It's true that all the drugs in that class have numerous side effects BUT you should keep in mind that not everyone will experience all of them or sometimes any of them AND not always to the same degree. You'll just have to play it by ear and keep in close touch with your Oncology Team regarding any side effects that you do experience. Sometimes if the side effects are severe the drug can be changed to another but this doesn't happen often. Think Positive !
Well the verdict is in I had dcis and a small invasive cancer no chemo or radiation have to take arimedex for 5yrs so I will see how that goes because there seems to be alot of side effects with it so if there is anyone else taking arimidex can they please share their experience with it to see how different people deal with it
As you already know we cannot recommend treatment since that is an individual thing and will be tailored specifically for you by your Oncology Team. As far as what questions to ask ..... all the questions and concerns that you have posted here would certainly be a good start. As you think of something that troubles you or is something that you don't quite understand you should write it down and take a list with you to your appointment with the Oncologist. Most times you may be given a choice of treatment and if so you should insist on every detail available for any option that you're given. DO NOT leave the office with a question or concern still unanswered. If you ask, they will answer. If you don't ask .... they may assume that you either know or understand completely. Best wishes for a successful treatment plan .....
I would appreciate anyone ideas and thoughts of questions to ask
thank-you i know its only volunteers i,m just trying to get some ideas before i see the oncologist and see what other people have went through
I am sorry if I can't be of much help with your questions.
As you well know,we are volunteers members in this Forum and not doctors. It's really hard for us to interpret medical reports and advise anyone about treatments and options.
Your pathology report should be explained in details by your team of doctors,
including the best treatments that will be specifically planned for you.
Your Surgeon and Oncologist are your best source of information and you should rely only on their recommendations .
Wishing you all the best as always...
here is the results of my pathology
Glandular/tubular differentiation score 3
nuclear pleomorphism score 3
mitotic count score 2
overall grade grade 2, score of 7
haven,t got the er/pr or her2 testing back yet so do anyone have any thoughts of treatment plans or options
Hi again
Glad to know that your surgery is over and I hope that you are feeling well.
Since this is your second bout with breast cancer,I would think that Chemotherapy could be recommended.The good news is that your lymph nodes are clear.
Of course your treatments will be planned by your Oncologist who is really the only one who can decide whether Chemo is appropriate for your particular situation.
Hoping that your treatment will be successful and I wish you good luck and all the best!!
Well the surgery is over and i had a masectomy with a sentile node biospy and got the results today they said it is dcis and they found a .55 cm of invasive breast cancer and it was a grade 2 and nothing in the node so now i have to wait to see a ongolagist to see if any further treatment is required so do anyone have any ideas or thoughts on treatment or not becuase i feel since this is my second time having it even though its small that i should have a little chemo or something so any thoughts i would appreciate
Thanks Sue for clarifying! :)
I thought "popabear36" asked if an MRI was required before having the double mastectomy..After re-reading her post and yours,I realized that she meant "Post surgery".....
P.S. Sorry popabear3 for misunderstanding your post.
Some doctors don't always agree that patients should have an MRI post mastectomy unless painful symptoms occur,but Sue Young is absolutely right that after your surgery,an MRI test, every one or two years,could certainly be of value to make sure that all is fine.
Again I want to wish you all the best!! :)
I'm so sorry you're going through this mess again. Having reconstruction won't mess with having MRI's.
I chose to have DIEP reconstruction using my own skin and tissue while leaving my muscles intact.
I have yearly MRI's done for surveillance. If you feel comfortable having the MRI's yearly, I'm sure you can get your oncologist to schedule it for you. Most implant manufacturers recommend an MRI every 3 years or so anyways.
Best wishes
Hi,
All I know is that usually women have an MRI before conservative breast surgery (lumpectomy) to make sure that there are no other abnormalities within the breast, aside the one that was detected on mammogram and Ultrasound.
I am not sure why an MRI would be useful in your case, since you and your treating doctor have opted for a double mastectomy and the breasts are going to be removed.
I honestly cannot tell you if you need an MRI or not before surgery... I really don't have an answer for you.However if your doctor has recommended an MRI,then there must be a reason and you should have it done since he/she have all your medical records and know what is needed in your particular case.
I hope that your surgery will be uneventful and most of all successful in beating cancer one more time and for ever.
Wishing you the best of luck and prompt recovery...
well next week is surgery mascetomy because of my history and i have a question if you a\have a double masectomy and then implants should you still have mri,s done or not and i guess they will do more testing of the tumor when it is removed to see if any other treatment needed
Well,I am sorry that it's not the results we were hoping for,but this finding is one of the less alarming situations.
I have copied these two answer from doctors who will explain better than I ever could about your situation.
The woman they responded to (Carol),was asking exactly what you are asking here and I hope their answers will be helpful to you.
Of course your Surgeon is the one who will let you know exactly what is the best treatment for you.
Wishing you all the best! _________________________________________________
CCF-RN,MSN-rf
Mar 22, 2005
Dear Carol in Pittsburgh: DCIS (ductal carcinoma) is a non invasive form of breast cancer that, theoretically, should not have the ability to spread elsewhere in the body. DCIS has an excellent prognosis when treated surgically with either mastectomy or breast conserving surgery (lumpectomy) which is usually followed by radiation therapy.If left untreated, however, DCIS could develop into an invasive cancer. In addition, DCIS can be associated with an invasive cancer which would likely alter the treatment recommendations. For pure DCIS, there is no need for chemotherapy.For DCIS that is estrogen receptor positive, tamoxifen is frequently recommended following breast conserving surgery and radiation to further reduce the risk of local recurrence and to reduce the risk of a new cancer on the other side.
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surgeon
Mar 20, 2005
DCIS, by defintion, is not invasive. It should have nearly 100% cure rate (it's true that without being able to slice the samples so thin as to be able to see every single cell, it's possible to miss a tiny area of invasion. But the "IS" of DCIS stands for in-situ, which means it has not crossed a certain barrier and therefore is non-invasive and can't spread beyond the breast. It can, however, spread within the ducts of the breast. Treatment aims to get rid of all the tissues at risk for intraductal spread. The decisions are based on several details of the DCIS a person has: it can be very tiny, and, depending on age, may require only a small area of excision with no more treatment except, in some cases, taking hormone-blocking medication. In other situations it requires lumpectomy and radiation. If it's extensive enough, simple mastectomy is done. Hormone blockers are usually used, no matter what direct treatment the breast gets. It also depends on specifics of how it looks under the microscope: is there enough within a duct that the duct is expanded outward; are the cells in the center of the DCIS dying? Grade 2, in and of itself, is not enough info on which to say for sure what's best. The good news is that with treatment, cure is nearly guaranteed.
well the results are back i have ductal carcinoma in situ with nuclear grade 2 not sure what that means but i will see the surgeon tomorrow to see what the options are and type of treatment
Hi,
Often specimens are sent to outside Laboratories for a particular test where more sophisticated equipment are available.
Breast tissue staining allows doctors to make specialized diagnoses of breast diseases.
Sometimes the findings are not very clear and the pathologist may choose to review or have more tests done by another pathologists in a different institution in order to be sure of the diagnosis.
Yes, waiting is indeed very stressful ,as it is for so many of us! Unfortunately there is nothing we can do about it. Do your best to keep as busy as possible so the waiting will seem shorter.
Best wishes...
That is a very long time to wait, esp. in view of your history! (And esp. when biopsy specimens are normally examined by a pathologist the same day or the following day...)
You certainly have a right to ask the surgeon what has been found so far, and for what specific reason it was sent somewhere else.
You will continue to be in my thoughts and prayers,
bluebutterfly
Still waiting for results it will be 2 weeks tomorrow since i had biospy and all i know is it was tested it at the hospital i had it done at and then sent it somewhere else for more stain testing not sure what that means do anyone have any ideas
I don,t see nothing on the report that say BI-Rads but i see MRI BRADDU8
not sure if that means anything or not
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Thank you.
Congratualtions on nearly 6 years with NED!
I hope this is just a false alarm, but am glad you are ready to fight if the news is not good.
You will be in our thoughts and prayers (if you are inclined that way).
bb
thank-you for responding and I guess now thats all i can do is wait it is almost 6 years since my first fight with cancer and I find it harder this time waiting but on the other hand I say i beat it Once I will beat it again its just the waiting that drives me
I am so sorry that you are feeling so stressed out...We certainly understand the anxiety that women go through when they don't know what's going on.Most of us have experienced the same awful feeling.
I thought that a biopsy would be the next step in your case, because until your lesion is checked under the microscope, there is no way to know what this abnormality may represent.
We,in this Forum, are not doctors but members trying to help the best way we can.
All I can understand about "kinetics washout" is that a lesion that has enhancement and then has a of washout (i.e. the lesion shows up quickly on the MRI film but then fades out) is more suspicious than a lesion that maintains it's enhancement.This finding on MRI,makes it only "suspicious" but you could still end up with benign results.
One of the problems with MRIs is that they sometimes present false positive findings and lesions that may look like cancer turn up to be benign when biopsied.
Please try to remain as calm as possible,you haven't been diagnosed with nothing yet.You still have to go through this biopsy procedure and then you have to wait for the results which is the most stressful time for any one of us.
Hang in there..and I am hoping that things will turn up just fine.
Best of wishes!...
All I can say is that since a biopsy is recommended, I would assume that your BI-RADS score is probably a 4,which means that the lesion is only suspicious,but it doesn't mean that cancer will be found.
BI-RAD (Breast Imaging-Reporting and Data System), is a system used by radiologist to categorize the findings on Mammography,Ultrasound and MRI.You could call the radiology institution to find out about it.
Radiologists use numerical codes that go from 0 to 5.
The higher the score the more suspicious the lesion is.
Many BI-RADS score 4 return a benign finding and I am hoping that the results of your biopsy will be benign also.
Hang in there....and good luck!