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919623 tn?1258154330

TSH staying low-Tumor?

Previously I was told that I just might have some thyroid issues and there was an error in antibody readings they gave me. Yesterday, I was told by my PCP, that he thinks I have a Pituitary tumor. My readings are as follows:
TSH - .24
Free T3 - 5.1                                     (2.77-5.27)  
Free T4 - .90                                     (0.78-2.19)              
LH - 57.2                                          (14.0-95.6 Midcycle)
Prolactin - 17.2                                 (2.8-26)
Thyrobglob AB - .9                            (0.0-14.4)
TPO AB <0.3                                    (0.0-3.9)
TSH Receptor AB - 7                         (0-9)

He has repeated my tests 3 times and each time my TSH has been low, and each time my T3 & T4 have been normal which is why he says the tumor. I have an MRI on Oct 2nd and I'm worried. I have been sick for 3 years, I was even in Congestive Heart Failure when they first realized I was really sick. Then they got that under control but I have not been well since! I can't tell you how many times, I've had strep throat, then virus after virus, I've been on more antibiotics than a person should be and it scares me!!! I have lost over 45 pounds and I feel like I'm on pins and needles all the time! I have to tell myself to relax because if I don't pay attention to myself, I find my head, down into my shoulders and the muscles so tense that I get horrible headaches! I'm stressed all the time and I cannot stand the cold!!!  The girls at work will laugh at me becasue it will be 73 degrees in the office and I'm absolutely FREEZING!!!  I don't get it!!  They put me on a cancer medicine that helps with nausea and vomiting because I'm always sick to my stomach! It helps but doesn't make it go away!  I can barely get my body rolling these days~I'm just exhausted in all areas, emotional, physical, you name it, I'm wiped out! I asked the doctor about this tumor and what to expect and he said radiation and surgery. His office is setting up an appointment for me to meet the endocrinologist.  I've read several of your entries and I have to say, I'm really nervous. My boyfriend tells me to stop my unecessary worrying, but is it unecessary?  I don't think radiation and surgery is uneccessary! Can you shed some light on me please???
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Avatar universal
Can't you just stick with the lyme doc and get treated - so you can just get better via treatment for that and resolve the issues that can be resolved - as for the docs that are giving you a hard time, time to doc shop.
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Avatar universal
So we are getting into the winter months, its getting colder obviously.

Since it started getting colder I did notice that while outside my hands will turn a light bluish color but not only that I get these "highlighted" looking spots on my hands. They appear orange in color or more of a high area of skin usually rounded in shape. Once I get inside though It seems to go away.
My hands and feet still will get cold while inside, even at times when my core (chest abdomen) feel like they are on fire from all the heat flushing I get.

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Avatar universal
well
i have already seen a Lyme Specialist he diagnosed me with Chronic Lyme. The problem is other doctors and specialties such as endocrinology, neurology, and even my own primary care doctor wont acknowledge it. I show them the labs done. Western Blot showing antibodies, bloor smear showing bacteria attached to my red blood cells. None of them can give an answer but none of them want to even do a work up of Lyme on me. Its just making wonder if it actually is Lyme or what or maybe these doctors I see are pretty lost.
My doctor does not believe its Lyme because I havent been to the East coast, remember being bitten by a tick, and my ELISA lab was negative. So I dont know If im having cross reactions with anything else.
Its just a touchy subject so Ill sit beside Lyme diagnosis, but I am keeping an open mind for other possibilities you know?

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Avatar universal
I had a co-worker with lyme and it caused sleep issues and all sorts of weird things including narcolepsy.

What about seeing a lyme specialist? The tests are just so unreliable. (or  you already have one)

Wonder if the lyme is really at the base of all if this now...
Helpful - 0
Avatar universal
Quest Labs*
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Avatar universal
Sleep Study Neurologist - Says I do not have sleep apnea, but wants to check me for Narcolepsy because my "sleep paralysis" and always fatigued i guess are early signs. So I go back in for another night stay, then the following day have to stay and take naps throughout day.

2nd Opinion Neurologist - Finally got to see this doctor. Though she wants to review my full medical history so I gave her my records which date back to 2005 of symptoms. She said for sure she needs a Nerve Conduction Study done for the decreased sensation to pain I have in my foot as well as tops of hands and back. Follow up for results for that will be about 1 month +.

My primary doctor - we did a quick run over of my symptoms again. He examined my back for the back pain and muscle spasms I have. Scheduled for physical therapy to try and help relieve some of the muscle spasms in the mid and upper back. He noted that so far the only official diagnosis I have had is from the Lyme doctor I seen. I asked him if he could do a Lyme western blot again through the lab he uses because we got into it about Igenex Labs awhile back. He said yes he could see about ordering that he needed to talk with lab tech first. I went in to get blood drawn and I dont think he ordered that one I asked for but ordered either a Lyme PCR or the Multiplex PCR.
Has anyone here had that done before? what are my chances actually hitting on that. I hit Negative on the ELISA test, I hit positive and IND on quite a few bands on the Lyme Western Blot. Since Im on antibiotics I would have a good chance of the lab detecting dead bB bacteria wouldnt I? Should be pretty specific. I think itll be Qwest Labs that does it not sure.
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