How to diagnose Lymphedema

My mother had a breast removed about 18 months ago - as it had spread to her lymph nodes, these were also removed (not sure if all, I can find out if it helps).

Her arm has now, suddenly after all this time, swollen up very badly, aches etc etc.  

She went to the doctor.  Her doctor did not ask or check to see if she had a temperature and/or infection.  although she said to return if it does not get any worse, she said that nothing can be done at all to stop or reduce the swelling (!)

I am very worried that she has Lymphedema.  How can we check ?  Should we insist on the doctor referring her back to the specialist at the hospital where she had the op?  Should I ring them direct ?  Please help.

Stella Hards, Bristol, UK.

[CCF-RN,MSN-JS]

Dear Stella, One of the complications of surgery to the lymph nodes can be a condition called lymphedema.  This can happen quite soon after surgery or may happen months or years later.  Lymphedema cannot be cured.  However, with proper care and treatment the affected limb can be restored to a normal size and shape.  In addition, lymphedema can be treated and controlled so that it does not progress further.  If left untreated, lymphedema can lead to increased swelling and a hardening of the tissue resulting in decreased function and mobility in the affected limb.  It can also lead to chronic infections and other illnesses.  We would recommend checking with the specialist to make sure lymphedema is in fact what is the problem.  See what they will recommend, or if they have suggestions of who in your area can help you and your mother deal with this situation.

For more comprehensive information about lymphedema prevention and treatment we have information on our Cleveland Clinic Website. Which is www.clevelandclinic.org once there click on Health Information Center, then type in lymphedema.