Bone tumor with headache

For the past 41 months I've had a continuious dull pressure in my head that is frontal, deep and diffuse.    I also wake up with throbbing headaches sometimes.    The pressure is there 24/7/365.    I was sent for a neurosurgery consultation,  went once every 6 months and each time was told this tumor was probably the cause of my symptoms, but they would not do surgery without a cranial nerve deficit or cosmetic deformity.     At my latest follow up I told the surgeons that I couldn't go on any more and pressed them to operate.   Then, they changed their story and told me the tumor was in fact not the cause of my symptoms, and they weren't going to operate.    

What do you make of this?   can you PLEASE offer some real advice..

Here are my films online:

http://robsaysrelax.googlepages.com/home