Brain/Pituitary Tumors Community
testing...
About This Community:

This patient support community is for discussions relating to Brain Tumors and Pituitary Tumors.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank
Blank Blank

testing...

I am currently doing a high dose dexamethasone test. I am letting you know as it surely is effecting my personality as well as my sleep so I may respond uh, differently...

The thought behind this test is to see if my elevated ACTH is suppressible at all so then the doctor can decide if there is a level of corticosteroid that can be used to keep it down while not giving me Cushing's or if I do not suppress, then I have to consider radiation which is something I really really don't want to do as I don't have a defined target and they would have to cover a fairly large area from my pituitary to my clivus.

Last time I took a dex test, my ACTH went down to less than zero, but so far on just regular normal doses, I have not been able to get down to even a normal dose even for a post-BLA patient.

So I am a hopped up, cranky person... my husband is so so unhappy. Poor guy.
Related Discussions
3 Comments Post a Comment
Blank
596605 tn?1369950227
Hi Rumpled.
good luck on ur testing!!! It bites that u might have to have radiation, ESP with no target? Man I wish they could find where all this ACTH is coming from. I return from vacation in a few days and will try to pitch in a bit more if that might help. the many moods of a pit patient. a few friends have nicknamed me Sybil. luckily I give it right back to them and keep my humor. WE all have our dents and dings......
Xo Horsey
Blank
Avatar f tn
I wish you the best of luck !
Blank
657231 tn?1453836403
I still want them to check out the thing on my lung better before they zap my head... nothing is ever easy!

Sybil - ha ha... that is at least a decent name. I was texting my hubs and the phone went nuts and sent him all my texts 3x, so he thought I was doing it due to my steroid-induced haze... at least that time it was not me LOL...

Thanks!
Blank
Post a Comment
To
Blank
Pain Tracker
Pain
Start Tracking Now
Recent Activity
296076 tn?1371338074
Blank
melimeli commented on renae176's status
19 hrs ago
296076 tn?1371338074
Blank
melimeli commented on mhv's status
22 hrs ago
296076 tn?1371338074
Blank
melimeli commented on KeeLolo's status
22 hrs ago
Top Cancer Answerers
657231 tn?1453836403
Blank
Northern, NJ
Brain/Pituitary Tumors Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Cancer Answerers
657231 tn?1453836403
Blank
Northern, NJ