how can i get a diagnosis ? cbc normal. liver normal. doctor doesnt believe me or care but i have growths on my knees (xray normal too) and it hurts to walk now. i also have constant constipation and decaying vision anomalies which increase every month (floaters). i feel i have widespread cancer which is now taking over in the form of bone marrow cancer. would the cbc not show anything from this? why cant/wont they diagnose me? im suffering so much i just want people to acknowledge its for real before i finally die... and maybe ease my suffering before the end.
i had given up looking for a diagnosis a few years ago since no tests show any signs of concern to my crappy doctors. (i dont haev real insurance or money so its not like i can just get another one).. but now with the fact i have growths on my knees and growing pain in my neck (really scared about that) along with the fact it hurts like hell to walk and i cannot really get restful sleep ever... i just need to get a diagnosis before the end. im tired of my family and doctors hating me in disbelief. no one should have to die scorned like this.
ive just done more reseach myself and found out this is one of the MOST COMMONLY MISSED cancers because people complain about wide arrays of ailments for years leading up to the point where it is way too late to do anything. **** you america. and your stupid method of health *care* . i get to die in the worst agony without a prayer by the time i get diagnosed. i suppose i have to DEMAND for that serum protein calcium something blood test. i read that is the ONLY one that will diagnose or begin to diagnose multiple myeloma. what a ****** up world. if any doctors read this, realize you are morons and give people FULL TESTS when they complain of horrific ailments. ugh. i have to die so disgusted.
Hi I'm sorry you can't get help, that *****. I don't live in the US, but in Canada so we have our own issues (more like waiting times).
I have Multiple Myeloma. With treatment I hope to live long!
From my experience Multiple Myeloma wasn't so much hard to diagnose, it's actually easy with the right blood test, but no one thought to test me for it because it is considered rare and i'm still youngish.
the test you need to get is just a CBC (basic blood work) and a test called a serum protein electropherisis, which is the test for the distinct protien myeloma cells make, this test shows myeloma in something like 80% of cases. the others can mostly be checked with a new test called Freelite ratio, but I don't really understand this test to explain it.
The CBC is used to check for anemia (a diagnostic feature of MM), and also signs your bone marrow is not working well, like low white count, and low platelets.
another big thing with MM is the bone involvement, but most MM patients the spine is one of the most common places, also the the other bones with live bone marrow such as the ribs, pelvis shoulder, skull. The damage in your bones shows up on exrays as tiny holes that can grow larger if cancer progresses.
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