Lymphedema - Why no Forum for this?

[Nancy_LA_MA]

I enrolled with medhelp.org, looking for information and possibly a support group for lymphedema but there isn't one here.  

There are posts I've looked at in this Forum where lymphedema is mentioned - but it seems to me that there needs to be a Forum specifically for lymphedema.  

There are many who know they have lymphedema and are living with it (in and out of treatment for it) - all kinds, more than that following breast cancer.  I attend a small lymphedema support group in the next town and there are people who have primary lymphedema and those who have lymphedema following surgery (breast cancer & other surgeries).  I had hoped to find a larger group here to supplement the exchanges we have in the local group.  

My Question:  How are Forums formed?  

[katarina777]

I don't know why medhelp has no Lymphedema Forum, but if you google for this, you will find places that do provide both information and support.

[bluebutterfly2222]

One Web site that might be helpful is lymphedemapeople.com

[japdip]

You might try (bcsupport.org) .... there are several sections on the left of the home page and the last one is "Lymphedema" ... this is a pt. to pt. discussion group and many of the women who post there have years of experience and are more than willing to share.     Regards ....

[SueYoung55]

google lymphadema and they usually come up with .org sites :)

Did you know there is a surgeon in New Orleans taking lymphnodes from one part of the body and putting them elsewhere? Google Marga Massey and look at what she can do!!

[Nancy_LA_MA]

Thanks, everyone!  I'll follow up on the suggestions made.  

Still think this site would be an excellent place for a Lymphedema forum...  

[SueYoung55]

Yes it would make a great site for Lymphadema forums!

Moderators.... is this possible? :)