Intraductal papilloma

[flowersrpretty95]

Hi  I just did a follow up ultra sound, on a lump that my radiologist had been following for a year and a half.  My results said that it grew and changed from 5mm to 9mm diagnoses bi raids 4  so i had the biopsy doctor calls and said that tissues are benign.  
Then he proceeds to tell me that i have a intraductal papilloma 9mm.  he then stated that i need and excisional biopsy  time to see a breast surgent,  during the conversation he stated that it is very rare that these are cancer only a 5% chance.  
So my questions is can i leave this alone i prefer to just follow it?  
If i left it in and it did turn to cancer what could the outcome be how dangerous could it get even if i am being followed.    I again would prefer to just leave it alone.  Thank you.

[japdip]

That does seem rather a long time but it depends upon exactly what your normal activity consists of, like strenuous exercise which would not be wise or several other things that would  put undue strain on muscles, etc. I would increase your activities very gradually but NEVER go against the advice of the Surgeon. Complete healing of the tissues does take quite some time and you certainly would not want to delay that.  I'm glad to hear the things went well and hope for GREAT news when the reports come in. Do take it easy though.... Regards.

[flowersrpretty95]

Hi so the surgery went well The doctor got everything.  Now three days later getting back to my self pain is not to bad,    I have been  taking Tylenol. Still waiting on the results.  Do i really have to wait three weeks before i can get fully back into normal daily activity's?  

[mhv]

Sending healing thoughts your way.  Having it removed will give you peace of mind.  Please let us know how you're doing.  

[japdip]

I really don't see any difference in the two. The area is being removed either way. It seems to me that this is just the use of different terminology.  Best wishes for a speedy recovery .....

[flowersrpretty95]

Hi doctor is going to do a lumpectomy on the 23ird of February.
I did a lot of hard thinking research and reading decided it is too much stress, and i ask my self would i have any regrets with my decision if it changed.  Surgery is better way to go.
? My radiologist stated excision but my doctor is doing a wired lumpectomy is this normal procedure and what is the difference between the 2 surgery's I have done a little reading but still a little confused.
I am nerves about the surgery but more then anything I have a fear of being put to sleep! I know I will be fine but still a little scary.
Thank you!  
  

[japdip]

That's too bad that you had a less than comfortable experience with the Breast Surgeon; perhaps she was having a bad day ???? At this point since the chance of a single papilloma being malignant is rather small you might as well follow it for the recommended 6 months. This all began the last of November and you should count the 6 months from that date and see what is recommended at your next check-up which would be in the Spring. If at that time it is determined to be benign then it can be left alone. On the other hand if you are "done" with all the re-checks and possible biopsies then have it removed and over with. It all comes down to what you are comfortable with. I would make my appointment now for the 6 month check-up if that's the way you intend to go so there will be no waiting when the time actually arrives.  Regards ....

[flowersrpretty95]

  Hi I went for my second opinion, Not sure what to make of the appointment though. This doctor is a top breast Sergent in my area, She actually did my first breast surgery in 2008.  
When i saw her i felt like she was a little pushy,  She said to me it grew and surgery  was the best route even though i do not have any of the symptoms and the biopsy came back benign. She quoted to me (Pathology report too consider excision.)
When i ask questions i felt like she thought i was stupid and she did not want to answer questions she cut me off, proceeded to tell me two options surgery or follow every six months.
My question which i think is important does anyone know? Are there any studies of women who were follow with intraductal papilloma what is the long term out come.

[japdip]

It sounds as though you have found a GREAT Surgeon who has exactly the right information and caring that you need. The follow-up plan seems very appropriate and I would be comfortable with that myself. I do think it wise to go ahead with the second opinion to further clear things in your mind. The hematoma issue isn't at all unusual in such circumstances with biopsies but it can complicate the situation. Remember that the decision you make today or 3 months from now won't necessarily change the outcome. Even though papilloma can be cancer, if there is only one they are usually watched for a period of time. You're on the right track but try not to confuse yourself by doing TOO much research as no 2 cases are the same and you can't depend too much on percentages, they are too general. Take care and stay busy .... NO negative thinking !!

[flowersrpretty95]

Hi Thank you for all your feed back, I spoke with the breast Sergent on Thursday and asked a lot questions. The doctor i thought was so supportive she answered all my questions and then some.  
When asked she told me she has recently had a patient whose papilloma results  cancer.
According to the new statistics 20 to 30%chance intraductal papilloma being cancer. numbers increased great,
I still have a second opinion in January,
Do to the biopsy i have a 3cm hematoma and i am very bruised the radiologist change his plan and did a vacuum core biopsy instead of just a core biopsy, which is fine. The doctor told me if i choose to do the extensional she would have to wait for the hematoma to dissipate as they would not be able to get to the area. And if i choose to be followed she would follow me every three months twice and then move to 6 months,
I left telling her i would be in touch.
I am confused now but i will wait for my second opinion appointment do research shop for the holidays and pray that i make the right decision in the end.  Scared!!!

[flowersrpretty95]

  Thank you!

[Jaquta]

I was initially diagnosed with intraductal papilloma (after a biopsy came back negative for cancer).  I had this removed.  My pathology results came back with DCIS.  I've since had a recurrence.
There is some debate about whether mammograms and surgery actually spread the disease.
Cancer if left untreated can be extremely dangerous and even fatal.

I don't necessarily think that conventional medicine has all the answers.  Some people have had really amazing results with lifestyle medicine.

You need to do what feels right to you.  Intuition is a valuable tool.

Good luck with whatever you decide.

[mhv]

I think you made the right choice, for sure!  Better safe then sorry!  Thinking of you!

[japdip]

Great to hear that you are going to keep seeking a definite answer. I'm all for second opinions and I believe that a person should keep seeking information until they are comfortable with all the answers. When I hear "don't worry about it" I always want to know "WHY" I shouldn't worry :)
Always appreciate follow-ups .... Thanks

[flowersrpretty95]

Hi thank you for your feed back.  I am seeing a breast sergeant on Thursday DEC 3ird. I have also schedule a appointment for a second opinion in January of 2016.
Please know that i am concerned and do not take this lightly,  but for me i have had so many scares and they have thank goodness all come back benign. It is scary but for me i feel maybe it would just be better to follow this and see if there is a change. I will post more on Thursday when i have the results.

Regards.....

[japdip]

I would NOT just leave it alone and I can't imagine why anyone would choose to do this. 5% may not seem much of a chance to you but even a 1% chance would send me to a Breast Surgeon immediately. You can do whatever you feel comfortable with but since there has been growth give it some more thought before you decide to ignore this condition. Even if you do see a Breast Surgeon there is a chance that he/she may agree with waiting and doing close interval testing and the choice will still be yours and yours alone. Please at least see the Surgeon, OK ??   Regards .....