Phyllode tumor lumpectomy follow-up

[Chrisnana]

I had a lumpectomy-diagnosis Malignant Cystosarcoma phyloides, low grade (phyllode tumor).Margins are clear.
Has anyone had further treatment? Radiation therapy or chemo?
recurrances?
I can find very little recent info on this type of cancer.

[BhumikaMD]

Hi,

A wide local excision surgery is usually performed depending on the size of the tumour. Also the tumour is known to increase in size in pregnancy.

A wide excision with a 2cm margin of normal breast tissue is appropriate therapy for benign and borderline phyllodes tumors unless they are so large that this is not cosmetically feasible.

You should discuss with your doctor about the follow up plan and you need to carry out regular breast self examinations and periodic clinical examinations and repeat investigations as and when required.

Let us know if you have any other doubts.

Regards.

[mommy2be821]

I had a borderline one two years ago, with a reccurrence this year. They are recconmending a skin sparing mastecomy (I am 25) that I will get after I give birth. Dr. Bland at UAB is awesome he knows so much about these kind.

[AnneTr]

Yes, I too had a lumpectomy.  I see my surgeon this week to find out the staging but don't want any radiation (cooking) or chemo.  I'm on the 11th day now and the  pain is so intensive I can't stand it.  Don't want the medical profession touching me there again.  There are too many procedures involved in lumpectomy and these are all not only increasingly painful each time but are too hard on the mind.  Wish I had it cut off!