland is behind that.

There are other posts from others too with the same cyst.

[katwick]

I am a 33yr female.  I had a pineal cyst 2.1cm x 1.8cm.  I suffered for at least 10years with headaches and migraines.  about 5 years ago i started having bad nausea and sleep issues. 1 year ago i started having numbness in my lower limbs and neurological confusion.  

I got an MRI and found the pineal cyst but was told it was not causing my symptoms by a couple of doctors.  I even went to the Mayo Clinic and they told me it wasn't causing my symptoms.

I found the Skull Base Institute in LA and i made an appointment.  I had endoscopic brain surgery 29 days ago to remove the Pineal cyst.  All of my symptoms are now gone.  I used to take 30-50 pain pills a week, and now i take none. No pain, NO headaches, No more nausea.

My pineal cyst was causing all my migraines and symptoms and within 2 days of having the cyst removed, all my symptoms were gone.

The endoscopic brain surgery was minimally invasive and recovery took two weeks, two days in hospital.

I read a lot of so called experts saying pineal cyst don't cause symptoms but i know for sure they can and they do cause symptoms.

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bump