I just have a couple of questions regarding a tiny cyst on my pituitary. It is around 2 mm (I know, tiiiny!) It has been there for at least 3 years. But I have symptoms of adrenal insufficiency (my adrenals are fine) therefore I am on steroid replacement. My thyroid swings from hypo to hyper pretty much all the time. I also suffer from incredibly severe headaches and migraines (daily). I also have increased thirst (but no diabetes insipidus).
It is either a regular cyst or Rathke's cleft cyst.
Size is not the most important thing. Where it sits within your gland in the"sella" region is important. Also, how "off" your hormones are, and how you feel are paramount too.
Rathke's tend to be wedged right in-between the two lobes of the pituitary gland.People who have them are are born with them.Yet the majority of folks with Rathke's do not have symptoms. It sounds like you are one of the folks who has symptoms if you have a Rathke's.
Your hormones could be out of Whack because of what area your Rathke's pushes on. I had low Growth hormone, low thyroid and high prolactin way before I had surgery. Rathkes are also notorious for causing headaches.
And yes, it is most likely operable via a surgery that has been done to thousands and thousands of people.. Whether you push for surgery or not is something that only you can decide.
The decision to have surgery or not requires you to understand your hormonal status. Many opt to have their hormones assessed and corrected before considering surgery...If you are able to get your symptoms down this way then your doctors might be able to take a wait and see approach with regular MRIs and hormonal correction.
A pituitary center with a good neuro-endo.and neurosurgeon is where you need to go to be assessed, treated and advised. Educate yourself too. All pituitary docs are NOT created equal which is a sad truth. Run if your doctors say that a small cyst could not cause your hormones to be off.This is simply not true yet very common..
I would suggest that you find a pituitary center and let them suggest surgeons. Not just any surgeon will do - you need experienced surgeons in pituitary and while some surgeons will take it on, you really do need the pituitary experience.
Having surgery may or may not (likely not) change the replacements. The better the surgeon, IMHO, the less the replacements but a lot can depend on the lesion as well.
Your cyst is located between the front and back lobes of the pituitary. Did they give you a size?
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