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low grade phyllodes tumor

I have just undergone a lumpectomy for a 4cm phyllodes tumor.  Pathology results confirm that it is low grade malignant.  I have done some research and have many questions.  Basically, I want to know if I should ask for a second opinion, a PET scan, and if I should inquire about radiation.  The oncologist, as well as the breast surgeon I've had, only see about 3-4 phyllodes tumors a year.  Mine is the first malignant one they have encountered.  Therefore, I want to try to be as educated about getting the proper care for this as I can.  Please tell me what you think.
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961574 tn?1520648103
COMMUNITY LEADER
mhv
I would definitely get a second opinion.  I did.  
Helpful - 0
587083 tn?1327120262
Hi,
Sorry for taking so long to answer your post. I had  computer problems for about a week.
Malignant Phyllodes tumor is best managed with  lumpectomy and wide local excision of normal breast tissue around the tumor to obtain clean margins.. In most cases,these types of  tumor do not respond well to Radiation, Chemo, or hormone therapy.
Generally a PET scan is used only if your doctor has reason to believe that the cancer may have spread beyond the breast… it can be helpful if other tests can’t tell for sure whether the cancer has spread beyond the breast or to other areas of the body.
I my opinion seeking a second opinion is always a good idea to gather more information about all the question you have asked here.
Best wishes…
Helpful - 0
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