8 YEARS LATER!

8 years ago, I had a right mastectomy and am still cancer free.  Yay!!  However, I just noticed in the last day or so that my right arm is getting bigger, rounder - probably holding fluid, I guess.  Is this something I should worry about?  Should I go see my doctor?  Is it any kind of emergency?  I've never had this problem before now.  Thank you for any information you give me>

[Cleveland Clinic]

Dear Polly1971, This is something you should have checked.  Of concern is you may be developing a condition called lymphedema.  

Lymphedema is swelling in the arm or leg caused by excess fluid that collects after lymph nodes and vessels are removed by surgery or treated by radiation.  Lymphedema can occur within a few days, months or years after surgery.  Your doctor will better be able to assess with examination.  

For more comprehensive information about lymphedema prevention and treatment we have information on our Cleveland Clinic Website. Which is clevelandclinic.org once there click on Health Information Center, then type in lymphedema.

[carme]

Congratulations on 8 years.  Kind of sounds like you may be developing Lymphedema. My mom got it in one arm 6 years after mastectomy. Read about it, definitely see your doctor.
Be proactive and careful, stay on top of it. You should be fine if you do.

[japdip]

YES ... you should definitely be worried about this. It appears (from your description) to be Lymphedema. Please get a referral to a Physical Therapist trained in treating this condition IMMEDIATELY !! This will NOT get better on it's own and must be treated aggressively. Congrats for your 8 years being cancer free.

[Polly1971]

Thanks for taking the time to write back.  Will call the doctor today.  Does anyone know what happens if you leave it alone?  Does the arm just keep getting bigger and bigger?

[japdip]

Once you have Lymphedema is it lifelong and must be treated and you must always take extra precautions. Please don't leave it alone ... the longer you wait, the more difficult it is to treat and sometimes is never "put to rest" so to speak. The swelling can be reduced with massage by specially trained therapists and by wearing compression garments (sleeves and possibly a glove). Wrapping with special bandages is often required also. May I recommend that you visit this site:  bcsupport.org and post questions on the "Lymphedema" section. It's very informative and helpful to interact with other cancer survivors, many of whom have had a lot of experience with Lymphedema.