657231 tn?1453836403
testing...
I am currently doing a high dose dexamethasone test. I am letting you know as it surely is effecting my personality as well as my sleep so I may respond uh, differently...

The thought behind this test is to see if my elevated ACTH is suppressible at all so then the doctor can decide if there is a level of corticosteroid that can be used to keep it down while not giving me Cushing's or if I do not suppress, then I have to consider radiation which is something I really really don't want to do as I don't have a defined target and they would have to cover a fairly large area from my pituitary to my clivus.

Last time I took a dex test, my ACTH went down to less than zero, but so far on just regular normal doses, I have not been able to get down to even a normal dose even for a post-BLA patient.

So I am a hopped up, cranky person... my husband is so so unhappy. Poor guy.
Cancel
3 Answers
Page 1 of 1
596605 tn?1369950227
Hi Rumpled.
good luck on ur testing!!! It bites that u might have to have radiation, ESP with no target? Man I wish they could find where all this ACTH is coming from. I return from vacation in a few days and will try to pitch in a bit more if that might help. the many moods of a pit patient. a few friends have nicknamed me Sybil. luckily I give it right back to them and keep my humor. WE all have our dents and dings......
Xo Horsey
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
I wish you the best of luck !
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
657231 tn?1453836403
I still want them to check out the thing on my lung better before they zap my head... nothing is ever easy!

Sybil - ha ha... that is at least a decent name. I was texting my hubs and the phone went nuts and sent him all my texts 3x, so he thought I was doing it due to my steroid-induced haze... at least that time it was not me LOL...

Thanks!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Blank
Pain Tracker
Pain
Start Tracking Now
Recent Activity
296076 tn?1371338074
Blank
melimeli commented on KeeLolo's status
Aug 21
6699771 tn?1471442915
Blank
lola4686 added the Diabetes Tracker
Aug 17
6699771 tn?1471442915
Blank
lola4686 Struggling to get my prolac... Comment
Aug 17
Top Cancer Answerers
657231 tn?1453836403
Blank
Northern, NJ
1530171 tn?1448133193
Blank
London, ON
Brain/Pituitary Tumors Community Resources