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765439 tn?1292960414

WHAT AM I SUPPOSED TO DO NOW??!?!?!?!?!!?!/!?!!?!?

1.5 years ago i was diagnosed with a pituitary tumor, because  i have so many symptoms that make me feel horrible everyday. i got my followup mri a week ago o na 3t machine with dynamic contrast, and this mri says  i have no tumor. im so frustrated now, i feel like crap, and now the only answer i had was gone.

im guessing i should cancel my neuro opto appointment on the 14th?
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1462139 tn?1286589747
Hi testdeprived I am going exactly through the same situation as you are. I am also super frustrated with my condition. I would like to exchange some information with you about this condition.
Helpful - 0
875426 tn?1325528416
If you experience what I have, a larger tumor that they still consider small and is not affecting any significant hormones (if any at all), does not mean they will do surgery- I believe they feel the risk outweighs the benefit unless the "incidentaloma" is affecting vision or something else they feel is a big enough threat to warrant surgery.  

I don't think it's totally crazy to hope you can find out why you feel so crummy, even that something will grow so you will be taken seriously- though I imagine if you thought about it you wouldn't want to potentially feel even worse than you already do with a larger tumor.  

But I do know too the mind is very powerful and can cause a lot of very real and significant symptoms, including diarrhea, lack of appetite, nausea, not being able to concentrate well, stress headaches, and a lack of enjoyment of things.  Believe me, I know.

I've been praying for you, test deprived and plan to continue.  

First, let me preface my answers with responding to your last statement.  God does not enjoy inflicting pain on anyone and you are right, He does have the power to heal you.

Now in response to your questions:

1.  God does not desire any to perish, but that all would come to a knowledge of the truth and receive His only Son and His great sacrifice on the cross for sins against God so you could be reconciled with Him.  He brings people to the end of themselves so they will look to Him- their only real hope.  

In the believer, God uses affliction to refine them, to learn His decrees and His Word and to become more like our Saviour.

2.  There are a lot of people in churches holding out promises of healing if you just buy this little prayer cloth or just have enough faith, etc..  God does heal people when He chooses, and the effective prayer of a righteous man availeth much, but on this earth, He doesn't always choose to.  He has His own purposes for His glory in each life.  I would not recommend going to any church where they promise healing, because God is the Great Physician and it is in His hand to heal or not.  If a person is a believer, they know that when salvation is complete is in heaven, we will be given new bodies, unaffected by the curse of sin- so if God chooses to allow suffering in our lives now, we know it is very temporary, because this life is short.
Helpful - 0
765439 tn?1292960414
well im mailing the old disk to saint barnnabas so they can write a new report. then  iwill take everything to the neuro endo. i just know te neuro endo will say....you have no tumor,so youre fine,and i cant help you. i am lsot right now..back at square 1. i am not fine, i am so unhealthy and noone will help mee. i struggle everyday convincing myself that this is not in my imagination. that this is not psychological. i experience no anxietyy or depression APART from the anxiety and depression of being so unhealthy. these symptoms brought those on.

i just have noa nswers and i just want to ry. a 21 year old male should not have to go through this =(

every new normal test makes me cry some more. i was hoping the tumor grew. that may sound nuts to you,but iw as hoping this tumor would end all my suffering. that if it grew to 4mm then doctors might think removing it would be the answer...and then maybe by a miracle of god, if they removed it, i would feel like me again!

i just want to enjoy life..i want to be able to concetrate i nschool, to enjoy walking my dog shane, to have a girlfriend,and enjoy things. today driving to school, i barely made it. i had to rush to the toilet where i had diarrhea. this is odd cause i havent eaten anything ina  few days due to chroni nausea being at its worst,and me having headaches where i had to go to bed early also.

im jsut lost,onfused,and so sick of being sick

pray to god for me surgi.

i meant to ask yout wo questions.

1-why does god do this?
2-what are your thoughts on going to a hurch to get healed? do you beleive in it? nd where do i find these things?

i beleive god has the power to heal me,but he likes seeing me suffer
Helpful - 0
875426 tn?1325528416
Now that you have the un-biased view, giving your old films to compare seems like a next move you'll want to take- you might bring it to your neuro-endocrinologist appointment for them to take a look and show to the radiologist they work with for an opinon on it?
Helpful - 0
765439 tn?1292960414
well its a neuro ENDOCRONOLOGIST. byt  now im mroe confused than ever

my primary care doctor called me, and said it was a normal mri...but i looked at my mri report and it says that a small microadenoma COULD NOT BE RULED OUT. i asked the primary about this(the secretary) and they said  ishould send my old mri to be compared with the new one...and  i might still have one??

i just dont know. the only thing

unremarkable  pre and post contrast  brain...which means it mysteriously dissapeared.

BUT!!!!!!!!!!!!!!!!!!!!!!1

they have this next..
a small underlying microadenoma can not be ruled out.

the thing with me is i didnt have my old films compared with my new ones. i didnt want a bias. i wanted a fresh slate. i doubt comparing would help if the new ones clear..

all i know is i feel horribly on a daily basis.
Helpful - 0
Avatar universal
I would keep the neurology appointment. Maybe it will help you find some answers. I don't see my neurologist for my pituitary tumor anyway  - she sent me to an endo doc, so the fact that it's gone shouldn't keep you from going to see one. Unless it's a neuroSURGEON, I guess, since you no longer have a pituitary tumor for them to take out.
Helpful - 0
765439 tn?1292960414
im panicing here. why did the mod remove my last pot? cant they see im i ndistress?
Helpful - 0
765439 tn?1292960414
im lost and confused help!!!!!!!!!
Helpful - 0
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