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Following an excisional biopsy, I had a lumpectomy on Oct. 24 for DCIS - Stage 0. Pathology came back with a close margin, and of high grade type. I was told by the radiationCystitis - noninfectious Radiation therapy oncologist treatment would start 4-5 weeks after my surgery. My treatment has been delayed due to schedule delays on the part of the doctor and also his vacationVacation health care plans.
It's now been 7 weeks and still no call back from the radiationCystitis - noninfectious Radiation therapy oncologist (I've called his office 3 times already questioning startup date) as to when my treatments can begin. I have already had my breast marked two and a half weeks ago and am ready to begin.
Hi. Ideally, your radiationCystitis - noninfectious Radiation therapy treatment should really begin 4-5 weeks after the surgery. A delay of up to 8 weeks post-surgery is probably tolerable, but any longer may affect the efficacy of the treatment.
I had DCIS, Stage 0 with high grade just like yours. I am finishing the radiation today. Radiation would reduce the chance of DCIS coming back. There is a chance of it coming back especially with high grades like yours and mine. The short term side effect of radiation which is different for people could be redness, dryness and itchiness of skin. Mine is like this. Would you rather your DCIS to come back most likely as invasive cancer or you would accept short term or even long term side effect of radiation? My radiation stated 6 weeks after the surgery. It is not that urgent. It would let your healing to be completed better. DCIS is not invasive cancer and not that aggressive and hopeful they took out all the cancer cells in the surgery. Radiation is just to kill the microscopic cells which may have left out. I know that you get a lot of opinions here in this forum but do your own research and talk to your doctor. Talk to your surgeon and show your concern about the delay in radiation. You may need to change your doctor. Good luck.
For a Stage 0 cancer, do you really want to risk all of those radiation side effects?
I had a Stage 1 IDC, and refused the radiation.