I was diagnosed with a pituitary tumor in August 2009. SInce then I have had an MRI, and was referred to an endo. I have been going to Endo for over three months and my prolactin levels have only decreased a small amount. My level has been 78.9 until this month and it went down to 65. My breast have been unbearably sore and my headaches are serious. The Endo does not feel the headaches are caused by the tumor because its only 4x2x4. I am so frustrated and tired of paying a copay for something that isnt helping me. Does anyone have any suggestions??? I dont know what to do
First, headaches *are* caused by the tumors - size is not the factor but that the hormones are off as well as there is not a lot of space up there as the pit is sitting in a small bony outcroping - anything growing up there creates an issues.
My suggestion is to find another endo - preferably a neuro-endo as they treat the pituitary. They may take you more seriously and help you get more treatment - so you can get the pain gone. It may take a couple of docs to find the right one.
I was also diagnosed years ago with a pituitary tumor and prolactinemia....same as you. My prolactin levels were 20 times the normal. I was secreting liquid from my breasts it was so high. I was also getting MRI every 6 months and endo as well. Endocinologist started me on a medication for prolactinemia called Cabergoline (brand names Dostinex and Cabaser), DEFINITION:an ergot derivative, is a potent dopamine receptor agonist on D2 receptors. It also acts on dopamine receptors in lactophilic hypothalamus cells to suppress prolactin production in the pituitary gland.
Well it worked great! I no longer have problems and its been about 6 years and no more MRI's and I get lab work done once a year and all normal. Are you on any medication for it?
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.