Thanks to all for your replies. I am so sorry that I have not responded sooner but it has been a rollercoaster ride since I last posted here. I can actually write a book on it! I've had MRI's, CAT scans, ultrasounds, PET scans, Axillary Lymph Node Needle Biopsy, endoscopy, colonoscopy, Barium Enema and finally, Axillary Lymph Node Removal!
CAT Thorax-enhanced - Chest (9/13/07) The lung fields show no infiltrate, effusion or mass. There is minimal atelectasis- fibroric scarring present at both lung bases posteriorly and inferiorly. The pulmonary vasculature is adequately visualized and is normal. The aorta demonstrates no evidence of dissection. There are minimal degenerative change involving the dorsal spine. the heart is not enlarged. There is no mediastinal or hilar adenopathy. CONCLUSION: Minimal fibrotic changes are present in both lung bases posteriorly. There are no pulmonary emboli or aortic dissection. The remainder of the study is also normal.
However, on a CAT scan done on 3/13/08 showed a 4mm nodule in the posterior left lung. The PET scan that I did on 3/20 stated that the nodule is stoo small to be characterized. I have a follow-up PET scan in 3 months.
I still have the pain/swelling in my right knee but I haven't done anything about it since other medical issues are more important.
As far as the Axillary Lymph node is concern, I've had a needle biopsy and it came back negative (B9). However, I was not satisfied that it was done through a needle and continued to seek second/third opinions. I had a PET scan done (320/08) for it and it came back stating that I did NOT have a axillary lymph node! BUT the lymph node was there! can you believe that? Well, I was told by my first surgeon that if the Oncologist/Head of Dept. agrees that I should have a lymph node removal, he would go ahead and do so. The Oncologist agreed and we went ahead with the lymph node removal. I just had it done last week on Tuesday (4/8). I have a large cut underneath my armpit from the beginning (front) of my armpit to the end (back) of it. It looks like a huge smile with 9 big staples on it! I am kind of sore but I thought it would be worse than this. My arm feels a bit numb in the back and heavy. I can handle it. I have a return appointment for the results this Friday (4/18). My surgeon stated that he will be extremely surprised if something should come back positive.
Also on this day, I had a colonoscopy because the PET scan showed the following:
There is small focal area of increased uptake in the lower descending colon with SUV of 2.5. Evaluation of colonoscopy or barium enema can be performed.
I've been having stomach problems for a long while, especially with constipation, abdominal pain/cramping, nausea, etc. So, the colonoscopy was set for the same day but according to the surgeon my colon was not empty enough and therefore I had to do a Barium Enema... OMG ... NEVER again!! I will have the results on Friday as well.
Before all of this I also had an endoscopy/biopsy performed because of my stomach problems and it came back fairly well except that my stomach lining is inflammed and I also have H. Pylori. I am currently taking medication for it.
On a blood test that was perfermed, my glucose levels were high and I am now a DIABETIC! Taking meds for that as well. Also, high cholesterol and on meds for that as well.
More info PET Scan/CT Study Findins and Impressions:
The study was performed following intravenous administration of 15.6 mCi FDG. Some 45 minutes later, PET images fromthe skull base to the mid thigh were obtained. Attention correction is performed with the simultaneouly performed non-contrast CT of low diagnostic quality.
FINDINGS:
There is symmetrical uptake in the submandibular gland, tonsils with SUV of 2. This is likely physiological. ( I HAVE NO IDEA ABOUT THIS, WHAT COULD THIS BE?) THE DOC. DID NOT SPEAK TO ME ABOUT THIS) There is no significan axillary lymph node enlargement. There is no significant hilar lymph node enlargement which is hypermetabolic. There is no hypermetabolic focal liver lesion or splenic lesion. There is no hypermetabolic axillary lymph node enlargement.
On the previous CT chest study performed on 3/13/08, there was a 4mm nodule in the posterior left lung. This nodule is too small to be characterized witha PET scan.
There is a small right inguinal lymph node with SUV of 0.6 measuring about 1.5 cm in axial image 378 at table position 324. This is likely nonspecific. There is uptake in the region of the right ischial tuberosity bursa with SUV of 2.1 (I ALSO HAVE NO IDEA ABOUT THIS. THE DOC DID NOT COMMENT ON THIS NEITHER.)
there is focal area of increased uptake in the lower descending colon with SUV of 2.5 at table position 239 in image 46.
impression:
1.no hypermetabolic axillary lymphadenopathy or mediastinal lymphadenopathy
2.there is a small focal area of increased uptake in the lower descending colon with SUV of 2.5.
3.small lymph node in the medial aspect of the right inguinal region in the proximal right thigh measuring about 1.5cm with SUV of 0.6
4.small nodule seen at the posterior apsect of the left lung is too small to be characterized with petscan. followup ct at 3-6 months.
In all, a hell of a couple of months, but well worth it. Right now, just waiting for the results. A bit sore from the lymph node removal but okay.
I am, however, having problems with my stomach/bowel movements. I am still constipated, nausea, sometimes diarreah, stool looks too mucous, funny color - orange; lower abdominal cramps. (period like cramps) that I have to bend over, sometimes huge amount of saliva stores in my mouth when I get nauseous; and lower back pain. poor appetite and sometimes as soon as I eat I have to run to the bathroom in pain.
To tell you the truth, all of this sounds too familiar like colon cancer. But, I just have to wait for the results which right now seems like an eternity. Wish me luck! Any thoughts are welcomed.
Connie I just posted a message to Newhall Which I really meant for you please let me have your thoughts
by anailil
I was diagnosed with lung cancer Oct/06. Stable since Feb/07. Had a lymph node taken out in Dec/04. Now I have another growing. What happens now ? Are lymph nodes continue to swell and will have to be taken out or is this an indication that the cancer might be spreading to other parts of the body ? Any thoughts>
Did you get your CT scan? What did the doctors say?
Dr. Enoch Choi, MD
Palo Alto, CA
Lung cancer often spreads to the armpit lymph nodes so it is concerning that your doctor told you to get a CT scan. I would follow their advice. You can go to your county clinic to get care at a reduced price, they often provide sliding scale based on your income.