What does it look like

[Jannoona]

Hi all,
I though of adding up those personal nipple images of my mine. Had anyone seen or experienced a simillar look.
I really appreciate your feedback, not sure where to go to a derm or BS!!

Please to all those who had seen or experienced PD, eczema, papilloma..etc does it look any similar.


This discussion is related to Sitting on the edge of craziness.

[Jannoona]

Dear all,
After living with these symptoms for 3 years without any impact or change in lump, breast size, shape…etc I went and had a FNAC and never in my thoughts had I thoughts of anything negative.
I did the FNAC and the report says:
Gross pathology: an ill defined firm mass at the right retro-areolar region, with ulcerated crusted nipple. The nipple was dry. The mass was aspirated for cytology. The aspirate was moist.
CYTOLOGY:
Smears of the aspirate showed cellular pattern, made up of irregular clusters of loosely cohesive ductal epithelial cells with moderate cellular atypia. Sporadic similar cells are also seen. Few inflammatory cells are observed.
DIANGOSIS:
Right retro-areolar breast mass, fnac of highly atypical ductal cells favoring cytologic malignancy suggestive for invasive duct carcinoma.
comment: it is a rule that cytologic malignancy is to be documented by biopsy and tissue diagnosis with or without frozen section
Please correlate with the clinical radiologic findings and serum level of tumor markers

I did a chest x-ray that said
A well defined round shaped, opacity is seen projecting in the right lung base in the P.A view which is not well appreciated in the lateral view mostly representing the shadow of the nipple
Clear both lung fields and costophernic angles
Normal cardiace size and configuration

I did an ultra sound that said:
There is R breast well defined hypoechic smooth margins 2.3 X1.6 with horizontal merit. Picture of benign lesions. Free axillary’s lymph nodes
Other abdomen, pelvic and stomach pictures are clean.

I did a full blood test and urine which all came normal and clean too.

My treating doctor is insisting that I do not have IC. The other doctors whom I traveled to, believe I need to act quickly and do the surgery… I am caught by surprise; I do not know what to do and do not know where to take it from.
Therefore I need the support of all the readers in this forum to help me and guide me, especially those who have passed by this experience.
1. How come I have an IC and live with it for 3 years without causing any symptoms in my breast that cause me to worry to that extent.
2. I had read that there are many cases of pathology reports suggesting invasive carcinoma but when done on excision biopsy it was benign. What are the chances of false positive false negative FNAC.
3. I had read about other disease mimicking paget’s disease to a great extent, that if not carefully monitored could lead to unnecessary surgery such as: syringmatous adenoma of the nipple, or papilloma, or nipple adenoma. When I spoke to the dr. about them and asked him, he said he never heard of this, and this is very rare. Does he mean I do not have chances for benign results.
4. How can we compare the different findings of the U/S and the FNAC and the chest X-Ray?
5. If diagnosed with paget’s what are the treatment options I have. Is it lumpectomy, or mastectomy based on mass size given aboce.
6. What are the survival rates for paget’s disease.
7. What other treatments would I have: chemo or radiation..etc
8. Any thing that I need to know. I was told about exercise, nutrition and vitamin E supplements, and anti-oxidants is this true, has any cancer treating centers spoke about this and their positive impact on treatment.
I look for the support, patience, guidance and assistance from all of you. Please do not hesitate to share with me any piece of info that would be useful. Thanks

[katarina777]

I don't have enough experience with this to answer your question.
Do go ahead and see a dermatologist, though?

The way it usually works in medicine and with specialist is this way. Let's say you are suffering from headaches. if you see a neurologist he will treat it as a neurological proble; if you see a chiropractor, he will treat it as a skeletal problem; if it's a surgeon he won't even look into it unless it something that can be cut; if you see a psychiatrist, your headache is mental. I a doctor cannot figure out what the cause, it's also mental!  Katrin

To me this really looks like the doctor to see is a dermatologist.

[baytat]

Hi.
No I do not have a family history of BC nor am I on Birth Control pills. I will be seeing a derm soon.
That is the problem (soap), I am thinking of using almond oil or vitamine E oil on it and see if it helps.

I just need someone to tell me does it look like eczeam or PD!!

[katarina777]

I would also stop using any soap in that area except one from a health food store, but no harsh or regular soaps.

[katarina777]

Are you on birth control pills? Have you ever had bc?
If you are on birth control pills, I would stop them and see if that makes a difference.

[katarina777]

I don't think you sound the least bit crazy at all.  What you are showing us would make me panicked too, I am so sorry you have to live with this!

I agree with japdip. You should see a dermatologist not a breast surgeon, and by now it seems really obvious that they have no clue as to what this , even if they know it is not cancer related? Now try to find someone who does know. You just have not been to the right doctor.

I don't know what it is but it's not 'nothing' just because it's not cancer?

I am really with you; dump at least two of your surgeons and find someone else.

Good luck,

KATRIN

PS: It may not hurt to try the cortisone though just to see what it does?