Brain/Pituitary Tumors Community
Pituitary tumors genetic?
About This Community:

This patient support community is for discussions relating to Brain Tumors and Pituitary Tumors.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Pituitary tumors genetic?

Hi all. I was diagnosed last year with a pituitary microadenoma. I just found out this week that I have an uncle who had surgery 8 weeks ago on a large pituitary tumor. Its been removed, he had bad headaches for 5 weeks and is now back to work and doing well. I'm sure this questions been asked before but in the archives I couldn't find anything. In your own experience and research have you found that there is a genetic component to pituitary tumors....do they run in families like aneurysms can?

Thanks for your replys.
Related Discussions
5 Comments Post a Comment
Blank
657231_tn?1390151580
I know of families that have them (a father and two children, two sisters) and all, but oddly, if you ask most doctors, they will say no.

I look at my grandmother's picture and pick out characteristics that make me think she had one... and I had a couple...

One doctor was asked this at a conference that I attended recently. He said that it has not been studied well. He said said there has to be some sort of genetic component anyway that makes one person get it and not another person, and he has seen the trend in a a family or two, but it is not something that seems to run in a lot of families that he has seen as yet.
Blank
Avatar_f_tn
Thanks rumpled - It will be a great day when much more research is done and out for public knowledge. I was so glad to hear that my uncle had a good outcome with his surgery. Strangely enough, I experienced some relief when I found out I wasn't the only one in my family who has one of these. It gives me answers that docs haven't been able to as of yet.

Have fun with your kittehs ;-)
Blank
657231_tn?1390151580
I am glad to hear your uncle had a good outcome!
I heard my cousin's tumor (CNS lymphoma) has shrunk, but he still remains with a lot of issues.
The kittehs are super active, very happy, and at the moment, chasing each other around... *sigh*. Thanks!
Blank
Avatar_m_tn
How big are ur tumor if you dont mind me asking? I had small ones and just had another mri and they have grown to 9mm!! trying to get in to a doc because i feel like im only going down hill
Blank
657231_tn?1390151580
An MRI is only part of the diagnosis - you need to have lab testing to determine the type of the tumor. When that is done, your doctor can determine the best treatment(s) for the lesion - some react to medications, some need surgery etc.

If it is growing rather rapidly, I hope they are not waiting. Are you at a pituitary center and are  you being treated by pituitary doctors - aka neuro-endocrinolist? This is very important. Some mis-informed doctors may not treat you in time. Get informed and get to the proper doctor - at a university or larger hospital. You may have to travel. Get copies of your records and send them.
Blank
Post a Comment
To
MedHelp Health Answers
Blank
Pain Tracker
Pain
Start Tracking Now
Recent Activity
296076_tn?1371338074
Blank
melimeli commented on melimeli's status
Aug 21
296076_tn?1371338074
Blank
melimeli So I've lost 28 lbs :) Comment
Aug 21
Avatar_f_tn
Blank
lynz300000 commented on life after brain tumo...
Aug 20
Top Cancer Answerers
657231_tn?1390151580
Blank
rumpled
Northern, NJ
Brain/Pituitary Tumors Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
Top Cancer Answerers
657231_tn?1390151580
Blank
rumpled
Northern, NJ