P.T. for mild case ???

66 yo post mastectomy (10-3-02)developed some swelling involving arm and hand approx. 4-5 weeks post-op. Advised by surgeon to elevate arm whenever possible and apply heat.After about 3 wk.s I discontinued using heat as it seemed to worsen the condition. I had been advised on disch. to do whatever I pleased .... no limits, no restrictions. At this time I use a preventative type compression sleeve for short periods and the edema in the hand and lower arm seems quite well controlled. My main problem is in the upper arm and the area of my back just below the shoulder ---- areas that can't be wrapped, etc. The skin is quite sore in this area also. Would some other type of therapy be beneficial in my case. Any advice would be greatly appreciated.

[CCF-RN,MSN-JS]

Dear japdip, Make sure to discuss your discomfort with your surgeon who may have suggestions based on what is found on physical exam.  At our facility it is an occupational therapist who helps with the treatment of lymphedema, based on assessment of the situation can help to develop an individual treatment plan.  The person with experience in this may be someone different in your facility - ask your surgeon who they refer to for this help with this problem.  A consultation then may be in your interest, especially for suggestions to prevent further complications.  

For more comprehensive information about lymphedema prevention and treatment we have information on our Cleveland Clinic Website. Which is www.clevelandclinic.org once there, click on Health Information Center, then type in lymphedema.

[rkmsim]

MLD - a massage therapy is very helpful for the swelling in the area that the sleeve can't cover.  I had a doctor tell me to put heat on my arm too.  I told him - "This is lymphedema.  You don't use heat with lymphedema!".  I know they can't know everything but you would think the doctors who see it a lot would know the basic treatment at least.  Guess some education is still needed. I did a lot of research on my own and just kept pushing until I got the type of treatment I knew I needed.