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weight gain sending me crazey

by tahliastar, Jan 25, 2009 10:26PM
Hello to all
I found out about my tumor neally 10 years ago. since then i've been on tablets, now its dostinex 2 times a week. I'm a mother of 2 wonderful kids and am only 31 years of age. i havent had an operation yet and keep getting the run around. I've been through hell and just want it to stop. I get headaches regularly have incredibly low self esteam I have trouble looking in the mirror. my teeth seem to be disintegrating, but the weight gain is what halters me from experiencing life. Im embaressed for anyone to be seen with me, and when people who dont know me and they give me "that look" i feel that i have to explain myself all the time. not that they understand but what else can i do. Ive tried heavy excercise, that just makes me more tired, light aeribics thats just is a waste of time as nothing changes. weights make me bigger. walking helps me to feel fitter and clearer but wont dissolve the bulk of it. sit ups on my ab machine help slightly, The moods and anger just jump out of me. I dont like being on depression tablets and feel  that they are not working anyway.i'm sick and tired of fighting. I feel like im loosing my strenght. I feel like a bad mother and understand that its hard on the kids at 6 and 8 they dont understand why their mummy is big and fat when the rest of the family are lean and fit.I dont eat much and try to walk daily. sometimes twice a day.If there are any doctors out there who can help me please contact me. I am willing to send my medical records anywhere and will travel. one of my last MRI scans revealed that the tumor is now cystic in places and measured 3.1 by 3.2 by 3.1 cm. can someone please help me?
Nadine.


This discussion is related to Losing Weight after pituitary adenoma surgery.
Member Comments (2)

by rumpled, Jan 26, 2009 09:24AM
To: tahliastar
Is that CM or MM? I tell you what I tell everyone - find another doctor!
Have they only been testing prolactin? Sounds like you have other hormonal issues going on with bone issues so you need more extensive testing.

Find a neuro-endocrinologist and a neuro-opthomologist and find them now!

Since you have your records, what hormones were tested and what are the results - and why are they waiting until your tumor is huge?

by SarahB79, Jan 26, 2009 10:55AM
To: tahliastar
There is a neuro-endocrinologist I think you should see in Oregon.  http://www.ohsupituitary.com/patients/tumor.asp OSHU Pituitary facility.  I wrote to this Dr. and she also gave me a recommendation to the Cleveland Clinic in Ohio since I live in Ohio.  
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