Aa
A
A
Close
1632656 tn?1310696871
possible Cushing's
I need someone's opinion,, please. Ok,, I had to take a Dex test because my Cortisol level was high,, 26.4 in a fasting state at 8AM . I suppressed super low I guess at barely 1.5. So the Endo I know is going to say I dont have Cushing's , even though my Primary thinks I do. So ,, what does this mean to have an abnormal suppression response,, the fact that it went extra low?? Im so confused.
Cancel
85 Answers
Page 5 of 5
657231 tn?1453836403
Yeah - the whole sleep issue with cortisol is bad. I used to bruise badly with that never mind anything else.

Lolly - gee, I hope it was not virus, but she took meds to help her have more energy as cortisol tends to make one very fatigued. However like any med, there are drawbacks.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
Nah no Virus,, jus this stupid disease making it harder for my body to fight other crap off lol ,, I get to see my new endo on May 27 lmao!! geez they didnt have to rush on my account ;) lol
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
That is actually not to bad of a wait - I had had longer ones, sadly...
Keep us posted.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
well,, I think the downside to stimulants with this disease is that they make depression worse over time :(........... I was great in the beginning but started to get depression as time went on,, and I only lost a teeny bit of weight!!! the doctor was surprised I only lost 8 pounds lol They do help with the dreaded lack of energy but only fer a bit,, that part starts wearing off,,,, dunno,,, hope my endo comes up with something this month,, this is truly annoying,,,, hope you all are feelin well!!!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
I did not take that med, but almost anything I did try when my disease was active did not work as my body tried to thwart it. You kinda have to get rid of the disease.

It is great that you were able to lose some weight, some never can. Hope your endo comes up with a treatment plan for the underlying disease.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
Yeah even though the few pounds lost was nothing compared to the 45 pounds gained lol,,, nothing I do will make any more weight budge,, - sigh-..... I think it is hard for the rest of the world to understand because we dont look particulary sick, you know?? they just think we are over eating and or lazy ,, not tired,, I have been sleepimng from 12, am to 2 pm,, Ive never been able to sleep like this before,,, ugh, I cant wait to get this thing out of me to be honest lol,,, how are you feeling?
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
One more question,, do you know if the lap band helps people like us??? some one mentioned it to me,, but Im not sure if thats a viable option.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
I know a couple who had weight loss surgery - alas, it will not work either. The weight is a symptom, not something in of itself if that makes sense... and  yes, it appears like like normal weight to everyone else, but it is not.

I used to get weight loss video presents *sigh* so I know...

You have find a good doctor to help you ...

I am waiting for a call ick!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
OMG people really sent weight loss videos??? Id kill someone lol Yeah I get all the chubby jokes round here,, no one gets it. I thought as much bout the lap band as I hardly eat anyway ,, I hope your call doesnt have too much bad info,, I know how that goes.... good luck and Im here if you need to vent.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
Yes  - really! They were presents for birthday or the holiday - even weight loss books... it was just ducky... my mom and my girlfriends too. Heck, no one really understands.

I am waiting to hear surgery vs radiation... I am hoping surgery...
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
I hope you got the news you wanted. Ugh,, I woulda killed my friends lol... yeah My tummy looks 6 months prego to me right now,, and Im all swolen in my legs and ankles too lol.. I have to laugh Or I will go nuts. Well My appointment is coming up,,, I have a question,, I am sure I have Cushing's either Adrenal or Pituitary I dont know. I have done enough research now to know,, 62 pond weight gain ( even in pregnacy) in 4 months isnt normal,, and 45 pounds in 6 months with no change in diet isnt normal,, that combined with my stupid hump on my back and high cortisol says something lol,,, never had high sugar before,, now 8 months later I do as well as high lipids and low calcium and protein,, this dude better listen Or Ill scream lol; exhausting and annoying road eh??? how did ya do it?? Ill keep ya posted!!! keep me in the loop as well!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
Be prepared - a lot of docs will blame you, your habits (even if they have not changed, they will say you are lying) etc. etc. If you can, bring a person to vouch for your eating habits etc. After a while one doc just kept asking my husband how much I ate, drank if I did any drugs and i was hey! I am sitting HERE!

I had to travel to an expert. Take pictures to show the changes.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
Yeah,, I kinda gathered that from the way the Endo last time spoke to me,,,, seriously,, they are the experts why dont they get it?????
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
I am researching right now,, but could I have high Cortisol simply from being overweight??? the last Endo tried saying that,,, she said thats why I have this buffalo hump ,, I am not morbidly  overweight,, about 50 pounds supposably for my height,, but still,,, I was wondering that,, I cant find anything that says that,, It all says what my primary doc says,, cushings,,, exhausting I swear ;(
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
Go be a hump hunter - we all are. Check out people. Check out overweight people when you are out and about - how many have humps? Even on TV when you see those shows where the people are huge - they don't have purple stretch marks and buffalo humps...

But it does mean that endo does not know a thing about Cushing's and you are better off with a doctor who has a clue. She cannot identify the disease so she cannot test for it.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
lmao!!!!! I love your sense of humour woman lol,,, yeah My boyfriend and I were just saying that same thing!!!!!  he says he see's peiople way bigger than me and no humps,,, I knew it ,, I had this even when I was 40 pounds lighter,,, thats what actually started this whole thing,, I thought I had a tumour or something,, all x rays were negative and my spine is strait,, thats how my Primary kinda knew something was up,,,, I see my new Endo in 1 week,, Ill keep yainformed,,, I hope your feelin well lady ,, your in my thoughts.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
Ok,, I have a question ,,lol are you surprised??? I went to the ER cause I have had a menses for almost 2 weeks now,,, with no hope of stopping,,, I know most with Cushings dont even have a cycle wich is how I used to be,, now it wont stop,, they checked me and everything was fine but a tiny fibroid tumour on the outside of my uterus,, they said its normal in women in theyre 30's,, so,, I am on Birth control,, could thnat be messing with this Cushings,,, Im on ortho tri cycline low,,,, should I talk to my endo bout this and is Birth control bad for Cushings????
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
BCP binds free cortisol so now any testing like urine or saliva will be lower even though it should be higher - they should test the cortisol binding globulin but most do not.

It is not that the BCP is bad for Cushing's - it just does not help... I had fibroids too... as well as a mess of other stuff...
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
Yeah I was reading that some doctors want you to stop taking them for testing,, no problem there lol Some say they make cortisol higher as well,, but I had this hump and other stuff years prior to the pill,, so they better not be going there with that one ;) We have alot of the same issues I see,,, well I guess we take it day by day huh?? lol hope your doin ok lady!!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
I just read in a medical paper that estrogen causes higher readings... my doc said lower so now I am confused... just goes to show that you have to do research!!! There is a bunch of medications that interfere... I was told to go off them too.

A friend of mine is testing and her doc is jerking her around... it is no fun.

Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
Yeah I heard that Estrogen does indeed cause slightly elevated readings,,, I was told that since Im on a low dose pill It shouldnt interfere though,,, I hate the whole this Doc says one thing and another Doc another thing lol dont they read the same research findings?? lol guess golf is more important ;) ..... It is so much easier to blame it on the weight ya know,,, tell your friend I feel her pain,,, I keep getting told by my primary she feels I have it and Endos just want me to consume 1300 calories and work out for 2 hours a day lol on to the next test lol I have a question??? ..... would it be wrong to keep taking my pill for the slightly elevated possibility so they will fix me faster??? for some reason you have to have every symptom for them to take you seriously,,,,,my Cortisol was 127 at 8 am in fasting,, how high is that really??? this stupid hump needs to go away allready lol my spine is perfectly straight under it and Im heavy at 200 but not morbid yet,, I think they want me heavier ,,, ; sigh;.....luckily I am at a slow down with my weight gain,, it does this ,,,  7 pond weight gain a week for a while then a few pound lost then up again lol its my fat yo yo,,, If I dont follow atkins and excersise( which kills me)) I gain like gangbusters,,, I know you heard this story before lol,,, so pill or no pill??? I had all these symptoms 8 years before I started this pill so I know its not that lol I see my endo on wednesday,, sooooo we shall see how competent this one is ;) cross your fingers fer me lol  hope your doin ok my friend,, your in my thoughts
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
Then the endo is not skilled in the diagnosis and treatment of Cushing's - that exercise can destroy your muscles as you tend not to recover.

That seems to be a high cortisol - not sure what your lab's range is though!

I had to follow a low carb diet to help me not gain like crazy too. Be prudent on the exercise.

Hope the next doctor is better!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
I heard that too,, not to excercise to hard,, keep it to low impact walks n stuff ,, a Friend of mine who is in Nursing school told me that one and shes just a student lol seems you n she know more than that endo lol yeah they said my Cortisol was high,, that 19 was theyre cut off,,, leaving me 8 points higher than theyre max normal range,,, I say,, well duh,, look at this thing on my back and these stretchmarks and spider veins that are starting,, not to mention this new spare tire and rounder face lol,, maybe God himself needs to send em a letter maybe than they will come to a conclusion lol Ill let ya know how wed goes ,, cross your fingers :)
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
Good... yeah, it is important to try to stave of the weight (I so remember the wave) but not to encourage more damage!
Keep working at other doctors, test with the GP or do whatever you can! It is such a freaking battle! Horrible.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
Ok,,, So,,, appointment went well,,, she obviously said Im overweight and asked me If I had thought about lapband lol I said yeah if you can get medical to pay for it sure lol,,,,, then she went on to say she didnt think deep down I had Cushings but I do have alot of the characteristics and she was honest saying that most Endos hate Cushings cause its a long difficult rode to pinpoint where it is,,,, jeez I had no idea ( sarcasm) lol,, she said we will do all the testing we need to and she doesnt like the dex test says it gives false negatives ,, we knew that .... she is having me do the 24 hour cortisol urine collection ans on the 2nd day of my next period she wants the acth and a bunch other tests done,,, she says she doesnt think I would have pituitary cause my prolactin is fine but I am not so sure of that as my symptoms point more to that than adrenal but who knows....what is your thought on that one??? at least she is trying though lol well hey I found out Im fat again lmao!!!!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
The dex test does give a lot of false negatives so that is very true - finally!

I have never heard of testing though like *the second day of the period* etc.  so that is new to me... unless she is doing FH and LSH and wants to track that as well?

Pituitary source is the most common (after taking steroids to cause it) and yeah the MRI can be ok so unless you had a wonderful dynamic one of a 3T, ah, not sure... but she is not sure so it looks like you will only get one or two sets of tests.

Lap band! Heard that one a lot though.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
lol yeah sounds like the lapband is a doctors savior?? lmao,,, I think she is tracking that FH and LSH though , your right lol again :)..... um... she is relying heavily on this ACTH  test though,, saying if that comes back with issues than its positive I have it ,,, I guess lol,,, I think she was telling me she is willing to give me all the tests required but she wont keep retesting me ,, its too tedious?? lmao,,, a lil better doctor but still not quite right i guess lol,, well we shall see,,,, can I still be positive with cushings if this ACTH test comes out normal???
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
You can have normal ACTH and still have Cushing's - that is just not the way... first of all, it is a very very difficult test to get done correctly. Normal ACTH can indicate adrenal sourced-Cushing's. However I had pituitary sourced and I had normal ACTH... so it just is not a perfect science yet...

They don't make money on Cushing's - all office visits - no drugs, and face it - we are just a bunch of overweight whiney people, depressed - who the heck wants that!? LOL... better to just look the other way and give anti-depressants!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
LOL I so hear what your saying lol ,,, yeah I have feeling this is going to take some time ,,, I would of had this for about 10 years so I hope not to much more but after reading stuff I fear it will be,,, yeah she was wrong when she said adrenal Cushings is more common,,, I read Pituitary is ,,, - sigh- Ill go a lil longer ,, get a lapband lmao then move on to the next who wants to call me fat lol,,,, and yes,,, I have checked and simply overweight people do not have this lump on theyre back ,, theyre whole back is bigger ,,, I showed her my stretchmarks too but they have faded in color cause I use retin a on em and have fer years lol they are still theyre though,,, well we shall see lol thanks again for your info lady,, you keep me someone sane ;)
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
LOL I so hear what your saying lol ,,, yeah I have feeling this is going to take some time ,,, I would of had this for about 10 years so I hope not to much more but after reading stuff I fear it will be,,, yeah she was wrong when she said adrenal Cushings is more common,,, I read Pituitary is ,,, - sigh- Ill go a lil longer ,, get a lapband lmao then move on to the next who wants to call me fat lol,,,, and yes,,, I have checked and simply overweight people do not have this lump on theyre back ,, theyre whole back is bigger ,,, I showed her my stretchmarks too but they have faded in color cause I use retin a on em and have fer years lol they are still theyre though,,, well we shall see lol thanks again for your info lady,, you keep me someone sane ;)
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
omg girl Im kind of scared now,,,,, I need your input.... I have had this problem over the years ,, about 5 or 6 where the palms of my hands burn really bad but they are not hot when someone else touches them,, it hurts really bad and it lasts for 1 to 2 days,, its been happening more frequently lately,,, twice this week now,,, I just looked it up and It says it could be Neuropathy caused by a tumour or something pressing on the nerves,,, have you heard of this?? could this be related to my Cushings symptoms???? Im not allergic to anything ,,,, Im kind of nervous now.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
596605 tn?1369950227
Hiya-
I've been following your saga since the beginning and wanted to let you know that have someone else rooting for you, out there in the world. That these dang docs git their crap together and git you some answers girlie.

Just wondering in in all of this mess if your IGF level has been checked? That is the marker for growth hormone. Just thinking that this might? be part of it...that you are off in the Growth Hormone department. high or low...The symptoms of low GH overlap quite a bit with Cushings.

Sending a virtual hug from Hawaii
Horselip
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
Hello there!!! Thank you for your words of encouragement!!! Its been awhile how have you been?? Ill talk to my doctor about that IGF level you mentioned,, and you are so right bout doctors needing to get this done allready lol I have noticed a lot of us go threw the same thing ;( hope your doin well lady!!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
well,, this is a strange one,,, My Endo hasnt ruled out Cushings yet but she is wanting to look at me for RSD???? where did that one come from??? Im assuming Its because of the burning palms ,,I swear,, Doctors will reach for anything other than Cushings,,,, Cushings must be a ***** to pin point lol This hump and these stretchmarks dont say RSD though,,, I must admit I do have alot of the symptoms and hell, maybe I do,, but My High Cortisol has to subside,,, She tells me there isnt a drug they can give me to lower my Cortisol... so what?? They are just goin to see if I lose weight after lapband or diet pills and diet change and " SEE" if my cortisol lowers??? I think that is the plan if this ACTH test shows normal,, * sigh* how do you ladies do this??? frustrating .
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
I don't know what RSD is... yes, there are script meds to lower cortisol usually ketokonizole however it can lower you to a point that you need replacement meds (in fact most take replacements on it) and you have to take it only for a short time due to liver issues and be monitored closely... There is a new drug coming out (corlux) but not sure if it will be long or short term again. Keto is usually used for really bad cases to help get them feel better before surgery so they don't die in surgery.

So your endo is not up on the latest... besides, one ACTH test means squat. Lab error is rife.

I went on a doctor hunt...I doc shopped like there was no tomorrow.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
Ok lady my computer has been down and I have been dying to ask you something lol,,, ok,,, I have my urine collector for my 24 hour collection and its just 1 little jug thingy,?? I thought it would be lots of individual cups lol how do they test cortisol like this????and they told me I dont have to refrigerate it??? I read you always do... so now Im confused and i CANT REACH MY DOCTOR.... oops caps lol,,,,, how do they test my 24 hour urine in 1 jug??? I thought they were testing for times when it would be higher and lower and such?? how can they do that with 1 jug?? Im so confused,, oh ya and on my sheet it says to test for creatine too. whats that?? help!!!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
ok,, i see why the creatinine test was ordered lol but is it normal to just use 1 jugg for collection and not to refrigerate???
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
596605 tn?1369950227
Hiya-
Refrigerate, no matter what they say.
Also, if you pee more than one jugs' worth in a day, you should ask for more that one jug. They should have given you a little cap thing that you put over the toilet seat to catch the pee. Then when you are done preeing, you transfer it from the cap into the jug.

Yes they measure creatinine too, as part of this test.

When you turn it back into the lab they will measure the total volume, keep a small sample and then toss the rest.
Happy pee-ing
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
Yup - keep it COLD...
The creatinine is tested to see if you over sample - as in collect more than 24 hours. However some of us have high creatinine (I was told, rudely, that the doc expected since I was a big girl) so it is not perfect - but that is the reason.

If you can't get to the lab super soon, you can even freeze it but it has to be thawed before you take it to the lab - thaw in the fridge. The peecicle can never be warmed.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
ok,, got my 24 hour free urine results,,,,I think they are normal,, the girlon the phone said I had a 33.1 level,,, i have no idea what the ranges where lolI ll know more at my appointment I guess// any info you could give would be great,, thanks lady ;... I keep thinking she read my am blood levels though,,, ugh
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
ok,, how is it that my 24 hour urine test was normal but I still have high morning blood cortisol????? so confused!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
Some labs/methods have a 34 cut off so you may have been almost there - or the cut-off is 50 but that test is oddly less specific (the other test is better)...

As for the point in time vs the average test... there can be lots of reasons to be high in one and not in the other. Sometimes it is just hard to hit a point in time test. As for the averages, I used to mess mine up as I was high at night, but low during the day - ergo - my average was just FINE but I was sicker than a dog... also medications can interfere with free type tests (urine and saliva). Also if you have a high cortisol binding globulin, you just may have less free cortisol around even though you may be sick. Lab error - if you had more than one jug and the lab tech did not mix them all and them take the sample - error. Did not keep cold - error...

Is that enough?
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
thanks lady,, yeah I have no idea the range they are using and I have been staying up till 3 or 4 then waking at 1 or 2 in the afternoon,,, i heard that can make a big difference as well,, i had my morning pee at 12 45 in the afternoon the day I turned in the specimen so,,,,, lol,,,,,I knew this wouldnt be an easy road,,, thanks for your input was needed greatly!!!!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
Make sure you get copies of your tests! Make nice with the staff and get the copies before you leave every time you have anything. I ask the lab to send me a copy but that is about 25% now.
If you start at 12:45 you end at 12:45! it is a time thing! Discard the first void and go from there.  I wait a day before turning in so my specimen gets nice and cold in the fridge now.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
why dont the lab people tell me these things???? agh ,, so frustrating,,, yeah I did my test wrong then. I started at around 11 the previous day and the following day i did my last pee when i woke up at 1 30 not 12 45 like i previously thought,,,, know when instructed me what to do,,, then the when i went to turn it in i had to go back home for paperwork i wasnt told to bring so the specimen was completely warm by then lol crap. well hopefully round 2 is more accurate,, what would i do with out you lady?? lol
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
The lab does not tell you to do that - I learned that one from experience. I found that taking a warm pee in led to getting worse results as they tended not to get to them right away and they just got warmer. So I bring them in cold now. Sometimes with an ice pack (I get a bunch of freebies with my growth hormone). The cold thing is optional therefore - so you shall see how it turns out but the test is really invalid since you did it inaccurately.

However the timing thing should have been given to you in instructions from the doc or it is all over the net.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1632656 tn?1310696871
I guess My Cortisol is fine now ,, huh???? Im so confused again lol my blood Cortisol at 845 ( lab didnt open till 8 with a waiting line,, thats why not at 8 like it shoulda been))... was 10.2 .. with the range of 4.0 to 22.0.... so now she is going to say Im fine Im sure ,, how the hell did it drop by over half????? I still feel awful and my arms are so weak as well as my legs,,, agh... how do you do this ?? so confusing...
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
Once test is not or should not be the entire picture - the doctor should check for a loss of diurnal rhythm and see what is going on.

8:45 is within the range time. Point in time tests are hard to catch sometimes.

Hopefully the doc will look at the entire pic?
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
3244572 tn?1346866155
Hi my name is Curtis and I am diabetic for 12 years but under good control using oral meds and very large usage of insulin 3 types now but my numbers have been all all over the place, now they said I had large amounts of Coritisol in my blood,had a MRIi don't found nothing ha all the test twice results the same...and then my doctor said "we don't know what to do....
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
657231 tn?1453836403
I hope you start a new thread!

I would go to a different doctor. The MRI may be read as normal, but you may still have something there (and was it a proper dynamic pituitary MRI?). That has happened to so many I know!

With high sugar and high cortisol, those are great indications that you do have cause for investigation. There is no one test that says  you do and do not have Cushing's nor the source - it could be pituitary or adrenal or other - any ACTH testing (again, done properly chilled tube, spun immediately, frozen right after the spin - it degrades quickly)?

If your doc does not know what to do - look in the health pages, and find one that does! I had it myself - not a good thing to just wait around with.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Your Answer
Avatar universal
Answer
Do you know how to answer? Tap here to leave your answer...
Answer
Answer
Post Answer
A
A
Blank
Pain Tracker
Pain
Start Tracking Now
Recent Activity
296076 tn?1371338074
Blank
melimeli BRING BACK THE NEWSFEED! Comment
Dec 06
Avatar universal
Blank
HannahMoll commented on Life after brain tumo...
Nov 10
Avatar universal
Blank
Moni70 commented on 6 months after brain ...
Nov 05
Top Cancer Answerers
657231 tn?1453836403
Blank
Northern, NJ
Brain/Pituitary Tumors Community Resources
Top Cancer Answerers
657231 tn?1453836403
Blank
Northern, NJ